before and after of hemangioma before and after of PWS before and after of venous malformation before and after of AVM before and after of lymphatic malformation CMTC sturge-weber syndrome kts PHACE

Expert's Corner

Ask the Physican's Expert
Dr.Waner VBF welcomes Dr. Waner. Dr. Waner is an internationally recognized authority on hemangiomas and vascular malformations.
Ask the PWS Expert
Dr.Nelson VBF welcomes Dr. Stuart Nelson of the Beckman Laser Institute as another one of our medical experts. Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.

Ask the Surgeon
Dr.LevitinMeet Dr. Gregory Levitin, partner to Dr. Milton Waner. Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors. VBF's Ask the Surgeon!

Ask the AVM Expert
Dr. BerensteinVBF is proud to have the world renown expert, Dr. Alex Berenstein as its expert in AMVs. Send your questions concerning AVMs to him.
Ask the Wound Care Expert
Dr. SerenaVBF is proud to add Dr. Thomas Serena as our wound care expert. Please send Dr. Serena your questions regarding wound care for an ulcerated hemangioma or other vascular birthmark, tumor, or syndrome that requires wound care.
Ask the KTS Surgery Expert
Dr. GiangolaVBF is proud to welcome Dr. Giangola of NYC as our KTS surgical expert. If you have questions concerning the surgical treatment of KTS or other vascular lesions of the arms, legs, or trunk, contact him.
Ask the Lymphatic Malformation Expert
Dr. EdmondsVBF is proud to announce the addition of an expert who treats Lymphatic Malformations. Ask Dr. Edmonds your questions related to this vascular lesion.
Ask the Military Surgeon
Dr. ThompsonVBF is proud to welcome Dr. Steve Thompson as our Military surgeon to answer questions about vascular birthmarks to our military families. He is currently working with Dr. Waner in NYC.
Ask the Eye Specialist
Dr. FayDr. Aaron Fay joins VBF as our eye specialist VBF's Eye Specialist will answer questions concerning eye problems and birthmarks.
Ask the Research Expert
Dr.MihmVBF is proud to showcase Dr. Martin Mihm, Jr. as our Research Expert. Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.
Ask the Vascular Arms/Legs Expert
VBF Welcomes Dr. Bob Rosen as our expert for all non-brain AVMs and vascular lesions of the arms and legs. Dr. Rosen welcomes your questions concerning these lesions.
Ask the Internal Lesions Expert
Dr. FishmanVBF is proud is welcome Dr. Steven Fishman of Boston Children's Hospital as our Ask the Internal Lesions Expert. Ask Dr. Fishman your questions about liver and other internal vascular lesions.
Ask the Doctor in Spanish, Portugese, or Italian
VBF is excited to have a multilingual expert. Dr. Piris is from Boston and can answer your questions in Spanish, Portugese, and Italian and of course English. Please send your questions concerning your vascular birthmark or tumor to Dr. Piris.
Ask the Interventional Radiologist
Dr. KonezVBF is proud to add Dr. Orhan Konez as our expert Interventional Radiologist. Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.
Ask the Airway Expert
Dr. MouzakesVBF is proud to announce that Dr. Jason Mouzakes from Upstate New York has joined us as our airway expert. Email Dr. Mouzakes with questions regarding airway hemangiomas and other vascular lesions in the airway (throat area).
Ask the European Surgeon
Dr. TomrisVBF is proud to add Dr. Tombris as a European surgeon expert. He treats all forms of hemangomas, port wine stains and malformations.
Ask the SWS Expert
Dr. ComiVBF is proud to announce that Dr. Anne Comi, one of the leading experts on Sturge Weber Syndrome will be responding to your questions concerning this syndrome. Read more about Dr. Comi and ask her expert advice on SWS.
Ask the Laser Dermatology Expert
Dr. TannousVBF is proud to add Dr. Zeina Tannous as a Laser/Dermatology expert. Send your questions to Dr. Tannous here.
Ask the KT Expert
Dr. DelfanianVBF is proud to welcome Dr. Delfanian as our Klippel-Trenaunay expert. Send your questions concerning KT Syndrome to Dr. Delfanian.
Ask the PHACES Expert
Dr. MetryVBF is proud to welcome Dr. Denise Metry as our PHACES expert. If you have any questions regarding this syndrome, please ask Dr. Metry.
Ask the Laser Doctor
Dr.AstnerVBF is proud to offer to our families a new service. VBF's Ask the Laser Doctor offers expert advice on laser treatments for all vascular birthmarks by Dr. Susie Astner.
Ask the Pharmacy Doc
Helen FiggeVBF is proud to offer the services of a Pharmacy Doc who worked for many years at a Vascular Birthmarks Clinic. If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.
Ask Dr. Linda, VBF's President and Founder
Ask the VBF FounderVBF Announces "Ask Dr. Linda." Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.
Ask the CMTC Expert
Lex van der Heijden, Chairman, CMTCVBF is proud to have Lex van der Heijden, Chairman, CMTC, as our Cutis Marmorata Telangiectatica Congentica expert. If you or your child has CMTC, please contact Lex with your questions.
Ask the CMTC Doctor
VBF is proud to announce the addition of Dr. Marilyn Liang of Boston Children's Hospital as our Ask the CMTC expert. Send your questions regarding CMTC to Dr. Liang
Ask the Insurance Appeal Expert
Barbara JoyceVBF is proud to add Barbara (Basia) Joyce as our insurance appeal expert. Please send your questions regarding your appeal or request for out-of-network treatment to Basia.
Ask the Family Services Expert
VBF is proud to have Corinne Barinaga, our Administrative Director, to answer emails concerning family advocacy or treatment issues.
Ask the Developmental Specialist
Elissa Uretsky- Rifkin, M.Ed. CMHC is a trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa  
Ask the Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to leslie    
Ask the Adult Rep in Spanish
AliciaVBF is proud to add Alicia as our Adult with an AVM who can translate your spanish questions to one of our docs and can answer back to you in spanish.
Ask the Makeup Expert
Ask the Makeup ExpertVBF is happy to provide you with an expert opinion regarding the use of make-up to cover a birthmark. Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (www.smartcover.com), your questions about make-up.

