Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (http://birthmark.org/board/forumdisplay.php?f=18)
-   -   facebook (http://birthmark.org/board/showthread.php?t=5329)

sweet pea 05-12-2011 01:34 AM

facebook
 
A friend I met online, who also has a LM, and I started a page on facebook called Lymphatic Malformation Awareness if anyone is interested in "liking" that page. We have about 60 people who have "liked" it so far and are trying to get more people to 'spread the word'. There are a few notes written on that page with helpful information and a link to this website as well. We'd love to see more people get involved and see the number get higher.

nickbar 05-13-2011 03:53 PM

thumbs up!

kaykay 05-18-2011 01:01 AM

with the red ribbon ?

sweet pea 06-22-2011 02:08 AM

Quote:

Originally Posted by kaykay (Post 23319)
with the red ribbon ?

Yes, the profile picture on the page has a large red ribbon. The ribbon says Lymphatic Malformation <3.

sweet pea 06-12-2012 04:13 AM

The page now has over 360 likes! It's amazing to watch the page grow. I keep sending people here to find a specialist, as we have people from all over the world who are on the page and need someone who has experience with this condition.


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