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-   -   my son wasdiagnosed with lymphangiohemangioma...pls help (http://birthmark.org/board/showthread.php?t=6267)

mommay2009 02-08-2013 11:13 AM

my son wasdiagnosed with lymphangiohemangioma...pls help
 
my son was diagnosed with lymphangiohemangioma on his left thigh when he was about 5 months old. i brought him to a local surgeon in Iloilo, Philippines, but no sort of medication was provided. When he turned one, he suffered from an infection (accdg. to the surgeon), I was advised that he needs to be treated and after treating the infection, he needs to undergo a surgery. But as a mother, i really don't feel good about it.so we didn't push through with the surgery. We went to manila and was referred to a doctor, and upon checking on his mri result i was advised that they will need to inject Bleomycin (chemo drug) in the wall cavity of the mass. My son just turned three. Now there is another mass growing on his left calf. I badly needed an advise and help in any sort.

smurph 02-08-2013 01:12 PM

I am thinking that emailing one these doctors from the "Ask the Expert" page might be helpful to you:
Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Dr. Calil, Lymphatic Malformation Surgeon

Click above on resources and you will see a list of the doctors on the left. Perhaps they might be able to offer you more information about your son's treatment. Good luck!
Shannon

mommay2009 02-09-2013 09:40 AM

Thanks! :-)


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