Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   Boston childrens hospital (http://birthmark.org/board/showthread.php?t=6206)

lf 12-22-2012 08:15 PM

Boston childrens hospital
 
Any one have experience with teh VAC at Boston Children's Hospital?

smurph 12-24-2012 01:45 PM

Yes, my daughter saw Mr. Mulliken there and he did her surgery too. He did a great job. She also had laser done by another doctor there who was also great. Her laser was done at the Lexington site. My cousin's son saw the whole team of doctors at the VAC for a very rare birthmark and he got excellent care. So we have had a good experience here. Let me know if you have any questions.
Shnannon

lf 12-24-2012 06:14 PM

Great! Thank you. I contacted them last week and we are seeing a NP on Wednesday. My daughter has a small H on her forehead. It started as an light pink outline and at 5 weeks turned slightly red and has filled in since then. It is still small, it hasb't gotten much bigger than the orginal outline. It grew fast from 5-7 weeks and then it slowed down the 2 past weeks (she is nine weeks old),

smurph 12-26-2012 02:05 AM

If it seems to be slowing down maybe that's a good sign? We always had a good experience there although there was sometimes a long wait, so you might want to be prepared for that. My daughter wrote a picture book about her hemangioma when she was 5 and she gave them a copy. They may have it in the waiting room??? I'm not sure? It's called "Faith's Birthmark." She thinks she's a famous author. :) (She's 7 now.) We live in NH. Where are you from? Good luck with your appt. Out of my 4 daughters, 2 had significant hemangiomas. One had a little one. Faith had one on her lip and it required treatment-steroids, surgery and laser. My other daughter had a big one on her hand/wrist and she had no treatment at all and it went away on it's own. It's so weird. Good luck with everything! Is it tomorrow? Keep us posted. :)

Shannon

lf 12-28-2012 03:04 PM

My other daughter goes there for another reason often so I am very familar with the process. This experience was really good. they took us early!! The NP was wonderful. She is confident that the H has done most of its growing and would not get much larger. It is slmaller than a dime. She answered all my questions and took time to really make me feel comfortable. We decided to try timitol to see if that helps. After a couple of days the H is already softer and smoother so I am excited to see what happens in the next few weeks.

lf 12-28-2012 03:06 PM

I did not see the book but we were not in the waiting room for long. I llive in the worcesterr area.

smurph 12-30-2012 12:22 AM

So glad it went well for you! :)
Shannon


All times are GMT. The time now is 02:42 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.