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-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   Help on thoughts on birthmark (http://birthmark.org/board/showthread.php?t=2846)

mob 04-08-2008 06:22 AM

Help on thoughts on birthmark
 
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Our Son is now 8 months old and has a birthmark, we have had it looked at
and the doctor has indicated that this type of birthmark will go away in due course, however being the worried parent, we were wondering if anyone else
has a child with a similar birthmark, who could tell us what to expect or if it is treatable!

EJsMommy 04-08-2008 12:19 PM

That looks like a Hemangioma to me! They go away over time, but there's no telling how long it'll take to go away, and what the cosmetic outcome will be. There are treatment options, including laser, surgical excision, and steroids. A Hemangioma specialist could see your child and suggest the recommended course of treatment for him specifically.

kandbsmom 04-08-2008 01:10 PM

yes, that is a hemangioma. My daughter had one on her scalp that we had surgically removed a couple months ago. You can barely see the scar at this point. I would recommend going to see a plastic surgeon.
If you search on these boards, you will find my post with before and after pictures of my daughter.
good luck!

mob 04-08-2008 10:01 PM

RE: Help on thoughts on birthmark
 
Thanks for those who have replied. We have seen
A doctor who told us not to worry about it, however they
did make an appointment with a specialist who also told us not to worry about it, we then had an appointment with the Royal Childrens Hospital here in OZ (Melbourne) and they too told us not to worry about it, we are very confused, surgury is the last thing we want to do, is anyone from Melb Aus going through something similar to this ?
Would be good to communicate with you !

Also, if surgury was an option would this be covered by your health insurance or is this something you have to pay for yourself?

Again thanks.

nickbar 04-10-2008 12:17 AM

This can often be something covered by insurance. It does often take appealing if insurance co. deny original claim. We have an Insurance Expert that can help you through this if needed.

It is pretty common for specialists and physicians in general to say these are nothing to worry about when referring to hemangiomas. And many times they are "nothing to worry about"...but there are cases that are serious or concerning.

It does appear to be a hemangioma...but a physician needs to be able to tell you this first hand.

As far as treating it or not... this is up to you. You need to follow your instincts on what you feel is best. Seeking opinions, researching and making a plan.

Good luck. Also...take advantage of the ask the experts.

sarabr12 04-14-2008 04:05 AM

We actually went through that. Oh, don't worry by the time she is a year it will subside. Then we pushed to see a specialist and an opthamologist (our daughters is on her eye..). Neither of the doctors we spoke with helped us to make a very informed decision. Then via email we sent pics to another specialist and they have helped us. Just keep seeking help and pushing your pediatrician. Sometimes they don't know. Also we found this site and it has also helped us, by reading others exp.
We will go see the specialist next month to start laser and possibly steroid.
Good luck. If I can help or you just would like to talk I'm here and you can email me. s_h_rehman@yahoo.com

Soteris Christodoulou 04-15-2008 08:58 PM

You may wish to contact (any of) the 3 Australia surgeons under the 'Find a Physician' link on the site and also Michelle Earney kids1@hotkey.net.au and/or Katie Harmon kpharmon@optusnet.com.au who are not surgeons but are under the Family Resource List on the site. You may also wish to send photos to world leading experts Dr Milton Waner New York and/or Dr John Muliiken, Boston Massachusetts (details under again the 'Find a Physician' link) who may advise. I am a 46 year old born with malformation on right side of face. I am not an expert but experienced. Your son's malformation looks treatable. 'Insurance claims' section under the 'Treatments' link on the site may help

Take care

Soteris :-)

mjwrw 04-28-2008 06:58 PM

My daughter had a very similar looking hemangioma in the middle of her forehead. We also tried the "wait and see" approach before finally seeing a plastic surgeon when she was about 10 months old. He recommended surgery due to the size and location of her hemangioma. We were told it would eventually go away on its own, but she would be left with a significant scar. After this opinion we sought opinions from doctors all over the US. Our daughter ended up having surgery with Dr. Reinisch in LA when she was 13 months old. He was wonderful and we could not be more pleased with the results or more comfortable with our decision. She is now almost two and her scar looks amazing.
If I can help in any way or you would like to see before/after pictures please let me know. Good luck!!
Rory

mob 05-02-2008 04:42 AM

THANKS : RE:Help on thoughts on birthmark
 
Thanks for your post, would love to see before and after photos if possible.

you can send directly to me
mberv@ozemail.com.au

FYI
we are scheduled to see a doctor regarding our son's birthmark and are very anxious about this appointment. We really don't want to even contimplate surgery but want to do what is best for him, would be good to get some opinions especially if someone has gone through something similar.

cc00 05-04-2008 03:52 AM

Quote:

Originally Posted by mob (Post 14748)
Our Son is now 8 months old and has a birthmark, we have had it looked at
and the doctor has indicated that this type of birthmark will go away in due course, however being the worried parent, we were wondering if anyone else
has a child with a similar birthmark, who could tell us what to expect or if it is treatable!

I saw your son's picture and was wondering if he had the H when he was born and how fast it has grown since birth. My granddaughter has a H on her scalp. She was a preemie (6 wks early) and when she was born, it was just a small red spot. The ped. said it may double in size but will eventually go away and not to worry. However, it has probably tripled in size (oval shaped like a small almond) and is also raised now. She is 3 1/2 months old.

Is there any way to determine what the rate of growth may be and when one should seek an experts advice? Also, is it common for them to periodically change colors? Some days it's bright red and on other days it has a grayish tint to it. Any information is appreciated.

God bless to all of you.


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