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-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   resources for Canadians (http://birthmark.org/board/showthread.php?t=3674)

mperron 02-07-2010 04:20 AM

resources for Canadians
 
My son has a small deep H that just developed and I am wondering what specialists are available in Canada and if the services are covered by our healthcare system.

missy 02-07-2010 06:15 PM

Others will have to come along and answer that. I just wanted to say hi and welcome!

Missy

Pookey28 02-09-2010 09:40 PM

what part of Canada? I took our daughter to Children's Hospital here in BC...they have a dermatology dept. there and one of the dr.'s deals with H's....she is AMAZING!

mperron 02-10-2010 01:34 AM

I live in Mb. What's the name of the doctor? Is she anti-propronol? This seems to be the case with the doctors here

nickbar 02-11-2010 03:36 AM

I hate to say it, but getting treatment in Canada is difficult. As you know you have to be reffered by your primary...and then many report a long wait to get into the speicialist. THen the result is usually disappointment for the parents when they are told to not do anything. Not a proactive approach typically. Watching the h. is valid, treatment is not required in most cases...but you should at least be given options and information on benefits and risks and pros/cons of doing/not doing treatment now or later.

Propranonal is a pretty new approach to treating hemangiomas. It might be difficult to find someone that is willing to try this, even with all the promise it has shown so far. What type of h. and location?

Pookey28 02-13-2010 05:46 AM

Her name is Dr. Julie Prendiville, and she SWEARS by Propranolol. She has quite a few patients on it and they are all success stories. We just started our daughter on it 2 days ago, and already I see a small difference.
I had the 1st doseage administered at the hospital...and each week they are raising it by 1/4 ml...each time we go back to our local Hospital.

I SWEAR this is hands down the sweetest most knowledgeable dr when it comes to H's. She came HIGHLY HIGHLY recommeded and now I know why!

Pookey28 02-13-2010 05:48 AM

Forgot to mention that at first she wanted us to wait...and 2 months later he H was up at her eyelid. Due to the severity of where it was we had to take drastic action.

nickbar 02-18-2010 12:14 AM

Were is Dr. Prendiville located? We would like to have her listed on our resource list.

mommabear 02-22-2010 02:42 AM

Hi there,
I am from MB. My daughter has a hemangioma on her forehead. I have seen a dermatologist and plastic surgeon in Wpg. I have also contacted the Peds Vascular Clinic in Childrens Hospital in Calgary. All have suggested the wait and see approach. We would look to surgery before she's school age. She is now 17 months old! I'm not sure what's covered through Great west life/blue cross etc....but if you dig anything up, please post.
Good luck to you! I can honestly say that I was paniked about the H for the first year of her life, now I've relaxed. It stopped growing at 9 months...starting to grey a little........I think..

EFMama 02-22-2010 06:38 PM

When we had questions, our family dr referred us to the pediatric plastics clinic at the local children's hospital. (IWK in Halifax) The specialist we saw initially recommended no treatment and since we agreed with him, we left it alone. Upon our follow up visit, 6 months later, he said we should look into having it treated, since it was showing no signs of involution. We go back for a third follow up in another 3 months, but involution has just started - it's looking smaller - so I'm hopeful we can avoid surgery.

We did, however, see several other children at the clinic with H's in various stages of treatment and healing - several of which were not obviously impeding on vision/breathing/life, which seem to be the requirements for no-hassle removal. So, if parents insist/demand treatment, it is there. You just need to go in armed with research (which I would tell anyone, anyway!) and be assertive in advocating for your child.


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