Vascular Birthmarks Foundation Forum

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-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (http://birthmark.org/board/forumdisplay.php?f=18)
-   -   Best Doc for Orbital Lymphangioma (http://birthmark.org/board/showthread.php?t=5753)

kstar 05-25-2012 01:49 AM

Best Doc for Orbital Lymphangioma
 
I am a newbie here. I am 43 years old with left orbital lymphangioma diagnosed at birth. I have had 28 surgeries as a child in NYC. I have been stable for 17 years, but now the tumor is active. I am looking for any advice on who the top docs are these days. I live in MA, but am willing to travel.
Thanks,
Kstar

missy 05-25-2012 12:05 PM

Hi and welcome!

Go to http://birthmark.org/experts.php and look for Aaron Fay. Write to him and see if he can either help you or direct you.

Missy

SJudd 06-06-2012 06:46 PM

Nationwide in Ohio
 
I highly recommend Dr. Shiels at Nationwide Children's hospital in Ohio. Even though you are an adult, this is considered a pediatric condition, so it can be treated there. He and his staff have a wonderful new procedure that can be done on an outpatient basis. This article is his:

http://birthmark.org/pdf/LymphaticMa...nTreatment.pdf

Contact information: http://www.nationwidechildrens.org/william-e-shiels

jmills 06-19-2012 03:08 AM

I too highly recommend Dr. Shiels. He is my daughters Dr.


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