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Search: Posts Made By: jacobs_mom
Forum: Help and Resources for Hemangiomas 10-13-2010, 03:04 PM
Replies: 46
Views: 47
Posted By jacobs_mom
Carii: I live in the East Bay (Pleasanton). I...

Carii: I live in the East Bay (Pleasanton). I think we're lucky to have UCSF so close to us. Many parents live much farther away from a specialist. Greenbrae is somewhere near Marin, right? I was...
Forum: Help and Resources for Hemangiomas 10-13-2010, 02:56 PM
Replies: 11
Views: 12
Posted By jacobs_mom
The whole weaning thing makes sense. At my son's...

The whole weaning thing makes sense. At my son's last appointment, his doctor did say that even though his weight would obviously increase in the month between appointments, they were seeing how the...
Forum: Help and Resources for Hemangiomas 10-13-2010, 02:50 PM
Replies: 6
Views: 7
Posted By jacobs_mom
I agree with Missy. Get a referral to see a...

I agree with Missy. Get a referral to see a specialist. Go to a different pediatrician for the referral if you need to or contact one of the VBF doctors. My 6 month old son has a hemangioma on his...
Forum: Help and Resources for Hemangiomas 10-12-2010, 08:28 PM
Replies: 11
Views: 12
Posted By jacobs_mom
I think the 2.5 mg/kg/day calculation is right....

I think the 2.5 mg/kg/day calculation is right. But I guess I still wonder if increasing the dosage would produce more dramatic results because based on some of the posts I've seen, there are some...
Forum: Help and Resources for Hemangiomas 10-12-2010, 02:00 AM
Replies: 11
Views: 12
Posted By jacobs_mom
I've noticed the same thing. My son is currently...

I've noticed the same thing. My son is currently about 15 1/2 lbs and gets 1.2 ml twice/day. When he was first started on Propranolol, we gave him 0.8 ml twice/day. The amount has increased as his...
Forum: Help and Resources for Hemangiomas 10-07-2010, 11:16 PM
Replies: 46
Views: 47
Posted By jacobs_mom
Welcome! My son's hemangioma is on his nose,...

Welcome! My son's hemangioma is on his nose, slightly to the left and it goes slightly inside his nose as well. It was a soft pink spot like your daughter's when he was born. In two weeks, it had...
Forum: Help and Resources for Hemangiomas 10-07-2010, 11:12 PM
Replies: 46
Views: 47
Posted By jacobs_mom
I felt the same way. I got a referral from my...

I felt the same way. I got a referral from my son's pediatrician at his 2 week well visit and although I made the appointment that very same day, Dr. Freiden still couldn't see us until he was 2...
Forum: Help and Resources for Hemangiomas 09-30-2010, 01:22 AM
Replies: 46
Views: 47
Posted By jacobs_mom
I have no problem with sincere questions and I'm...

I have no problem with sincere questions and I'm always happy to give information to strangers who seem genuinely sincere and curious. But I HATE when some people just keep on staring and make rude...
Forum: Help and Resources for Hemangiomas 09-30-2010, 12:53 AM
Replies: 46
Views: 47
Posted By jacobs_mom
Thanks for the info! From looking at the boards,...

Thanks for the info! From looking at the boards, it seemed like a lot of babies take more than my son. He weighs over 15 lbs now and his dosage was adjusted accordingly. But our doctor is pretty...
Forum: Help and Resources for Hemangiomas 09-29-2010, 05:16 PM
Replies: 46
Views: 47
Posted By jacobs_mom
It looks like she's doing great on Propranolol!...

It looks like she's doing great on Propranolol! My son has been on it for about the same amount of time as your daughter. It's controlled the hemangioma from growing, but the results haven't been...
Forum: Help and Resources for Hemangiomas 09-25-2010, 11:59 AM
Replies: 46
Views: 47
Posted By jacobs_mom
I will be sending some photos of the hemangioma...

I will be sending some photos of the hemangioma on my son's nose to Missy to see if she can upload them.

