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-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   Surgery Update (http://birthmark.org/board/showthread.php?t=2894)

susan1999 05-24-2008 04:32 AM

Surgery Update
 
Just wanted to give you an update on my daughter's recent surgery...
She had her Hemangioma removed from her forehead 2 weeks ago (she is 6 months old). Surgery was less than an hour and everything went perfectly! When she woke up from surgery she took a bottle, slept for 3 hours, and then was back to playing right away! She has completely healed and her scar looks amazing! I still can't believe how smoothly it all went.
This was a difficult decision, especially since I chose an out-of-network specialist and had to pay for everything myself. BUT for any of you who are wondering whether you should go through with surgery, I would urge you to do it. Her surgeon told me that once he got in there, the hemangioma was growing back into her head and was deeper than he was anticipating. I AM SO THANKFUL I HAD IT REMOVED NOW. What if I had listened to the doctors who told me to "wait and see?" Who knows how far back into her head it would have grown. As mothers we are blessed with a "motherly instinct" and mine was telling me from day one to remove this. Listen to your gut! You know what is best for your baby.
I'll try to post pictures later.
Best wishes to everyone!

EJsMommy 05-25-2008 12:43 PM

Wonderful! I'm glad she recovered so smoothly and is doing so well! We'd love photos :)

lolaolatunji_80 08-23-2010 01:03 PM

Hi All,

I am new to this site, so please bear with me. My daughter, Adriana has just turned 2 years old. She has a H on her cheeck and on her head. I have been advised to wait and see with no other options given apart from giving her propanolol. I am very worried that this is not going to work and dont want to take the risk, because the H has grown and is at a steady point. The only worry now is that its not showing any signs of regression and the one on her head seems to have gotten bigger! I have been to Great Ormond street but they keep giving me cream to apply to her skin! I have requested to see a surgeon to assess her to see if she is a candidate for excision. I wanted to ask your advice really to find out where in the Uk i can have surgery to remove the H, it has completely distorted her gums and her teeth are not growing properly. Please help.

smurph 08-24-2010 01:48 AM

Great news! We also struggled with deciding to do surgery on our 5 year old daughter who has a lip hemangioma, but she had hers in June and it went very well also. It is nice to have it behind us. I'm sure you know the feeling of relief! Glad to hear everything went well!
shannon

missy 08-24-2010 12:32 PM

Quote:

Originally Posted by lolaolatunji_80 (Post 20319)
Hi All,

I am new to this site, so please bear with me. My daughter, Adriana has just turned 2 years old. She has a H on her cheeck and on her head. I have been advised to wait and see with no other options given apart from giving her propanolol. I am very worried that this is not going to work and dont want to take the risk, because the H has grown and is at a steady point. The only worry now is that its not showing any signs of regression and the one on her head seems to have gotten bigger! I have been to Great Ormond street but they keep giving me cream to apply to her skin! I have requested to see a surgeon to assess her to see if she is a candidate for excision. I wanted to ask your advice really to find out where in the Uk i can have surgery to remove the H, it has completely distorted her gums and her teeth are not growing properly. Please help.

I'm curious as to why you don't want to do the propanolol? What risks have you heard about?

Missy

nickbar 08-25-2010 04:53 AM

It is important to have all the options given to you (risks and benefits of each) so you can make the best choice..in my opinion. Propanolol has shown great results in some cases, but it is a new treatment for hemangiomas. Most of the time a child is admitted for observation when first receiving propanolol as a precaution. I hope other UK parents can share their experiences. I would also encourage you to email the "ask the experts" on the VBF home page

KatieG 08-25-2010 02:52 PM

so glad to hear! My daughter is having surgery in two weeks. Who did your daughters surgery?


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