Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   AVM Help and Resources (http://birthmark.org/board/forumdisplay.php?f=11)
-   -   possible venous malformation in finger (http://birthmark.org/board/showthread.php?t=1202)

cjsmom 02-09-2005 06:36 AM

possible venous malformation in finger
 
Hi I am so glad i found this site!! My 10 year old daughter has what is probably a venous malformation in her little finger of her right hand between the two knuckles on the top side. we had never seen it before last december. It was discovered whil she was in the hospital recovering from an infected dog bite of her right hand. At first they thought it was just part of the swelling from the infection, but it was blue and didnt go away. so her pediatriction sent her to see an orthapedic doc who looked at it and said he belived it to be a venous malformation, but he couldtn be sure until he removed it.which he wants to do in a couple of months. I have been searching the web for info on this but have found nothing about VM in fingers. The doc didnt mention any tests for befor surgry just that wed see him the week before. I need to know what to ask our pediatrition and this dr. also can you recomend anyone in Seattle?? Im really nervous about the surgery because its her right hand and she has allways had difficulty with her handwritting , I dont want this to make it worse.
thanks for reading this long message and for being there

nickbar 02-09-2005 06:34 PM

Re: possible venous malformation in finger
 
Hello, I am in Vancouver Wa. and we go to Seattle for treatment of my son's hemangioma. We see Dr. Perkins at Children's

Our doctor is an ENT at Children's...but I can contact him and ask who would be the specialist he would recommend for the hand.

-Corinne
rinner@comcast.net
VBF Director of Information Services

nickbar 02-09-2005 06:48 PM

Re: possible venous malformation in finger
 
Also, ck out the questions on the MSN site...not all will apply but maybe you can find some questions you want answers to.

I think the important question is to ask about an interventional radiologists involvement in the surgery and the doctor's experience with VMs.

http://groups.msn.com/vascularbirthm..._whatsnew.msnw

Corinne

P.S. I have mailed Dr. Perkins for his recommendations...I will let you know when I hear from him.
Feel free to email me anytime. rinner@comcast.net

nickbar 02-09-2005 09:02 PM

Re: possible venous malformation in finger
 
I have the information for you (hand specialist at Children's)... let me know.

Corinne
rinner@comcast.net

cjsmom 02-10-2005 04:12 AM

Re: possible venous malformation in finger
 
thankyou Corrine
i was very relived to findout from you that the dr she saw is being recomended. this is all so new to me. Each day I try to look at her finger and see if its any bigger, without her noticing im looking , so far I think its holding stedy but its very noticable. It is hard to belive that its probably allways been there but from what little ive read so far sounds like the trama from the dog bit and then the infection also puberty starting , I read they can all make these grow.
thanks again for your help and i will keep you up to date on how CJ is doing.
Nicole

joedmond 04-25-2005 03:51 AM

Re: possible venous malformation in finger
 
Okay, I have a similar situation and I sincerely hope that you have an MRI and ultrasound done before you proceed. I have an av malformation in my left thumb and will undergo my first treatment and arteriogram this Wednesday. My primary first referred me to an orthopedic surgeon who then referred me to a hand surgeon who then referred me to Dr. Antonacci at Carolinas Medical Center in Charlotte, NC. Dr. Antonacci worked in Boston and performed an average of 5 of these surgeries on av malformations per day. He tells me that malformations can be mistaken for hemegiomas and some doctors even administer steroids resulting in the loss of a limb. Basically, although this is anything but, my malformation occurred when my arteries and veins formed together without conjoining capillaries. Anyway, my point is... PLEASE make certain of exactly what you're dealing with before your child goes under the knife. You'll want to know how experienced your surgeon is in this particular area. How successful he or she has been with past surgeries. What procedures will they use? Will there be an angiogram or artereogram which involves a catheter through the groin. And most importantly, will the body part operate like normal after the operation and how will it look?

mom2cj 05-31-2005 05:50 AM

Re: possible venous malformation in finger
 
hi I had to change my login (I forgot my password ::).
thank you for sugesting the MRI I would like her to have one. We see her dr in a few weeks for a pre-op visit, then she is scheduled for surgery in mid july. I keep hopeing we are doing the right thing. How did your surgery go your post was in april. so Im guessing youve had yours? another concern we recently noticed the other day when she had a swimsuit on that her inner thighs now have what look like reddish broken bllodvessels(at least thats how her grandma described it) not sure when these showedup but am sure she didnt have them last summer , I cant say for sure about january she did go to a swimming party and i dont recall seeing them but am not certan. anyone else have anything like that?
thanks for your help.

kksmama 02-24-2011 01:53 AM

my daughter is 3. she was born with a growth on her finger. when she had her first check up her doctor told me that it was where she sucked her finger when i was pregnant with her. i ignored it over the next year. it started growning and turning colors. by the time she was 2 and half it was enourmus. i had changed my daughters doctor because the other one simply refused to do anything about it. i finally got an appointment with levines specialty center orthopedics divison in charlotte, nc. which is 45 mins from where i live. since then my daughter has had an mri and been diagnosed with venous vascular malformation on her finger today. i dont not know what to do but after doing some reasearch on this subject it does not look good. i am scaring myself i think. can anyone let me know any good news on the subject?

kksmama 02-24-2011 01:57 AM

Quote:

Originally Posted by cjsmom (Post 6201)
Hi I am so glad i found this site!! My 10 year old daughter has what is probably a venous malformation in her little finger of her right hand between the two knuckles on the top side. we had never seen it before last december. It was discovered whil she was in the hospital recovering from an infected dog bite of her right hand. At first they thought it was just part of the swelling from the infection, but it was blue and didnt go away. so her pediatriction sent her to see an orthapedic doc who looked at it and said he belived it to be a venous malformation, but he couldtn be sure until he removed it.which he wants to do in a couple of months. I have been searching the web for info on this but have found nothing about VM in fingers. The doc didnt mention any tests for befor surgry just that wed see him the week before. I need to know what to ask our pediatrition and this dr. also can you recomend anyone in Seattle?? Im really nervous about the surgery because its her right hand and she has allways had difficulty with her handwritting , I dont want this to make it worse.
thanks for reading this long message and for being there

My daughter has a venous malformation on her left middle finger she had a MRI done yesterday. they can do an MRI to see the veins. i think you should suggest that. they also have multiple options for fixing it like shots to make it smaller. if you need more help my email is hmoss20@yahoo.com

Ms.Penguin 03-06-2011 06:49 AM

I'm 33 years old and I have AVM on my right index finger. When I was a child, we did not yet have the internet available, so we had no idea what it was and who to turn to. It's good to know, mothers now have this forum to seek help for their children. I have only started researching about AVM this year since my finger has become more problematic. I had a MRA done a couple weeks ago but the results were not clear so I'm scheduled for an angiogram. My plan is to send the results to Dr. Levitin. If you have any questions for me or any other useful information, please don't hesitate to message me.


All times are GMT. The time now is 07:23 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.