PWS, Seattle area
I am a mother of a 2-weeks old baby Kate with a port wine stain covering her right part of her scalp, forehead, eyelid, neck and temple. We have just started looking for treatment options, and of course this all is so overwhelming in the beginning. We would love to connect with parents of kids with PWS for support and to share experience of treating PWS in WA. Please drop me a message if you would like to do so too.
Hi and welcome!
Other parents will be in soon ... hang in there!
Anything VBF can do to help you out, please let us know.
Our little girl has a PWS that covers half of her nose, forehead & scalp. We have been seeing Dr Robin Hornung at The Everett Clinic. She is also doing her monthly laser treatments at Bellevue Children's. We are very pleased with the care we are receiving & are noticing great results! She is 8 months old & her fifth treatment is tomorrow. People are commenting that they can hardly see it anymore!
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