Photo 1 was taken when he was 4 days old. The light pink mark was present at birth.

Photo 2...
Forum: Help and Resources for Hemangiomas 09-23-2010, 01:32 PM
Replies: 46
Views: 47
Posted By jacobs_mom
Kelly: I will send a pic of my son to Missy in...

Kelly: I will send a pic of my son to Missy in the next few days so she can post it!

Carii: We've been seeing Dr. Frieden since my son was 2 months old. He's now 5 months old. First she started him...
Forum: Help and Resources for Hemangiomas 09-12-2010, 04:35 PM
Replies: 46
Views: 47
Posted By jacobs_mom
Wow. Your son's hemangioma looks great! I'm so...

Wow. Your son's hemangioma looks great! I'm so happy Propranolol is working for him! My 5 month old has been on Propranolol for 2 months now. His hemangioma is on his nose, almost in the same place...
Forum: Help and Resources for Hemangiomas 08-26-2010, 10:13 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Missy: Yes, six hours of continuous sleep is...

Missy: Yes, six hours of continuous sleep is WONDERFUL! I actually wake up in a good mood now! His hemangioma is doing well on Propranolol. He's on a pretty low dose (0.8 ml, twice/day), but it seems...
Forum: Help and Resources for Hemangiomas 08-22-2010, 02:07 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Just wanted to give a quick update. My son has...

Just wanted to give a quick update. My son has been completely off steroids for 1 week now and he is back to being the sweet, happy, smiley baby he was before he started them. He developed some very...
Forum: Help and Resources for Hemangiomas 08-04-2010, 09:50 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Thanks for the replies! By the second day that my...

Thanks for the replies! By the second day that my son was on steroids, his behavior changed dramatically. He went from sleeping 5 - 6 hrs at night to sleeping for only 1 - 2 hr stretches, and he went...
Forum: Help and Resources for Hemangiomas 08-03-2010, 05:46 PM
Replies: 10
Views: 11
Posted By jacobs_mom
How Long Do Side Effects of Steroids Last?

My son, who is now 4 months old, started on oral steroids at 2 months and had really bad side effects-- screaming all day long, wanting to feed every 1.5 hrs, not sleeping for more than 1 -2 hrs at...
Forum: Help and Resources for Hemangiomas 07-17-2010, 05:50 PM
Replies: 91
Views: 92
Posted By jacobs_mom
Bumfuzzle, Thank you so much for all your posts...

Bumfuzzle,

Thank you so much for all your posts and the pictures of your daughter. She is a beauty! My 3 month old son has a hemangioma on his nose. It is a superficial hemangioma, but there is...
Forum: Help and Resources for Hemangiomas 06-30-2010, 11:12 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Update: We saw the doctor on Monday and she feels...

Update: We saw the doctor on Monday and she feels the hemangioma looks better (not as bright red, no further ulceration). So she feels the steroids, even at the minimal dosage, are doing their job...
Forum: Help and Resources for Hemangiomas 06-28-2010, 06:12 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Missy-- Thanks for the well wishes! Lauren--...

Missy-- Thanks for the well wishes!

Lauren-- Wow, 9 months of roid rage! How did you do it???

We're going in today to hopefully start Propranolol and if all goes as planned, we will be in the...
Forum: Help and Resources for Hemangiomas 06-24-2010, 08:48 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Missy and Mperron: Thank you for your replies. My...

Missy and Mperron: Thank you for your replies. My son is currently on only half the dosage of steroids and he is doing MUCH better. He is definitely more irritable than he was prior to starting the...
Forum: Help and Resources for Hemangiomas 06-22-2010, 11:33 PM
Replies: 10
Views: 11
Posted By jacobs_mom
Corticosteroid Side Effects, Propranolol Instead?

Hello, I am new to the world of hemangiomas. Here's a little background: My second child, Jacob, who is now 2 months old, has a hemangioma on his nose. We saw a specialist at UCSF about 1 1/2 weeks...
Showing results 1 to 22 of 22

 
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