Vascular Birthmarks Foundation Forum

Vascular Birthmarks Foundation Forum (http://birthmark.org/board/index.php)
-   Lymphatic Malformations (also known as cystic hygroma and lymphangioma) (http://birthmark.org/board/forumdisplay.php?f=18)
-   -   My 4 Years Daughter born with Facial and Neck Cystic Hygroma (http://birthmark.org/board/showthread.php?t=6631)

Alaa 11-28-2013 12:49 PM

My 4 Years Daughter born with Facial and Neck Cystic Hygroma
 
Dear All,

wish you all doing well, i need an advice from you as for an expert medical center/Doctor to treat my daughter facial cystic hygroma. the CH showed after breath on her facial right side and a surgery was conducted to her on the age of 3 years, the surgery removed partial part of the CH specifically on the neck however the facial part was not fully removed NOW i notice a re-grow of the CH on face and a round the eye.. i need your help to communicate with experts that can help eliminate the whole thing!!
Note: after first surgery it was observed that the right facial nerve is not performing as usual and now she can not ideally move face right side!!

My email address : Alaa_abdelkader@hotmail.com
Tel: +201275556102

Note; I'm based at EGYPT however if you could help me treating her anywhere in the world i will really appreciate it.

missy 11-28-2013 06:19 PM

Hi and welcome!

If you go to http://birthmark.org/experts.php you can connect with one of our experts there.

If you have to travel, what would be ideal for you?

Missy

Alaa 12-26-2013 12:15 AM

Dear Missy

I'm very sorry for not being able to respond to you, wish you had a very nice Thanksgiving holidays. i will try your shared link and hope it will work for my daughter situation.

I'm not sure on what did you mean what would be ideal for me regarding travelling ! i wish i could travel anywhere as to get my daughter's issue resolved :(

Please let me know what you had in mind?

Thanks & Sorry again

Scarlett 10-02-2014 07:24 AM

Hello and welcome to the group. I have lymphangioma and have tried just about all the treatments they offer. I've had many surgeries, done laser, and tried sclerotherapy last week. The sclerotherapy didn't really work for me, but every one is different. I know others who have done it with fantastic results. Surgical excision(well partial) has worked the best for me.


All times are GMT. The time now is 05:42 PM.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.