Contact the Oral and Dental Experts


Physician to Physician Case Study Forum created by Dr. Orhan Konez

High Risk Pregnancy Expert

If you are pregnant and have a vascular birthmark, tumor, or malformation, and have any concerns about your pregnancy, contact Dr. Rebarber.

Dr. Andrei Rebarber
70 East 90th Street
New York, NY 10128 (Corner of 90th and Madison) 2nd Floor
(212) 722-7426
(212) 722-7409

 

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES

Babies with Birthmarks™

Babies with BirthmarksOur newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

VBF has a great deal of research available, including a bibliography for offline research.


Great Day of Awareness Goal- Sponsor a Family

Each year VBF organizes a conference where families can learn about the latest treatment in vascular birthmarks and tumors. They also receive a free night lodging and most meals are provided free of cost. If the family is unable to pay the $50 clinic and $50 conference fees, they are also waived. VBF pays approximately $500 for each family that attends our annual conference.
Send this sheet out and distribute to your friends so that they can also help to sponsor a family. (pdf)

Donate Now


Theresa M. RozellVBF First Family Scholarship Awarded in Memory of Theresa M. Rozell - Dr. Linda's Mother - Who Passed Away Suddenly on 12-8-08

Read More Here

http://www.legacy.com/TimesUnion-Albany/Obituaries.asp?Page=Lifestory&PersonId=121239514

http://blogs.timesunion.com/tablehopping/?p=3247

http://www.youtube.com/watch?v=-D9Qg39MKR8


VBF Mark of Beauty Gala and 2008 Conference
a HUGE success

VBF took on a big task this year. It was our first ever gala in NYC (Mark of Beauty) at the Hudson Theatre in Times Square on Friday evening, November 14th. We also held our annual international conference the very next day at the Beth Israel PACC at Union Square. The responses from those who attended the gala and/or the conference were similar. Comments included such descriptors as “fantastic” and “phenomenal” and “one of the best galas I have ever attended” and “the most informative conference on vascular birthmarks” and so on. Almost overnight, we received over 30 thank you notes from families attending the conference and almost as many from individuals who attended the gala.

There were 285 attendees at the gala and 240 at the conference. We were privileged to have two “phantastic” performers – Gary Mauer and Beth Southard, stars of the Phantom of the Opera. They brought the house down with the finale song (Phantom), especially when they were joined in the finale with Christine Shannon and Stephen Dale.

