Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Help and Resources for Hemangiomas (http://birthmark.org/board/forumdisplay.php?f=9)
-   -   My Hemangioma . (http://birthmark.org/board/showthread.php?t=6331)

Ghaidaa 05-17-2013 06:19 PM

My Hemangioma .
 
Good morning Everyone .
my name is Ghaidaa , I'm a girl , 17 years old and I'm from Saudi Arabia .
my problem is that i have Hemangioma on the right side of my face near to the eye and the nose .
I'd like to know more about Hemangioma treatment for my case
if you don't mind to answer this Q ,
what is the best hospital and Doctor for my case ? .

what make me sad that it affected on the nose . so i have to do a double
surgery to fix the two problems .
it really embarrassed me when I meet new people and it always make me sad when i look to my self .
I have a huge aim to remove it and live the life that i deserve .


I need your help , so please help me .

smurph 05-18-2013 03:22 AM

Hi there! There's a good chance that what you have is not technically a hemangioma. Sometimes doctors refer to all vascular anomalies as hemangiomas but what you are describing sounds like a different type of birthmark. If you go to the link above called "Find a doctor" and click on the map, you will find that there is a doctor listed there for Saudi Arabia. I do not know anything about this doctor personally, but it may be a good resource for you to start with. I hope this helps. Let me know if you have any questions.
Shannon

Ghaidaa 05-20-2013 11:31 AM

Dear Shannon ,
first , I want to thank you for your Support and your humanity in my case .
second , it's OK for me to travel for having a treatment .
could you recommend the best specialist for my hemangioma ..
well , i have many question but i don't want to bother you .

I'm really thankful . hope you to have a really nice day like how you changed my day by your answer .

Ghaidaa .

missy 05-20-2013 01:11 PM

Hi,

There is this doctor. Sami N. Alsuwaidan (salsuwaidan@KSU.EDU.SA)

Or there is this listing:

IMDAD Tamer Wali at 966-1-465-0371
Saudi Arabia Laser surgery specialists Khalid A. Al-Mazrou, MD,FAAP
Assistant Professor
Pediatric Otolaryngology-Head & Neck Surgery
King Saud University and University Hospitals
Old Airport St.
Department of ORL
King A/Aziz University Hospital
PO Box 245
Riyadh 11411
Saudi Arabia
Phone:+9661-477-5735
Fax: +9661-477-5748
e-mail:suadikidsent@gmail.com

Do ask your questions ... you are not bothering us, I assure you. That's what we're here for.

Missy

smurph 05-20-2013 08:37 PM

Ghaidaa,
This is the place to come if you have questions! :) I don't have all the answers but hopefully we can help you find your way to someone who can give you more information about your birthmark. I am so happy to help in whatever way I can. I would recommend that you contact Dr. Levitin as well. If you look on the home page, you will see a list on the left- Ask the Experts. You can click on Dr. Levitin or one of the other specialists there if you think another one would be more appropriate. You can send them a message along with a photo and perhaps he might be able to guide you to the kind of specialist you would need to see. I know that some doctors have traveled to Europe and Asia on occasion, so if travelling is an option, it may open different doors for you. I would also look into the doctors that Missy posted about as well. Please let us know if you have any more questions! :)
Have a good day!
Shannon

Ghaidaa 05-21-2013 03:09 PM

Quote:

Originally Posted by missy (Post 26576)
Hi,

There is this doctor. Sami N. Alsuwaidan (salsuwaidan@KSU.EDU.SA)

Or there is this listing:

IMDAD Tamer Wali at 966-1-465-0371
Saudi Arabia Laser surgery specialists Khalid A. Al-Mazrou, MD,FAAP
Assistant Professor
Pediatric Otolaryngology-Head & Neck Surgery
King Saud University and University Hospitals
Old Airport St.
Department of ORL
King A/Aziz University Hospital
PO Box 245
Riyadh 11411
Saudi Arabia
Phone:+9661-477-5735
Fax: +9661-477-5748
e-mail:suadikidsent@gmail.com

Do ask your questions ... you are not bothering us, I assure you. That's what we're here for.

Missy

Hello dear Missy .
I'm glad to see that answer , thank you for your helping .

Actually I don't want to treat in Saudi Arabia because I try it before and there is no marked improvement .
So I want to do it outside KSA in the suitable hospital and Doctor for my case .

I emailed him , hope to get an answer could help me .

Have a nice day .

Ghaidaa 05-21-2013 03:37 PM

Quote:

Originally Posted by smurph (Post 26585)
Ghaidaa,
This is the place to come if you have questions! :) I don't have all the answers but hopefully we can help you find your way to someone who can give you more information about your birthmark. I am so happy to help in whatever way I can. I would recommend that you contact Dr. Levitin as well. If you look on the home page, you will see a list on the left- Ask the Experts. You can click on Dr. Levitin or one of the other specialists there if you think another one would be more appropriate. You can send them a message along with a photo and perhaps he might be able to guide you to the kind of specialist you would need to see. I know that some doctors have traveled to Europe and Asia on occasion, so if travelling is an option, it may open different doors for you. I would also look into the doctors that Missy posted about as well. Please let us know if you have any more questions! :)
Have a good day!
Shannon

Hi shannon ,
Awwh , well that is a kindness of you <3

These are my questions :
1- What is the suitable treatment for my case ?
2- What is the total cost for the treatment ?
3- Is there any problem with my age , am I still young to have the surgery ? " I'm 17 "
4- What about the result ? could you give me a percentage for the improvement ?
5- Should I do a surgery for my nose ?
6- Where can I find you ?
I'm from Saudi Arabia & it's OK for me to travel with my parents for treatment

I have all these questions in my mind .
I am searching for a specialist to answer them according to my case .
could you recomend someone for that ?

I've emailed Dr.Gregory Levitin .
He was so kind and helpful .

thank you very much my freind for helping .
good luck for you dear Shannon . ;)

nickbar 05-22-2013 04:14 PM

Quote:

Originally Posted by Ghaidaa (Post 26592)
Hi shannon ,
Awwh , well that is a kindness of you <3

These are my questions :
1- What is the suitable treatment for my case ?
2- What is the total cost for the treatment ?
3- Is there any problem with my age , am I still young to have the surgery ? " I'm 17 "
4- What about the result ? could you give me a percentage for the improvement ?
5- Should I do a surgery for my nose ?
6- Where can I find you ?
I'm from Saudi Arabia & it's OK for me to travel with my parents for treatment

I have all these questions in my mind .
I am searching for a specialist to answer them according to my case .
could you recomend someone for that ?

I've emailed Dr.Gregory Levitin .
He was so kind and helpful .

thank you very much my freind for helping .
good luck for you dear Shannon . ;)

Hello Ghaidaa,
My name is Corinne Barinaga and I am the Director of Family Services for VBF.
I wanted to make sure you had your questions answered by Dr. Levitin or if you have additional questions. I would like to share with you some information regarding options. Can you email me directly? My email address is vbfadvocate@Live.com


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