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-   -   Please Help My Daughter (http://birthmark.org/board/showthread.php?t=3639)

confused 12-25-2009 12:08 PM

Please Help My Daughter
 
Hi My Daughter Was Born With Klipple-trenaunay Syndrome To Cut Along Story Short She Is Now 14 Yr Old Who Has A Overgrowth Of Her Left Lower Limb Due To An Extensive Vascular And Lymphatic Malformation Extending From Her Left Buttock.areas Within The Malformation Are Chronically Infected ,including Over Her Left Mid Tibia ,for Which She Is Currently On Intravenous Antibiotics Via A Portacath.the Doctors Have Suggested A Trans-tibial Amputation Of Her Left Leg Just Above The Infected Area.
She Has A Fixed Equinus Deformity Of Her Left Ankle And Walks With Out Heel Strike.the Doctors Are Uncertain Whether Adequate Stump Length And Good Skin And Soft Tissue Coverage Is Possible Given Her Extensive Malformation.my Main Concern Is The Risk Of Bleeding And Non-healing After The Amputation
I Was Justing Wondering If She Does Not Have The Amputation What Other Options Is There For Her
Thank You For Taking The Time To Read This

missy 12-25-2009 03:24 PM

Hi,

Where are you located? You need to find out if there are other options from a physician. If you haven't already, use our Ask the Expert service:

http://birthmark.org/experts.php

Best of luck!

Missy

confused 12-27-2009 12:01 PM

Thank You For That Info Missy

confused 12-27-2009 12:01 PM

Thank You For That Info Missy We Are In Australia

missy 12-27-2009 02:35 PM

Most of the people I know of in your area have been happy with Dr. Lord. Have you had a chance to see him? Also, if traveling is at all a possibility, you might get in touch with Dr. Tan in NZ... he's supposed to be great as well!

I'll copy the info we have:

Dr David Lord
Radiology Department
Vascular Birthmarks Program
Childrens Hospital Westmead
Locked Bag 4001
Westmead NSW 2145
Sydney Australia
www.chw.edu.au/site/directory/entries/vascular_birthmarks.htm


Dr. Tony Moore
Adelaido Plastic Surg. Assoc.
Memorial Hospital North Adelaide,
S. Australia 8267-1800

Dr Philip Bekhor
Director, Laser Unit
Royal Children's Hospital
Melbourne, Australia
and
Laser Dermatology
503 Elgar Rd
Box Hill, Melbourne
Victoria
Phone 61 3 9890 1844
www.laserdermatology.com.au
New Zealand
Dr Swee T Tan MBBS FRACS PhD
Director,
Centre for the Study & Treatment of Vascular Birthmarks,
Wellington Regional Plastic, Maxillofacial & Burns Unit,Hutt Hospital
High St, Private Bag 31-907, Lower Hutt,
Wellington, New Zealand.
+64 4 5709067
Fax +64 4 5709510
sweetan@plastsurg.co.nz

nickbar 12-27-2009 11:52 PM

Please email Dr. Rosen and Dr. Delfinian on the ask the expert page. THey are the most qualified to give you options for your daughter. If you need any help, please don't hesitate to contact me directly

TripleTime 12-30-2009 08:54 PM

We are also in Australia & have been seeing John Relic in Newcastle. He's the best yet & very quick to respond.


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