Gary Mauer, Stephen Dale, Christine Shannon, and Beth Southard Barbara Rothaupt, VBF Ex. Asst. Basia Joyce, and VBF President 
              Dr. Linda
Gary Mauer (star of Phantom of the Opera) Stephen Dale, Christine Shannon and Beth Southard (wife and co-star of Phantom) after their spectacular performance at the gala Barbara Rothaupt, VBF Ex. Asst.
Basia Joyce, and VBF President Dr. Linda

Listen to Christine Shannon (daughter of VBF President/Founder) and Stephen Dale (Stephen Dale Project) duet from the VBF 2008 Gala and also their performance with Phantom of the Opera Stars (Gary Mauer and Beth Southard). Don't Miss It !

http://www.youtube.com/watch?v=WNQAufS1EOQ

http://www.youtube.com/watch?v=iUehVvjoGDM

 


Abby CzirrVBF Abby Czirr Physician Education Grant in memory of Abby launched November 14, 2008

VBF Abby Czirr Physician Education Grant Applications Now Being Accepted

Video of Abby Czirr (wmv)


Dr. Roy Geronemus, VBF 2008 Physician of the Year

Dr. GeronemusRoy G. Geronemus, M.D., Director of the Laser & Skin Surgery Center of New York, graduated from Harvard University and pursued his medical education at the University of Miami School of Medicine.


Read More Here


VBF CONFERENCE MAKES THE NEW YORK TIMES

http://www.nytimes.com/2008/11/16/nyregion/16birthmark.html?_r=1&ref=todayspaper&oref=slogin


Evan Ducker, age 14, has been named an "Amazing Kid of the Month" for November 2008 by the Amazing Kids! organization at www.amazing-kids.org.

Although one in ten babies are born with some type of birthmark, most people do not know much about birthmarks. As a result, people who have noticeable birthmarks are sadly often the brunt of cruel and unthinking remarks and treatment by others.

 Read More at amazing-kids.org


VBF Texas 5th Annual Logo

2008 Texas Event A Huge Success

See photos:

http://www.flickr.com/photos/angelskissgala/


skydiveJohn & Margaret Warren – A Leap of Faith

Jumping out of a plane at 10,000 feet for charity. Everybody else is doing it, so why not us?The director and his wife are proposing to skydive over Gleneagles in aid of the Vascular Birthmark Foundation. This is an international charity which is not well known in Britain and we feel that we want to support a charity which gets less attention than some of the better known charities in the UK.Read More Here


For the 2nd Year, VBF receives $25,000 donation from Frank Catalanotto of the Texas Rangers, and his family

The Catalanottos are VBFs Honorary Chairs

VBF Treasurer, Brian Bolinger, pictured here with his wife Natalie and children Nicole and Brock accept a $25,000 donation from Frank Catalanotto (#27 of the Texas Rangers) on behalf of VBF. Frank and Barbara are the VBF Honorary Chairs.

Pictured in this photo: Top Row (left to right): Cleve and Stephanie Ryan, Frank and Barbara Catalanotto, Brian and Natalie Bolinger

Bottom Row: Grayson and Kennedy Ryan, Morgan Catalanotto, Nicole and Brock Bolinger


Dr. Linda presents her dissertation findingsDr. Linda Rozell-Shannon Presents Dissertation Results at the 17th International Workshop on Vascular Anomalies

The 17th International Workshop on Vascular Anomalies was held in Boston, Massachusetts on June 21-24, 2008. This international association of physicians, PhDs, and researchers includes members from over 38 countries worldwide. Read More Here


VBF – DAY OF AWARENESS - POWER OF ONE – STARTER KIT

To coincide with our Day of Awareness, which is May 15th, we have established a VBF Day of Awareness – Power of One – Starter Kit. This kit is for “one individual” who would like to raise awareness and also help raise needed funds for VBF. It’s easy for someone who wants to do something for our annual DOA but can’t think of an event. Also, you don’t have to wait for May 15th to order the starter kit because every day is a day to raise awareness about vascular birthmarks and to help us raise needed funds.
Read More

Join the VBF 2008 Day of Awareness Campaign
Tell Your Story
Help us Raise Needed Funds

Buddy Booby says, “Come in and see what’s new”.

Welcome to VBF 2008 International Day of Awareness: http://birthmark.org/awareness/

Look what’s new, VBF 2008 International Day of Awareness! We are excited to launch our international campaign for awareness on May 15. It’s the same day with a new look. Explore the new website and join in the fun.

