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Expert's Corner
VBF NEEDS LANGUAGE TRANSLATORS
- SPANISH, PORTUGESE, AND ASIAN LANGUAGES Babies with Birthmarks™
Recent Medical Papers and ResearchVBF has a great deal of research available, including
a bibliography for offline research. |
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| Gary Mauer (star of Phantom of the Opera) Stephen Dale, Christine Shannon and Beth Southard (wife and co-star of Phantom) after their spectacular performance at the gala | Barbara Rothaupt, VBF Ex. Asst. Basia Joyce, and VBF President Dr. Linda |
http://www.youtube.com/watch?v=WNQAufS1EOQ
http://www.youtube.com/watch?v=iUehVvjoGDM
VBF
Abby Czirr Physician Education Grant in memory of Abby launched November
14, 2008
VBF Abby Czirr Physician Education Grant Applications Now Being Accepted
Video of Abby Czirr (wmv)
Roy
G. Geronemus, M.D., Director of the Laser & Skin Surgery Center of
New York, graduated from Harvard University and pursued his medical education
at the University of Miami School of Medicine.
Evan
Ducker, age 14, has been named an "Amazing Kid of the Month"
for November 2008 by the Amazing Kids! organization at www.amazing-kids.org.
Although one in ten babies are born with some type of birthmark, most people do not know much about birthmarks. As a result, people who have noticeable birthmarks are sadly often the brunt of cruel and unthinking remarks and treatment by others.
John
& Margaret Warren – A Leap of FaithJumping out of a plane at 10,000 feet for charity. Everybody else is doing it, so why not us?The director and his wife are proposing to skydive over Gleneagles in aid of the Vascular Birthmark Foundation. This is an international charity which is not well known in Britain and we feel that we want to support a charity which gets less attention than some of the better known charities in the UK.Read More Here
For
the 2nd Year, VBF receives $25,000 donation from Frank Catalanotto of
the Texas Rangers, and his familyThe Catalanottos are VBFs Honorary Chairs
VBF Treasurer, Brian Bolinger, pictured
here with his wife Natalie and children Nicole and Brock accept a $25,000
donation from Frank Catalanotto (#27 of the Texas Rangers) on behalf
of VBF. Frank and Barbara are the VBF Honorary Chairs.
Pictured in this photo: Top Row (left to right): Cleve and Stephanie
Ryan, Frank and Barbara Catalanotto, Brian and Natalie Bolinger
Bottom Row: Grayson and Kennedy Ryan, Morgan Catalanotto, Nicole and Brock Bolinger
Dr.
Linda Rozell-Shannon Presents Dissertation Results at the 17th International
Workshop on Vascular AnomaliesThe 17th International Workshop on Vascular Anomalies was held in Boston, Massachusetts on June 21-24, 2008. This international association of physicians, PhDs, and researchers includes members from over 38 countries worldwide. Read More Here
VBF
– DAY OF AWARENESS - POWER OF ONE – STARTER KITTo coincide with our Day of Awareness, which is May 15th, we have established
a VBF Day of Awareness – Power of One – Starter Kit. This
kit is for “one individual” who would like to raise awareness
and also help raise needed funds for VBF. It’s easy for someone
who wants to do something for our annual DOA but can’t think of
an event. Also, you don’t have to wait for May 15th to order the
starter kit because every day is a day to raise awareness about vascular
birthmarks and to help us raise needed funds.
Read More
Join
the VBF 2008 Day of Awareness CampaignBuddy Booby says, “Come in and see what’s new”.
Welcome to VBF 2008 International Day of Awareness: http://birthmark.org/awareness/
Look what’s new, VBF 2008 International Day of Awareness! We are excited to launch our international campaign for awareness on May 15. It’s the same day with a new look. Explore the new website and join in the fun.
