Hi there~ I have VMs from my knee to my hip in my right leg. Two years ago I started using a cane as my leg function began to decrease, and I just bought a wheelchair for bad days/extended periods of activity.
Does anyone else here use a wheelchair as well? For those with VMs in their leg, do you notice aside from the pain, your leg gives out after a while? Is anyone else on pain medication daily?
ellejayvee, you may wish to join avmsurvivors.org. We have an Extremity AVMs group, where you can connect with others who have avms similar to yours. And yes, pain is an issue for many.
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