 

The Family Tradition of Awareness and Fundraising Continues with the
2008 VBF International Day of Awareness

Aslynn with mom Jill
and brothers

On May 15, 2004, the VBF launched the first VBF Day of Awareness for vascular birthmarks and related syndromes. That same month, Aslynn Brown was undergoing surgery to remove a massive life-threatening hemangioma that had grown to cover most of the back of her head, pushing her left ear forward.

 

Read More


Dr. Linda – VBF President and Founder Completes Doctorate from Walden University

Dr. Linda It’s official! Linda Rozell-Shannon, President and Founder of VBF is now Dr. Linda. She has recently completed her PhD studies in Education. Her dissertation “Assessing the Impact of Hemangiomas on Maternal Stress” suggests a strong relationship between acute stress and the diagnosis of the hemangioma. The data from this study will hopefully provide support for families who must appeal insurance denial of treatment of a hemangioma. The study results can be viewed by going to this link. (pdf)

Dr. Linda will be presenting her dissertation findings in a poster presentation at the International Society of Surgeons of Vascular Anomalies (ISSVA) conference in Boston in June. It will be Dr. Linda’s first presentation since earning her PhD.


Linda, Montel, and BasiaMONTEL and Voices Honors VBF Founder Linda Rozell-Shannon

Read More
See what our friends and viewers had to say

See more photos of VBF President with MONTEL


You can help VBF raise $5,000
and it won’t cost you a penny!


 

RESEARCH STUDIES/REGISTRIES

If your infant has been diagnosed with “hemangiomas”, low levels of platelets, and gastrointestinal bleeding

Read More Here

Low-dose Aspirin Treatment for Sturge-Weber Syndrome (SWS) Survey

Read More Here

Use of the Atkins diet for children with Sturge-Weber Syndrome

For more information, contact Dr. Eric Kossoff at 410-614-6054 or ekossoff@jhmi.edu

PHACES Syndrome Families

A study is being done at UCSF on the genetic cause of PHACES syndrome. Please contact Dr. Dawn Siegel directly to discuss your participation in the study.

The Effect of Facial Hemangiomas on Psycho-Social Development

Read More Here


Go GREEN and Support VBF!

Recycling for CharitiesVascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time!

Please click here to learn more about this exciting program.


Professor Grigor BadalyanVBF Armenia - International Outreach Benefits Families

The Republic of Armenia is a small ancient country in the Southern Caucasus with a population of about one million children. The majority of the children with Hemangiomas and other Vascular Neoplasms are treated in Pediatric Oncology Department (POD), which is assisted by NGO “Friends of Children with Cancer”.

Read More Here


2007 Port Wine Stain and Vascular Birthmarks Conference a Huge Success

This year’s conference was another successful event for VBF. Nearly 175 people attended the weekend long event. A special thanks to the Beckman Laser Institute, Beckman Laser Institute, Inc., Patricia Beckman, Dr. Michael W. Berns, Dr. Bruce Tromberg, the Laser Microbeam and Medical Program, and the Cynosure Corporation for funding and sponsoring the event. Without Dr. Stuart Nelson, his volunteer staff at the BLI, and the VBF team, and other other volunteers, this conference would not have happened, so we must also thank all of them as well.

Conference Story


VBF Miracle Makers

Dr. Cunningham and Dr. Lawlor
Dr. Buckmiller
Dr. Waner and Dr. Fay

VBF Australia Rep Hosts Fundraiser Ball

VBF Australia Fundraiser Ball

Read More Here

Wanda's World - A Tween Musical About a Girl with a Birthmark

Wanda's World


For more info please visit here

Port Wine Stains: Clearance, Cure, and Recurrence
To Treat or Not to Treat

Read More Here

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES


VBF Latin America and ABRAPHEL Raising Awareness in Brazil

Read More Here


Buddy BoobyJOIN THE BUDDY BOOBY READATHON NOW

VBF International Day Of Awareness
Read-a-long

On May 15, in a global effort to increase public education & raise birthmark awareness--classrooms all over the world will be reading the children’s book, Buddy Booby’s Birthmark*

 

CLICK HERE TO JOIN THE FUN


Stephen DaleThe Stephen Dale Project
Beauty Comes From Within

Raising Awareness about Vascular Birthmarks and Other Facial Differences and Helping to Raise Funds to Support VBF
Read More Here
Get your pin or pendant here
For more information on The Stephen Dale Project


VBF President Linda Rozell-Shannon meets First Lady Laura Bush, October 2006, in Saratoga, NY.

