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-   -   22 m, scalp hemangioma not going away (http://birthmark.org/board/showthread.php?t=5304)

ScarlettsMommy 04-12-2011 02:03 AM

22 m, scalp hemangioma not going away
 
So my husband and I have been talking about my daughter's hemangioma (right about her forehead) she is 22 months. It has not changed for awhile and it does not seem to be going down in size. Who should I email to ask about what our options might be. Surgery mainly.. And how much of a pain will insurance be? We live in Kansas and I know we will have to travel.


missy 04-12-2011 11:00 AM

Well, I would contact Dr. Levitin at http://birthmark.org/experts.php and ask him what your options are.

She's a cutie patootie!

Missy

KatieG 04-12-2011 01:02 PM

We saw Dr. Waner in NYC to have my daughters scalp hemangioma removed. Had a wonderful experience wit him and I got my insurance to pay for it.

ScarlettsMommy 04-12-2011 02:21 PM

I email Dr. Levitin yesterday and he said he would recommend surgery. I am going to talk to him over the phone to find out more.

KatieG 04-12-2011 08:19 PM

Since its visually seen on her scalp, you might have better luck with your insurance. My daughters was on the top of her head so that helped my case.

ScarlettsMommy 04-12-2011 09:56 PM

Dr. Levitin called me this afternoon. He said that he works with my insurance and that he will get it all sorted out for me. I will be traveling alone to california with her, my husband just got a new job and we don't want to ask to take time off for him to go, plus it will be cheaper this way. So I emailed him my insurance card (photocopy). So we will see what happens next..

missy 04-13-2011 12:19 AM

He will get it all sorted out! When do you think you'll be able to go?

Missy

ScarlettsMommy 04-13-2011 01:38 AM

I'm hoping he will get back with me soon so I can figure out when we can schedule it. Ideally I would like to get it done before her 2nd birthday (June 25th).

shannonhinz 04-13-2011 06:31 PM

1 Attachment(s)
Here is Julia's hemangioma about 1 month post surgery with Dr. Levitin

ScarlettsMommy 04-13-2011 07:44 PM

Oh wow Shannon, that looks amazing! Thanks so much for sharing.


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