Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   Surgery / laser on lower lip hemangioma (http://birthmark.org/board/showthread.php?t=5357)

kelly007 06-10-2011 12:14 AM

Surgery / laser on lower lip hemangioma
 
Hi everyone, i am new here. My daughter Lauren (now 3.5 years) had beard distribution hemangiomas pop up everywhere when she was two weeks old. All this has pretty much gone (on its own - no steriods) except for her lower lip hemangioma. Shes very lucky in that it kept mainly to her lipline but we still gets LOTS of comments on it. Im just wondering if anyone else out there has had this type of hemangioma treated successfully by surgery or laser. Its very bright in colour still and has a scar where it ulcerated when she was small. I am happy to leave it as is but if it becomes an issue for her we will look into different options. One doctor we saw suggested turning her lip inside out! (I didnt like the sound of this and I couldnt imagine now natural looking it would be - he assured me it would). Another downside to this is that she would have no feeling in her lip - imagine a hot pie or cup of tea on that! Another doctor suggested "debulking" it from the inside which sounded better. Its probably more the colour which is the most noticeable thing about it still. Is laser effective in treating that? Any suggestions from anyone who's been in this position?? Or before and after pics of treatment done? I will try to upload a pic so you can see what i am meaning. Many thanks for reading this :)

smurph 06-10-2011 05:26 AM

My daughter has an upper lip hemangioma so I'm not sure if it's that similar to your daughter's, but she did have an ulceration as baby too as you mentioned. Here's a photo journal of our experience. Maybe it will help? She is now 6 years old. She took steroids as a baby, had surgery at age 5 to fix the ulceration scar/debulk/shape her lip and laser a couple months ago to touch up above her lip.

http://www.facebook.com/media/set/?s...l=a18fd285 c7

Let me know if you have any questions!
shannon

missy 06-10-2011 12:22 PM

Hi and welcome!

You can ask an expert here: http://birthmark.org/experts.php They are very good at getting back to people and helping them out.

Other parents will be along soon. Many have dealt with birthmarks on or around the lip area.

Missy

nickbar 06-10-2011 05:36 PM

Are you able to post a picture?
If you prefer you can email me.

kelly007 06-15-2011 09:34 AM

1 Attachment(s)
Hi there, thanks so much for your replies. I am trying to upload a pic but am having a bit of difficulty - hopefully it attaches here for you. Kelly :)

kelly007 06-15-2011 09:40 AM

Shannon - your little girl is simply gorgeous :) Thanks for sharing your pics with me. Would you mind telling me what kind of surgery Faith had? How did they do the rebulking (turned lip inside out or slit on the inside?) Also did she have laser on her actual lip area or just on the surrounding skin to reduce redness? Thank you. Kelly :)

smurph 06-22-2011 03:42 AM

Quote:

Originally Posted by kellyclark007 (Post 23529)
Shannon - your little girl is simply gorgeous :) Thanks for sharing your pics with me. Would you mind telling me what kind of surgery Faith had? How did they do the rebulking (turned lip inside out or slit on the inside?) Also did she have laser on her actual lip area or just on the surrounding skin to reduce redness? Thank you. Kelly :)

Hi there! Sorry it took me so long to write back! For some reason I missed your response/questions. I'm not 100% sure what they did, but I think for the surgery he slit it and removed the scar tissue and just pulled it together and stitched it up all inside and on the outside. (I think I remember him mentioning something about double stitching??) As for the laser...they did not laser her actual lip just the area above and up into her nose to get rid of the redness there. They didn't want to do the lip because it might lighten it too much and it could look more noticeable. So she does have a little red left on her lip, but I kinda like it. I think it looks cute! :) Hope that helps!

Shannon

smurph 06-22-2011 03:53 AM

Also, I wanted to mention..your daughter is so cute!!! I just saw her picture. It is amazing how the hemangioma stayed within her lipline! Maybe you could email her picture to one of the doctors on here and they will give you their opinion, like Dr. Levitin or Dr. Geronemus. Like I said, the doctors we talked to didn't really recommend doing laser on her lip but just on the skin part. The surgery was the thing that gave her lip that more natural looking shape and then people didn't really notice the redness of her lip so much anymore.
Shannon

kelly007 06-22-2011 04:23 AM

Thanks Shannon. I did actually email one of the doctors about a week ago and havent heard back from her. It wasnt one of the ones you suggested though so I may send an email to them again now. Thanks for your info. Its so helpful to hear from others about this. No one we meet has ever seen anything like what Lauren has (docs and strangers alike). Im starting to object now to docs bringing in other docs for "a look" as she is now of an age where I dont think its a good idea to make her feel there is something "wrong" with her. Its great to know there really are hundreds of others out there dealing with all the ins and outs of the hemangioma world :) take care, Kelly :)

smurph 06-22-2011 04:47 AM

Sometimes it can take a little while. I think they must get lots of emails. We met Dr. Levitin and Dr. Geronemus at the VBF Conference last October and they were both great. You may want to give them a try. Before my daughter was born I never heard of hemangiomas before. Now 3 out for 4 of my children have one. Go figure. This website (and another one we used to have) have really been life-savers for me....to communicate with other parents going through the same thing is a huge deal. Keep in touch and let us know how things turn out :)
Shannon


All times are GMT. The time now is 04:37 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.