VBF President Linda Rozell-Shannon meets First Lady Laura Bush, October 2006, in Saratoga, NY.

Linda Shannon, Chris, and Sen Clinton
Former First Lady and Senator Hillary Clinton Presents VBF Founder and President Linda Rozell-Shannon with Regional Jefferson Award

Read More Here

Michael's Website
Teen KT Ambassador

Get a customized Birthmark Buddy Bear from Michael

VBF Announces: Orphans With Birthmarks™

MacKenzi


Read More Here.


Join Glen's Gang - Kids with Birthmarks can now share stories and read about other kids with birthmarks by joining Glen's Gang



Babies with BirthmarksVBF Announces: Babies With Birthmarks ™

A Worldwide Educational Outreach Program
Physicians and professionals worldwide are encouraged to submit these guidelines to any organization that would be related to primary pediatric health care. Please contact me directly if you are submitting these guidelines to any organization so that we can track the success of the program. For more information on Babies With Birthmarks, or to find out how you can help us to get these guidelines to be used all over the world, please click here.


HAVE WE HELPED YOU?

Join our Day of Awareness Campaign

Find a PhysicianFind a Parent ResourceFind a VBF Chapter



    

Donate to VBF or Shop VBF


SHOP GOODSHOP AND USE GOODSEARCH TO HELP VBF

Turn your holiday purchases into charitable dollars by shopping via GoodShop, an online shopping network of over 700 stores including Amazon, Apple Stores, Best Buy, Barnes & Noble, eBay, Gap, Dell, HP, i Tunes, Lands End and much, much more! Each store will donate a portion of your purchases to VBF!
It’s easy,
Ø Go to www.goodsearch.com
Ø Type Vascular Birthmarks Foundation under “Who Do You GoodSearch For?”
Ø Click VERIFY
Ø Then click SHOP NOW and choose your stores.
GoodSearch is an online search engine, powered by Yahoo! that donates half its revenue, about a penny per search, to the charities its users designate. Use GoodSearch just as you would any search engine.
Thank you for supporting VBF and we wish you a very happy and healthy Holiday Season!

Vascular Birthmarks Foundation

NOMINATE PHYSICIAN OF THE YEAR

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Join today. Tell your personal story.
Visit the DOA website at:
birthmark.org/awareness

Buddy Booby

Meet Buddy Booby, VBF's Officical Mascot


Order flowers ... VBF receives 12% from each order

Help support VBF by purchasing your flowers from Flowerpetal.com.

Don't forget flowers for the Graduate!


Deborah M. Ladue will donate 25% of all profits from sales on her website to VBF

Beauty Comes From Within
Purchase a pendant or pin….$29.95
Order online or by mail

Vascular Birthmark Support .com offers beautiful jewelry as well as key chains and picture frames with proceeds going to benefit vascular birthmark awareness and fundraising. Visit Vascular Birthmark Support. com today!
Pendant

Purchase silicone bracelets….$5.00
Order online or by mail

Purchase a Buddy Booby Book….$15.99 softcover and $21.99 hardcover

Birthmark Book FREE with $24.95 donation!
Donate online or by mail

Purchase a Birthmark Buddy $15.00
Order online or by mail
VBF Birthmark Bear

Greeting Cards to Benefit VBFGreeting Card Image

 

Purchase Videos from Previous Conferences
Order online or by mail

Use goodsearch…. VBF gets one penny per search
Good Search
www.goodsearch.com


Make Your United Way Pledge to VBF


Go GREEN and Support VBF! Vascular Birthmarks Foundation is partnering with Recycling for Charities, a non-profit organization aimed at reducing electronic waste. By donating your old cell phones, pagers, and other electronic devices you have the unique opportunity to help keep the environment clean and support VBF at the same time! Please click here to learn more about this exciting program and remember to designate VBF as your charity of choice.
Visit www.CaringBridge.org CaringBridge is a free, nonprofit web service that connects family and friends to share information, love and support during a health care crisis, treatment and recovery. Tell a Friend about CaringBridge.

VBF NEEDS LANGUAGE TRANSLATORS - SPANISH, PORTUGESE, AND ASIAN LANGUAGES

If you can volunteer your time to translate VBF's key informational pages into one of the above mentioned languages, or in any other language not indicated, contact VBF President and Founder Linda Rozell-Shannon at hvbf@aol.com. There are approximately 24 key pages. Please put "Language Translation" in the subject line. This is very important for our families all over the world to be able to have the highest quality of information and to have it in their own language. We can make a difference, but we need your help to continue to help families all over the world that are affected by vascular birthmarks.

