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-   -   Hemangiomas - second opinion in Boston? (http://birthmark.org/board/showthread.php?t=2766)

cbj 02-11-2008 07:15 PM

Hemangiomas - second opinion in Boston?
 
Hi.
My son was born eight months ago with two Hemangiomas. One on his forehead, one on his chest. they have both increased in size dramatically since his birth. We live in the Boston area and have been seen at Childrens hospital for the Hemangiomas. We have been given the response to "wait and see". Dr. Green did tell use that he is fairly certain Connor will require surgery on both as he is assuming after they recede, a scar will be left. But otherwise, he has a follow up appointment in year. My question is this... it seems as though a lot of people's childrens hemangiomas are being treated either with surgery or laser. How come ths option was never given to us? If Connor requires surgery down the line, why wouldnt we have the option to do it now? I know, based off of what I read, Dr. Mulligans office is very conservative. I am wondering if we should seek a second opinion. I will attach a picture of the small hemangioma on his head, the one on his belly is about ten times the size, maybe i can take a picture of it tonight. thank you so much in advance!

cbj 02-11-2008 07:18 PM

1 Attachment(s)
Here is the picture... for some reason it didnt post before....

lo1 02-11-2008 08:57 PM

Hi

You are not alone - my daughter has an H on her left eyelid and we have not been offered laser or surgery as in the UK they prefer to wait and see for some reason - although I have had other surgeons from overseas saying that something should be done asap.

From what I can gather many docs have different opinions on how to treat H.

Hope you get feedback from more experienced people!

Lo x

Mommy of 2 in KY 02-12-2008 12:56 AM

I have ran into the same problem as well. I would go to see other doc's and get their opinion. Some doc's act like I am crazy for wanting it taken off, but if that is the end result, what are we waiting for? My daughters is now ulcerated and causing her pain, so I am off to yet another doctor, praying I can finally get something done to help her. It is hard enough everday, when others stare and people are asking what is that on her face. It is a helpless feeling. I just keep hoping someone will finally help us, instead of the whole "wait and see game." Good Luck to you.


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