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-   -   I would like some tips...... (http://birthmark.org/board/showthread.php?t=347)

Puffy 10-03-2003 10:19 AM

I would like some tips......
 
My 19month old son has a PWS on his body, and as his mum, I would like some tips for treating the dry patches he gets, mainly on his back. I use sorbolone cream, but if there are any people out there who have a PWS or had contact with someone who has a PWS, could you provide me with some tips on keeping it moisturised.


hankbartenbach 10-06-2003 02:49 AM

Re:I would like some tips......
 
Hi Puffy my name is Hank. I have PWS on my face.
I have two friends that have PWS on their entire body. One was 65% and the other 75% covered. If you could email me I can forward your email onto one or the other guys that could shed some light onto your questions.

Talk to you soon.

Hank


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