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| Aslynn with mom Jill and brothers |
On May 15, 2004, the VBF launched the first VBF Day of Awareness for
vascular birthmarks and related syndromes. That same month, Aslynn Brown
was undergoing surgery to remove a massive life-threatening hemangioma
that had grown to cover most of the back of her head, pushing her left
ear forward.
It’s
official! Linda Rozell-Shannon, President and Founder of VBF is now Dr.
Linda. She has recently completed her PhD studies in Education.
Her dissertation “Assessing the Impact of Hemangiomas on Maternal
Stress” suggests a strong relationship between acute stress and
the diagnosis of the hemangioma. The data from this study will hopefully
provide support for families who must appeal insurance denial of treatment
of a hemangioma. The study results can be viewed
by going to this link. (pdf)
Dr. Linda will be presenting her dissertation findings in a poster presentation at the International Society of Surgeons of Vascular Anomalies (ISSVA) conference in Boston in June. It will be Dr. Linda’s first presentation since earning her PhD.
MONTEL
and Voices Honors VBF Founder Linda Rozell-ShannonRead More
See what our friends and viewers
had to say
See more photos of VBF President with
MONTEL
You
can help VBF raise $5,000
For more information, contact Dr. Eric Kossoff at 410-614-6054 or ekossoff@jhmi.edu
A study is being done at UCSF on the genetic cause of PHACES syndrome. Please contact Dr. Dawn Siegel directly to discuss your participation in the study.
Vascular
Birthmarks Foundation is partnering with Recycling for Charities, a non-profit
organization aimed at reducing electronic waste. By donating your old
cell phones, pagers, and other electronic devices you have the unique
opportunity to help keep the environment clean and support VBF at the
same time!
Please click here to learn more about this exciting program.
VBF
Armenia - International Outreach Benefits FamiliesThe Republic of Armenia is a small ancient country in the Southern Caucasus with a population of about one million children. The majority of the children with Hemangiomas and other Vascular Neoplasms are treated in Pediatric Oncology Department (POD), which is assisted by NGO “Friends of Children with Cancer”.
This year’s conference was another successful event for VBF. Nearly 175 people attended the weekend long event. A special thanks to the Beckman Laser Institute, Beckman Laser Institute, Inc., Patricia Beckman, Dr. Michael W. Berns, Dr. Bruce Tromberg, the Laser Microbeam and Medical Program, and the Cynosure Corporation for funding and sponsoring the event. Without Dr. Stuart Nelson, his volunteer staff at the BLI, and the VBF team, and other other volunteers, this conference would not have happened, so we must also thank all of them as well.
VBF Miracle Makers Dr.
Cunningham and Dr. Lawlor |
VBF Australia Rep Hosts Fundraiser Ball
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Wanda's World - A Tween Musical About a Girl with a Birthmark
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Port Wine Stains: Clearance, Cure, and Recurrence
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VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES
JOIN
THE BUDDY BOOBY READATHON NOW VBF International Day Of Awareness
Read-a-long
On May 15, in a global effort to increase public education & raise
birthmark awareness--classrooms all over the world will be reading the
children’s book, Buddy Booby’s Birthmark*
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VBF President Linda Rozell-Shannon meets First Lady Laura Bush, October 2006, in Saratoga, NY. |
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Michael's
Website
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VBF Announces: Orphans With Birthmarks™ |
Join Glen's Gang - Kids with Birthmarks can now share stories and read about other kids with birthmarks by joining Glen's Gang
VBF
Announces: Babies With Birthmarks ™A Worldwide Educational
Outreach Program
Physicians and professionals worldwide are encouraged to
submit these guidelines to any organization that would be related to
primary pediatric health care. Please contact me directly if you are
submitting these guidelines to any organization so that we can track
the success of the program. For more information on Babies With Birthmarks,
or to find out how you can help us to get these guidelines to be used
all over the world, please click
here.
HAVE WE HELPED YOU?
