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-   -   AVM causing bone problems...Need some help (http://birthmark.org/board/showthread.php?t=6742)

L_Lopes 04-08-2014 11:28 PM

AVM causing bone problems...Need some help
 
Hello Iīm new in this site. Iīve find this site on one of my researches and i think this is very helpful. Because my baby with 25 days now :) saddly was born with an AVM in her right forearm that is causing lesion on her radial bone. Doctors said that we need to wait and see what is the evolution of the lesion but i was hoping for a second or third opinion to see if anyone knows anyone with this kind of AVM. The doctors donīt have certain about whats going to happen and because iīm from Portugal there arenīt many doctors with experience in AVM.
I already have sent a message to doctor Rosen 2 weeks ago but i didnīt get any answer yet. How long we usually need to wait for an answer?
Iīm just a father looking for the best treatment for my little baby.
Thank for your time.
Best regards.

missy 04-09-2014 12:45 AM

Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy

L_Lopes 04-09-2014 03:07 PM

Quote:

Originally Posted by missy (Post 27634)
Hi

You should have gotten an answer from Dr. Rosen by now. I will look into that.

In the meantime, try writing to the European expert, too.

Missy

Hello Missy

Ok thank you so much for your help.
I already tried an european expert in liverpool but still no answer :confused:
I sent Dr. Rosen a message because iīve read that he has experience in AVM in the arms or legs and i hope he can help our family.

Thank you for your quick answer Missy.
Best regards


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