Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (http://birthmark.org/board/forumdisplay.php?f=18)
-   -   Anyone tried Ok-432 injections? (http://birthmark.org/board/showthread.php?t=2962)

Piercesmom 07-10-2008 04:13 AM

Anyone tried Ok-432 injections?
 
Has anyone tried ok-432 injections for their Cystic hygroma. Iowa is doing research on this agent from Japan. Would love to hear if anyone has expierience with it.

linda6969 08-07-2008 03:37 PM

no, heard good things about it though.
Success rate is higher than with surgery. Look up Tessa's Lymphatic Malformation, on the web. Thee are before and after pics.

tessamom 08-23-2008 12:14 AM

Hello I am Tessa's mom. As to date Tessa has had four surgeries and five injections of OK-432 we know this drug works for Tessa because of the fluid color at each injection. Tessa also is able to tells us that each time a new swelling pops up it is a new LM based on how it feels to her. Email me anytime at wibearmom@yahoo.com

AJB4TAB 11-18-2008 06:38 PM

My daughter also had the OK-432 injections and it completely took care of her "macro" element. She was very sick after injections, but it really worked well for her. It will not work on the "micros" though, which she also has.

tessamom 11-25-2008 07:33 PM

Tessa just had her sixth LM injected and she did very well. Any question just email us Lora


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