How to Appeal an Insurance Denial or
Request Out-of-Network Treatment
(pdf)

The Catalanotto FamilyPlease join the VBF and Texas Rangers outfielder Frank Catalanotto and his wife Barbara as we team up to strike out vascular birthmarks!

Donna and Evan Ducker and Buddy Booby Make it Big...

CBS Early Show

VBF Gets Referenced in Buddy Booby Birthmark Articles

CBS Early Show

Information for Parents

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

Information on syndromes associated with vascular birthmarks

Multifocal Lymphangioendotheliomatosis with Thrombocytopenia
Read about Jadyn's Journey with this rare vascular syndrome

Multifocal Lymphangioendotheliomatosis With Thrombocytopenia
A Newly Recognized Clinicopathological Entity

Article Located at Archives of Dermatology

Multifocal Lymphangioendotheliomatosis With Thrombocytopenia:
A Rare Cause of Gastrointestinal Bleeding in the Newborn Period

Article Located at Pediatrics

Please Note:
Dr. Waner's Office Has Moved To:
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
Contact Clinical Coordinator directly at:

Corey R. Tournay, R.N., Clinical Coordinator
Vascular Birthmark Institute of New York
126 West 60th Street, Ground Floor
New York, NY 10023
Tel: 212-636-3977
Fax: 212-636-3979
CTournay@chpnet.org

If you have an appointment or are trying to make an appointment please make sure you know that he is now at a new location but still in Manhattan.

VBF is Making a Difference

What Our Families Are Saying



75 Minute Miracle - Anna before and after surgery done by Dr. Waner in 75 minutes

Chapters of the VBF

VBF
VBF Europe
VBF Latin American
VBF New Zealand
VBF Australia
VBF India
VBF Africa
VBF Asia
VBF Poland
VBF Philippines
Sturge-Weber Syndrome Community
SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks

Participate in our Annual Day of Awareness
Pariticpate in our Annual Book Reading of Buddy's Booby Birthmark Book
Participate in our Kids Who Care Program
Participate in Glens Gang newsletter for kids with birthmarks

See Dr. Waner in Europe
If you are a patient of Dr. Waner's, we are in need of before and after photos. Click here.

YOU CAN HELP - PARTICIPATE IN VARIOUS VASCULAR BIRTHMARKS STUDIES
Research Studies

New! Our list of research studies for vascular birthmark related research.

Low-Dose Aspirin Study for people with SWS

NEW PHACES Study

PWS Study

Use of the Atkins diet for children with Sturge-Weber Syndrome

PHACE Syndrome Registry. Parents of children with PHACE Syndrome registry

The Effect of Facial Hemangiomas on Psycho-Social Development

 

Publications for Parents
Find helpful documents for families

MAKE UP FOR BIRTHMARK COVERING
Nancy Roberts of www.smartcover.com will send anyone who wants to cover a birthmark a gift certificate. Write directly to our Ask the Make-up Expert on our experts corner and receive a free gift certificate for $15.00 towards the purchase of any Smart Cover make up product.


Read Kay's Story (VBF Europe Rep)
Kay before SmartCover and Kay after SmartCover
Make-up by Stacey Craven
Aesthetician/Makeup Artist

Do you have any suggestions to improve the services we offer to our VBF families? Send us your comments and suggestions!

Dr. Linda and her daughter Christine 2008 - The Founder of VBF Tells Her Personal Story

Meet the Webmistress
Missy Scott
Missy has worked with VBF for seven years and is responsible for all technical and design issues of this site. If you have a question or concern about VBF's website, please contact her.

Nevus Clinic (Non-Vascular Birthmarks) Starts at Mass. General Hospital
Dr. Martin Mihm and his team will be seeing patients with congenital nevus (giant hairy, moles, pigmented lesions, etc.) and all other non-vascular birthmarks (Mongolian spots, Spitz Nevus, etc.) in addition to Vascular Birthmarks, at the Saturday clinics at the Mass. General Hospital in Boston. Dr. Mihm is combining the Vascular Birthmarks Clinic with the Congenital Nevus clinic to form the first combined vascular and non-vascular birthmarks clinic. Linda Shannon will be the clinic coordinator at these combined clinics. This clinic is for adults and children. To schedule an appointment, call Andrea at 617-724-1350.