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nickbar 08-29-2007 12:22 AM

Just a reminder to register to come to the 07 VBF Conference Nov. 2 and 3rd in Irvine California. This is a great way to have top specialists evaluate you/your child and hear the latest research and treatment information.

If you have any questions, please let me know.


missy 08-29-2007 03:56 PM

The Airport for the conference is John Wayne Airport - Airport Code is SNA.

The hotel does not supply transportation from the airport. Please make arrangements. The average cost each way is $10.00.

swsc 10-05-2007 04:29 PM

SWSC Reminder to All Our Friends - VBF Conference
VBF Conference

It's not too late to register for the VBF Conference in Irvine, CA, November 2-3.
Dr. Comi of the Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute will be there to consult with patients and families and to speak about new developments in Sturge-Weber syndrome.
Daycare during the conference is provided at no charge.
Some other highlights are:
Clinic Sessions with a team of birthmark/syndrome specialists.
Stephen Dale of the Stephen Dale Project will be speaking,
Insurance Appeal/Out of Network Meeting Sessions available.
Make up sessions available.
Glen of Glen's Gang
Meals for the Friday night reception as well as Saturday breakfast and lunch are provided for all registrants. The registration fee is a $25 deposit which goes toward the $50 per family conference fee. There is also a $50 clinic fee for those who wish to attend the clinic session. Anyone who cannot pay the clinic or conference fee can request that the fees be waived. However, the $25 deposit is required for each family registering for the conference and this fee cannot be waived and is non-refundable.
If you have any questions or need additional information, visit the VBF website at or contact me directly.
I hope to see you there!

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