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-   -   son's treatment (http://birthmark.org/board/showthread.php?t=215)

hismommmy 06-09-2003 06:07 PM

son's treatment
 
My son is 22 months old. When he was born, the doctor told us what he had was a stork bite and that it would go away.
I asked her about his birthmark more than once and she said that it wasn't anything to worry about. Well, through another doctor,
we were told it's PWS. It's on the left side of his face. We will begin laser treatment in about a month. As a mother, I'm scared to death.
What should we expect? How painful will this be for him? They will be using a pulse dye laser and he will be asleep.
I want this to go as best it can, are there things I should ask for or about? And how do I care for it afterwards? How sore will it be?
I know I'm asking alot of questions, but we just found this out. I never really minded the birthmark, just thought it made him special.
I never knew there were health risks involved. I feel so guilty for not seeing someone else right away. I'd appreciate any help or advice
anyone can give me.
Thank you so much,
Erin

hankbartenbach 06-10-2003 04:21 AM

Re:son's treatment
 
Hi Erin, my name is Hank.

Well I have some good news for you, you are in the right please asking those questions because not only I can help but other parents on this web site can give you support and you can share storys.

First of all you should not feel guilty because it is not your falt that your son has a PWS it is a natural birth defect. I am 21 years old and I have hemangioma's and PWS's. I have been doing laser treatments for 14 years now and I have used four different lasers two of those lasers are pulse dye lasers. My question to you is what type of pulse dye is it. I have used a C-beam and a V-beam. I am thinking your son is going to have the V-beam because I know for sure it is safe for infants. You want to know what it feels like? It feels like somebody snapping you with a rubber band. It will not hurt him, but it will be sore. I do not know how his skin will will react to the laser because everybody is different and some have sincitive skin. Pritty much you would treat it like a sun burn because it feels like one except deeper into the skin. If the treatment swells and is really hot afterwards put Aloevera cream on it, and you will probably want to get some Triple antibiotic oniment because I am almost positive the treated area will swell for at least a week. Ask your doctor about what I have told you and see if this is nessary, because when I had the V-beam I did not put anything on it afterwards but since your child is younger it might have different side effects.

If you have any other questions or want more detail on what I have already told you please email me back because I am here for you and parents like you.

Talk to you soon.

Hank B

mamalamb 06-13-2003 04:23 AM

Re:son's treatment
 
If your child is asleep, there should be little to no pain. They will most likely give some tylenol before leaving the hospital. That is what they do for my dd. We are advised to put bacitracin on the treated area to keep it moist as long as we see purpura(the bruising caused by the laser). Some only use aquaphor. Do not use neosporin on the face! You should keep your child out of the sun for at least 2 weeks before the treatment and it is recommended to keep them out of any direct sun while purpura is present and out of the sun for a couple of months after the treatment. this will affect the treatment. after the purpura is gone, use a sunblock daily and hats. Do not give any ibuprofen, asprin or antianflammitory a week or two before or after treatments. this will also affect the treatment/results. some docs will tell you to put ice on the treated area for 10 minutes on 10 minutes off for a while after treatment for pain and swelling. elevate the head of the crib at night to reduce any swelling. there should be no scabbing or blisters with a good laser specialist who knows what he/she is doing and especially if a cooling method is used with the laser. just make certain the laser doc really knows what he/she is doing. the purpura(bruising) can last anywhere from 7 to 21 days. It takes 8 weeks and more to see true fading/results.

i think that is about it. oh, some adults say they put aloevera with lidocain in the fridge and apply it. our docs have not recommended that, but i'm certain it will be okay as it is a burn.

try not to worry too much. my dd has had 9 treatments since the age of 6 months old. she has done fine.
remember if the pws is located on or around the eye area, you should be having regular glaucoma screenings about every 6 months. if it is not located on or around the eye area, then don't worry about it.

best wishes and happy fading

hismommmy 06-16-2003 01:39 AM

Re:son's treatment
 
Thanks for all the advice, it's nice to talk to someone who has been through this.
Thank you all so much.
I plan to come here for more advice and hopefully, later, help others too!!!


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