Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   2 week old with lower lip H, does anyone have experience with topical propanolol? (http://birthmark.org/board/showthread.php?t=5301)

Jenni 04-08-2011 01:11 AM

2 week old with lower lip H, does anyone have experience with topical propanolol?
 
Hi, I am new to this website, my 2 week old daughter was diagnosed with a lower lip hemangioma yesterday. I am very concerned and am trying to learn as much as I can. Our doctor is Dr. Drolet at Children's Hospital of Wisconsin. Right now the H is just a red mark under her lip on the right side, but it extends down the inside of her lip. The doctor says that she will most likely require treatment and will possibly start topical propanolol very soon. Does anyone have experience with topical propanolol verses the oral medication, especially in the mouth/lip region? Also, if anyone has a child with a lower lip hemangioma and could describe your experience (progression, treatment, etc.) it would be greatly appreciated! Thanks.

RUBI GARCIA 04-08-2011 04:58 AM

Hi Jenni, my daughter has a lower lip hemangioma, she's 18m now, but her H came in within 1 week of being born, by 2 1/2 m the H was ripping her skin, and we were having problems nursing. Finally we took her in to Dr. Stuart Nelson, in Irvine, CA. He immediately sent us over to CHOC (Children's Hospital of Orange County) and there they gave her propanolol, and 2 other meds, we didn't try the topical medication, but I'll let you know the meds worked fast, and within 2 months the H was gone, only left some red color and a deflated side of the lip, nothing that can't be fixed with plastic surgery. Unfortunately her H is stubborn and it came back, it's not growing anymore, but we're still in this journey. I'm glad they gave her the propanolol, her lip didn't ripp anymore and she was a happy camper once she could nurse. Hope this helps.

nickbar 04-09-2011 12:10 AM

Hello, I just wanted to say hello and please feel free to email me directly if you need any help.


All times are GMT. The time now is 11:05 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.