Turn your holiday purchases into charitable dollars by shopping via GoodShop,
an online shopping network of over 700 stores including Amazon, Apple Stores,
Best Buy, Barnes & Noble, eBay, Gap, Dell, HP, i Tunes, Lands End and
much, much more! Each store will donate a portion of your purchases to VBF!
It’s easy,
Ø Go to www.goodsearch.com
Ø Type Vascular Birthmarks Foundation under “Who Do You GoodSearch
For?”
Ø Click VERIFY
Ø Then click SHOP NOW and choose your stores.
GoodSearch is an online search engine, powered by Yahoo! that donates half
its revenue, about a penny per search, to the charities its users designate.
Use GoodSearch just as you would any search engine.
Thank you for supporting VBF and we wish you a very happy and healthy Holiday
Season!
Vascular Birthmarks Foundation
NOMINATE PHYSICIAN OF THE YEAR
|
Meet Buddy Booby, VBF's Officical Mascot |
 Deborah M. Ladue will donate 25% of all profits from sales on her website to VBF |
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| Beauty
Comes From Within |
| Purchase a Buddy Booby
Book….$15.99 softcover and $21.99 hardcover |
| Birthmark
Book FREE with $24.95 donation! |
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| Purchase
Videos from Previous Conferences Order online or by mail  |
| Use goodsearch…. VBF gets one penny per search |
 Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice. |
CaringBridge is a free, nonprofit web service that connects family and friends to share information, love and support during a health care crisis, treatment and recovery.
Tell a Friend about CaringBridge. |
VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE,
AND ASIAN LANGUAGES
If you can volunteer your time to translate VBF's key informational pages into
one of the above mentioned languages, or in any other language not indicated,
contact VBF President and Founder Linda Rozell-Shannon at hvbf@aol.com.
There are approximately 24 key pages. Please put "Language Translation"
in the subject line. This is very important for our families all over the world
to be able to have the highest quality of information and to have it in their
own language. We can make a difference, but we need your help to continue to
help families all over the world that are affected by vascular birthmarks.
How to
Appeal an Insurance Denial or
Request Out-of-Network Treatment (pdf)
Please
join the VBF and Texas Rangers outfielder Frank Catalanotto and his wife Barbara
as we team up to strike out vascular birthmarks!
CBS
Early Show
VBF Gets Referenced in Buddy Booby Birthmark Articles
CBS
Early Show
If you think your child has a hemangioma Click
Here...
If you think you or your child has a port wine stain Click
Here...
If you think you or your child has a venous malformation Click
Here...
Information on syndromes associated with vascular birthmarks
Multifocal Lymphangioendotheliomatosis with Thrombocytopenia
Read
about Jadyn's Journey with this rare vascular syndrome
Multifocal
Lymphangioendotheliomatosis With Thrombocytopenia
A Newly Recognized Clinicopathological Entity
Article Located at Archives of Dermatology
Multifocal
Lymphangioendotheliomatosis With Thrombocytopenia:
A Rare Cause of Gastrointestinal Bleeding in the Newborn Period
Article Located at Pediatrics
Please Note:
Dr. Waner's Office Has Moved To:
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
Contact Clinical Coordinator directly at:
Corey R. Tournay, R.N., Clinical Coordinator
Vascular Birthmark Institute of New York
126 West 60th Street, Ground Floor
New York, NY 10023
Tel: 212-636-3977
Fax: 212-636-3979
CTournay@chpnet.org
If you have an appointment or are trying to make an appointment please make
sure you know that he is now at a new location but still in Manhattan.
VBF is Making a Difference
What Our Families Are Saying
75 Minute Miracle - Anna before and after surgery done by Dr. Waner in 75 minutes
VBF
VBF Europe
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
Sturge-Weber Syndrome Community
SWSC-Canada
Partners
Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks
Participate in our Annual Day of Awareness
Pariticpate in our
Annual Book Reading of Buddy's Booby Birthmark Book
Participate in our Kids Who Care Program
Participate in Glens Gang newsletter for kids with
birthmarks
See Dr. Waner in Europe
If you are a patient of Dr. Waner's, we are in need of before and after photos.
