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-   -   tethered cord??? (http://birthmark.org/board/showthread.php?t=5496)

abatie 09-06-2011 08:22 PM

tethered cord???
 
Has anybody heard of tethered cord or had any experience with it? Becca has a deep dimple above her butt that is getting deeper and someone on the CMTC group on Facebook suggested getting this checked out. If anyone has any knowledge they can share I would appreciate it.
Thanks!

missy 09-06-2011 11:19 PM

Have you been able to have any imaging done yet? Or talked to the doc about what kind of imaging would be needed? Are there any other outward signs (I know often not)?

Missy

abatie 09-07-2011 12:47 AM

We haven't had any imaging done since she was born but at the time they were just ruling out spina bifida. There are several outward signs that could include a dimple. The other thing I found in some of the reading is that a birthmark puts you at a higher risk and it is congenital which wouldn't surprise me with the other issues she has had. Also a low muscle tone but that is hard to know if it is related to CMTC. The image usually done is an MRI. I am going to get through my physical therapy and my appointment with the doctor that did my brain surgery this week and I will schedule an appointment with our family doctor next week. Then we can discuss who to see and if we need to look furhter. She really needs another thyroid test anyway so I can get that done at the same time.

spaatz1329 09-07-2011 05:55 PM

My daughter has PELVIS syndrome, and a tethered cord is a symptom. It was confirmed by MRI. She is having surgery to release it Oct 21.

abatie 09-07-2011 06:51 PM

WOW! Keep us posted on how the surgery goes. I would love to know more because I am worried that this is a possibility with Becca. My other daughter had a dimple as a baby but it did grow shut but Becca's is very deep. It actually seems as if it is a hole now with no bottom if that makes sense.

cbasser 01-18-2012 01:23 AM

This is very interesting because my son had a fold at the top of his bum when he was born. They were concerned about spinal bifida but nothing has come of it. He also was showing other symptoms at the time. We had to stay in the hospital 3 days because he wouldn't pee and also there was an issue with nerve response in his genitals. After he finally peed they kicked us out and we never heard anything about it again. The fold has resolved but I wonder how much this type of thing has to do with CMTC?

abatie 01-18-2012 03:31 PM

I thought Becca was the only CMTC kid with this because I have never read about it anywhere. We still don't have any answers as our doctor doesn't seem to care about it.


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