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-   -   New to the boards, have question about vincristine (http://birthmark.org/board/showthread.php?t=2859)

CelesX 04-18-2008 03:36 AM

New to the boards, have question about vincristine
 
My son was born with a tufted angioma on his left ankle. They started treating him with steroids, because they believed it was a cavernous hemangioma. After a few months of the steroid treatment, they decided to do a biopsy and finally diagnosed it as a tufted angioma.

They put a broviac tube in him when he was 4 months old and started him on vincristine. He had very little side effects from the vincristine itself, however he was hospitalized several times for blood infections because of the broviac tube. Eventually, right before his first birthday they ordered a mediport for the vincristine instead and thankfully he hasn't had any more infections.

They started decreasing the frequency of the chemo; he used to go once a week and now he's on once a month. I have to make another appointment with the plastic surgeon soon to see if there's any way he can remove it. As of this time last year, he said that it was too big and too deep for him to safely remove it.

I was wondering if anyone else has had a child or themselves on vincristine and if it was successful?

I'm new to the boards and my spelling isn't that great, so sorry for any errors.

missy 04-18-2008 11:28 AM

Look at this:

http://www.birthmark.org/board/showt...ht=vincristine

Running a quick search will bring up all the mentions, but you'll have to look through a couple of threads to find parents' experiences.

Missy


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