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Search: Posts Made By: Nicolefila
Forum: Youth and Teen Support 10-12-2007, 12:59 AM
Replies: 5
Views: 2,368
Posted By Nicolefila
hey thank you so much for the information. I just...

hey thank you so much for the information. I just had an angiogram today and they are suggesting different methods of treatment that are possible. I will print those articles out and read them over,...
Forum: General Resources 09-30-2007, 07:19 AM
Replies: 3
Views: 2,293
Posted By Nicolefila
Hello and welcome. I have a hemangioma that...

Hello and welcome. I have a hemangioma that started in my lower leg and is now traveling all the way into my stomach. Although when pressed on, my hemangioma hurts, this may be different for your...
Forum: Youth and Teen Support 09-26-2007, 05:01 AM
Replies: 5
Views: 2,368
Posted By Nicolefila
is sclerotherapy alcohol ethenol injections?

is sclerotherapy alcohol ethenol injections?
Forum: AVM Help and Resources 09-25-2007, 05:55 AM
Replies: 10
Views: 4,386
Posted By Nicolefila
I just thought that those of you being seen by...

I just thought that those of you being seen by Dr. Yakes should be forewarned that althoguh he has helped many people with this condition, I have heard from a couple of different people that he has...
Forum: AVM Help and Resources 09-25-2007, 05:43 AM
Replies: 3
Views: 2,980
Posted By Nicolefila
I too had a nerve damaged by Dr.Yakes. It made me...

I too had a nerve damaged by Dr.Yakes. It made me lose feeling to my entire lower left leg. It was the last thing I needed on top of everything else, Just thought you should know your not alone.
Forum: Living with a birthmark - my story 09-25-2007, 04:51 AM
Replies: 5
Views: 3,077
Posted By Nicolefila
Hey Amy, Well the good news is there is so much...

Hey Amy,
Well the good news is there is so much new technology these days rather then when I was young. You have got an early start on your sons condition which is very commendable. My mother didn't...
Forum: Living with a birthmark - my story 09-25-2007, 04:39 AM
Replies: 15
Views: 4,172
Posted By Nicolefila
hey Sophia, until I read your story, I thought my...

hey Sophia,
until I read your story, I thought my hemangioma was big. it goes from my lower left leg, into my hip, and up into my stomach. It is most noticeable on the back of my left leg though....
Forum: Living with a birthmark - my story 09-25-2007, 04:28 AM
Replies: 6
Views: 3,528
Posted By Nicolefila
I also think this is a great idea. I would tell...

I also think this is a great idea. I would tell my story only it's so long it would take up about 3 pages.
Forum: AVM Help and Resources 09-25-2007, 04:22 AM
Replies: 5
Views: 2,096
Posted By Nicolefila
the best place I have found information wide is...

the best place I have found information wide is the internet and I have had a venous malformation since I was 7 and I am now 21. I just found this website about 3 days ago so your already a step (or...
Forum: AVM Help and Resources 09-25-2007, 04:11 AM
Replies: 2
Views: 1,799
Posted By Nicolefila
I have been seeing different doctors since the...

I have been seeing different doctors since the age of 7. I have been to doctor Yakes in colorado but he damaged my sciatic nerve doing alcohol ethenol injections. I am now seeing a radiation...
Forum: Help and Resources for Hemangiomas 09-25-2007, 04:06 AM
Replies: 12
Views: 2,024
Posted By Nicolefila
hey 21 y/o female here. I am new to this website....

hey 21 y/o female here. I am new to this website. I have a very large venous malformation (hemangioma) on my left side starting from my lower leg and into my stomach. I have a tip for parents. If...
Forum: AVM Help and Resources 09-25-2007, 04:00 AM
Replies: 6
Views: 2,264
Posted By Nicolefila
I am happy for the people that Dr. Yakes has...

I am happy for the people that Dr. Yakes has helped but I thought you should know I was treated by him and he damaged the sciatic nerve in my left leg. I now cannot feel or move my entire left foot....
Forum: Youth and Teen Support 09-25-2007, 03:45 AM
Replies: 5
Views: 2,368
Posted By Nicolefila
A little help

Hey everyone. I am a 21 y/o female w/ a large venous malformation (hemangioma) that goes from my lower left leg, into my hip and has recently begun to make it's way through my stomach. I am just...
Forum: Port Wine Stain Help and Resources 09-25-2007, 02:56 AM
Replies: 9
Views: 2,141
Posted By Nicolefila
I am a 21 y/o female and also looking into...

I am a 21 y/o female and also looking into radiation (laser therapy) I think my insurance will cover it but they tell me the area that I need it done in is almost 90% likely to cause damage to my...
Forum: Youth and Teen Support 09-22-2007, 11:09 PM
Replies: 1
Views: 2,012
Posted By Nicolefila
want to talk

what kind of hemangioma do you have. I am having problems with a hemagioma in my stomach right and bleeding please reply
Forum: AVM Help and Resources 09-22-2007, 10:39 PM
Replies: 2
Views: 1,799
Posted By Nicolefila
venous malformation

I am a 21 y/o femals w/ a venous malformation that goes from my lower left leg all the way into my stomach. I am looking for any treatment options or suggestions anyone might have.
Showing results 1 to 16 of 16

 
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