facial skeletal hypertrophy
 

Just found out the all bones in face under PWS demonstrating overgrowth (nose, cheek bone, maxilla) and face assymetric. Anyone else experiencing this? I am in mid-30s. Any treatments suggested that helped to slow down this process?

I would pose that question to Dr. Nelson. You can get in touch with him here:

http://birthmark.org/experts.php

Let us know what you find out!

Missy

my MRI showed thickening of the skull. can't remember what else. I'd like to know what that means for my health

Hi all, New to the organization, so not sure I am doing this correctly. But, I have noticed lots of changes with my teeth I think- how does one know the bones showing overgrowth? What were your symptoms. I am finding now at 43 things are popping up that I didn't realized were related to my large facial PWS.

Are you seeing a physician regularly who can help you? You can ask Dr. Nelson via the Ask the Expert form here: http://birthmark.org/experts.php

Missy