Click here.
YOU CAN HELP - PARTICIPATE IN VARIOUS VASCULAR
BIRTHMARKS STUDIES
Research Studies
New! Our list of research studies for vascular birthmark related research.
Low-Dose Aspirin Study for people with SWS
PWS Study
Use of the Atkins diet for children with Sturge-Weber
Syndrome
PHACE Syndrome Registry. Parents of children
with PHACE Syndrome registry
The Effect of Facial Hemangiomas on Psycho-Social Development
Publications for Parents
Find helpful documents for families
MAKE UP FOR BIRTHMARK COVERING
Nancy Roberts of www.smartcover.com will send anyone who wants to cover
a birthmark a gift certificate. Write directly to our Ask
the Make-up Expert on our experts corner and receive a free gift certificate
for $15.00 towards the purchase of any Smart Cover make up product.
Read Kay's Story (VBF Europe Rep)
Kay before SmartCover and Kay after SmartCover
Make-up by Stacey Craven
Aesthetician/Makeup Artist
Do you have any suggestions to improve the services we offer to our VBF families?
Send us your comments and suggestions!
Dr.
Linda and her daughter Christine 2008 - The Founder of VBF Tells Her Personal
Story
Meet the Webmistress
Missy Scott
Missy has worked with VBF for seven years and is responsible for all technical
and design issues of this site. If you have a question or concern about VBF's
website, please contact her.
Nevus Clinic (Non-Vascular Birthmarks) Starts at Mass. General Hospital
Dr. Martin Mihm and his team will be seeing patients with congenital nevus (giant
hairy, moles, pigmented lesions, etc.) and all other non-vascular birthmarks
(Mongolian spots, Spitz Nevus, etc.) in addition to Vascular Birthmarks, at
the Saturday clinics at the Mass. General Hospital in Boston. Dr. Mihm is combining
the Vascular Birthmarks Clinic with the Congenital Nevus clinic to form the
first combined vascular and non-vascular birthmarks clinic. Linda Shannon will
be the clinic coordinator at these combined clinics. This clinic is for adults
and children. To schedule an appointment, call Andrea at 617-724-1350.
VBF welcomes Dr. Waner. Dr.
Waner is an internationally recognized authority on hemangiomas and
vascular malformations.
VBF welcomes Dr. Stuart Nelson of the Beckman Laser Institute as another
one of our medical experts. Dr. Nelson will answer your questions concerning
the diagnosis and treatment of Port Wine Stains. 
Meet
Dr. Gregory Levitin, partner to Dr. Milton Waner. Dr. Levitin will answer
your questions regarding the surgical treatment of all vascular birthmarks
and tumors. VBF's Ask the Surgeon! 
VBF
is proud to have the world renown expert, Dr. Alex Berenstein as its expert
in AMVs. Send your questions concerning AVMs to him. 
VBF
is proud to add Dr. Thomas Serena as our wound care expert. Please send
Dr. Serena your questions regarding wound care for an ulcerated hemangioma
or other vascular birthmark, tumor, or syndrome that requires wound care.
VBF
is proud to welcome Dr. Giangola of NYC as our KTS surgical expert. If you
have questions concerning the surgical treatment of KTS or other vascular
lesions of the arms, legs, or trunk, contact him. 
VBF
is proud to announce the addition of an expert who treats Lymphatic Malformations.
Ask Dr. Edmonds your questions related to this vascular lesion. 
VBF
is proud to welcome Dr. Steve Thompson as our Military surgeon to answer
questions about vascular birthmarks to our military families. He is currently
working with Dr. Waner in NYC. 
Dr.
Aaron Fay joins VBF as our eye specialist VBF's Eye Specialist will answer
questions concerning eye problems and birthmarks.
VBF
is proud to showcase Dr. Martin Mihm, Jr. as our Research Expert. Dr. Mihm
is coordinating and directing research regarding vascular birthmarks and
tumors. 
VBF
Welcomes Dr. Bob Rosen as our expert for all non-brain AVMs and vascular
lesions of the arms and legs. Dr. Rosen welcomes your questions concerning
these lesions. 
VBF
is proud is welcome Dr. Steven Fishman of Boston Children's Hospital as
our Ask the Internal Lesions Expert. Ask Dr. Fishman your questions about
liver and other internal vascular lesions.
VBF
is excited to have a multilingual expert. Dr. Piris is from Boston and can
answer your questions in Spanish, Portugese, and Italian and of course English.
Please send your questions concerning your vascular birthmark or tumor to
Dr. Piris. 
VBF
is proud to add Dr. Orhan Konez as our expert Interventional Radiologist.
Questions regarding reading and interpreting films and treating malformations
with sclerotherapy or embollization can be sent to Dr. Orhan Konez. 
VBF
is proud to announce that Dr. Jason Mouzakes from Upstate New York has joined
us as our airway expert. Email Dr. Mouzakes with questions regarding airway
hemangiomas and other vascular lesions in the airway (throat area). 
VBF
is proud to add Dr. Tombris as a European surgeon expert. He treats all
forms of hemangomas, port wine stains and malformations. 
VBF
is proud to announce that Dr. Anne Comi, one of the leading experts on Sturge
Weber Syndrome will be responding to your questions concerning this syndrome.
Read more about Dr. Comi and ask her expert advice on SWS. 
VBF is proud to add Dr. Zeina Tannous as a Laser/Dermatology expert. Send your questions to Dr. Tannous here.
VBF
is proud to welcome Dr. Delfanian as our Klippel-Trenaunay expert. Send
your questions concerning KT Syndrome to Dr. Delfanian. 
VBF
is proud to welcome Dr. Denise Metry as our PHACES expert. If you have any
questions regarding this syndrome, please ask Dr. Metry. 
VBF
is proud to offer to our families a new service. VBF's Ask the Laser Doctor
offers expert advice on laser treatments for all vascular birthmarks by
Dr. Susie Astner. 
VBF
is proud to offer the services of a Pharmacy Doc who worked for many years
at a Vascular Birthmarks Clinic. If you or your child has a vascular birthmark
and you have a question regarding a prescription drug, please ask Doc Helen
Figge. 
VBF
Announces "Ask Dr. Linda." Dr. Linda Rozell-Shannon is the leading
lay expert in the world on the subject of vascular birthmarks.
VBF
is proud to have Lex van der Heijden, Chairman, CMTC, as our Cutis Marmorata
Telangiectatica Congentica expert. If you or your child has CMTC, please
contact Lex with your questions. 
VBF
is proud to add Barbara (Basia) Joyce as our insurance appeal expert. Please
send your questions regarding your appeal or request for out-of-network
treatment to Basia.
VBF
is proud to have Corinne Barinaga, our Administrative Director, to answer
emails concerning family advocacy or treatment issues. 
Elissa
Uretsky- Rifkin, M.Ed. CMHC is a trained developmental specialist and is
on the board of VBF. Send questions concerning hemangiomas and this topic
to Elissa 
Leslie
is a trained developmental specialist. Send questions concerning port wine
stains and this topic to leslie 
VBF
is proud to add Alicia as our Adult with an AVM who can translate your spanish
questions to one of our docs and can answer back to you in spanish. 
VBF
is happy to provide you with an expert opinion regarding the use of make-up
to cover a birthmark. Ask our expert Nancy Roberts, Co-Creator of Smart
Cover Cosmetics (www.smartcover.com), your questions about make-up. 
Our
newest program - 
VBF
First Family Scholarship Awarded in Memory of Theresa M. Rozell -
Dr. Linda's Mother - Who Passed Away Suddenly on 12-8-08
The
Stephen Dale Project
