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Search: Posts Made By: mrssuperspy
Forum: Help and Resources for Hemangiomas 05-24-2010, 01:25 PM
Replies: 4
Views: 5
Posted By mrssuperspy
This was not suggested to us. And our daughter...

This was not suggested to us. And our daughter weighed just under 6 pounds at the time we started Propranolol. I did make sure to feed her with each dosage. I do know of a Mom who was told to wake...
Forum: Help and Resources for Hemangiomas 05-05-2010, 06:04 PM
Replies: 6
Views: 7
Posted By mrssuperspy
Hi there. My daughter's heman is basically in...

Hi there. My daughter's heman is basically in the same spot as your. My girl also has a sweet crooked smile! LOL We are pursuing surgery. This is because of her lopsided lip and the scars left...
Forum: Help and Resources for Hemangiomas 05-05-2010, 06:01 PM
Replies: 5
Views: 6
Posted By mrssuperspy
My daughters hemangioma also used to turn black...

My daughters hemangioma also used to turn black when she was cold. I don't recall the spots, but I'd think it was normal. All our docs have said they will change colors depending on temperature,...
Forum: Help and Resources for Hemangiomas 05-05-2010, 06:00 PM
Replies: 9
Views: 10
Posted By mrssuperspy
I know there are differing opinions on this, but...

I know there are differing opinions on this, but Aquaphor worked wonders for my daughter's ulcerated hemangioma. The docs were saying just Vaseling, but my Mom googled and suggested we try the...
Forum: Help and Resources for Hemangiomas 04-13-2010, 08:43 PM
Replies: 10
Views: 11
Posted By mrssuperspy
Ours only started growing again because we...

Ours only started growing again because we stopped when she was so young. And, it was not our docs idea, it was ours. After 2 weeks we changed our minds, again :), and put her back on.

We stopped...
Forum: Help and Resources for Hemangiomas 04-07-2010, 11:43 PM
Replies: 19
Views: 20
Posted By mrssuperspy
Hi there. My daughter was on Propranolol for...

Hi there. My daughter was on Propranolol for about a year. From 7 weeks until about 14 months. We did not see any side effects. Our Dr. always said that at the low dosage they are using to treat...
Forum: Help and Resources for Hemangiomas 04-05-2010, 10:07 PM
Replies: 10
Views: 11
Posted By mrssuperspy
We stopped Propranolol for about 2 weeks, saw...

We stopped Propranolol for about 2 weeks, saw regrowth and restarted. I'd guess my daughter was about 4-5 months old. It did work, about 2 hours after her 2nd dose I could see a very distinct...
Forum: Help and Resources for Hemangiomas 04-05-2010, 08:45 PM
Replies: 6
Views: 7
Posted By mrssuperspy
Oh my goodness, I am totally beyond speechless...

Oh my goodness, I am totally beyond speechless right now. quisleyb - I am emailing you right now!
Forum: Help and Resources for Hemangiomas 04-05-2010, 08:41 PM
Replies: 9
Views: 10
Posted By mrssuperspy
I completely agree! Propranolol was not our...

I completely agree! Propranolol was not our miracle, but basically stabilized our hemangioma. Ours is above the lip, too! :)
Forum: Help and Resources for Hemangiomas 03-20-2010, 01:08 AM
Replies: 6
Views: 7
Posted By mrssuperspy
Travelling to see Dr. Levitin...any tips?

Hi all,

We have made the decision to go ahead and meet with Dr. Levitin. We will be flying out of Phoenix and have our appt. at 11:30. Has anyone else flown in just for a consult? He said it...
Forum: Help and Resources for Hemangiomas 02-24-2010, 02:04 PM
Replies: 17
Views: 18
Posted By mrssuperspy
Oh girls! Aren't our lives with these little...

Oh girls! Aren't our lives with these little babies amusing? Like the others my response often depends on my mood. But, I swear the next person who asks me "what happened to her?" Is going to get...
Forum: Help and Resources for Hemangiomas 02-22-2010, 07:36 PM
Replies: 4
Views: 5
Posted By mrssuperspy
Hi there. My daughter just stopped taking...

Hi there. My daughter just stopped taking propranolol. I'm sorry you aren't seeing more change. For us it wasn't a miracle. It did change the color a bit at the beginning and also stop it from...
Forum: Help and Resources for Hemangiomas 10-18-2009, 04:00 PM
Replies: 7
Views: 1,041
Posted By mrssuperspy
My daughter's H is in that exact spot. Her pics...

My daughter's H is in that exact spot. Her pics are on our blog here...
www.awindowoflife.blogspot.com

It's been awhile since your post. How are things going for her now?
Forum: Help and Resources for Hemangiomas 07-10-2009, 02:32 AM
Replies: 20
Views: 2,065
Posted By mrssuperspy
My daughter is also on Propranolol. We haven't...

My daughter is also on Propranolol. We haven't seen any rash, but I'd agree with the cold feet. This side effect was mentioned by our derm when we started the med. I wouldn't worry about it. When...
Forum: Help and Resources for Hemangiomas 03-13-2009, 04:09 PM
Replies: 9
Views: 1,510
Posted By mrssuperspy
Hi there! My daughter has an H in the exact spot...

Hi there! My daughter has an H in the exact spot as your son's. Glad you found this forum, makes you feel better knowing you aren't alone. Are the treatments you are talking about laser?
Forum: Help and Resources for Hemangiomas 03-06-2009, 07:17 PM
Replies: 5
Views: 592
Posted By mrssuperspy
I don't have any advice, but wanted to say good...

I don't have any advice, but wanted to say good luck!
Forum: Help and Resources for Hemangiomas 03-04-2009, 07:23 PM
Replies: 4
Views: 611
Posted By mrssuperspy
Thank you so much! That was very helpful!

Thank you so much! That was very helpful!
Forum: Help and Resources for Hemangiomas 03-03-2009, 03:57 PM
Replies: 2
Views: 484
Posted By mrssuperspy
Oh my goodness, I am so sorry for your little...

Oh my goodness, I am so sorry for your little one's pain! My little girl is 3 months today, isn't it an exciting time?! I hope that someone can help you find answers.

I'd like to ask you about the...
Forum: Help and Resources for Hemangiomas 03-03-2009, 03:55 PM
Replies: 4
Views: 611
Posted By mrssuperspy
What to put on ulceration to help it heal?

So, whether my daughter's H is "ulcerated" or not is yet to be determined. However, it is open and raw looking. I don't *think* she is in pain from it now, though. She does seem to be hurting if...
Forum: Help and Resources for Hemangiomas 03-02-2009, 03:38 PM
Replies: 5
Views: 718
Posted By mrssuperspy
Thanks for all the ideas! We have seen our ped...

Thanks for all the ideas! We have seen our ped derm again and the word "ulcerated" did come up. They are saying that it is most likely due to the injection, but that as big as it was and being on...
Forum: Help and Resources for Hemangiomas 02-17-2009, 07:29 PM
Replies: 5
Views: 718
Posted By mrssuperspy
Is this ulceration? Or was it caused by the steroid injection?

Hi all -

Hoping you can all shed some light on what may be happening with my daughter's H. She is on propranolol and also had a steroid injection. The injection was on jan 22nd. A few days later...
Forum: Help and Resources for Hemangiomas 01-26-2009, 12:49 PM
Replies: 5
Views: 751
Posted By mrssuperspy
Thanks for your concern, I ended up taking her...

Thanks for your concern, I ended up taking her into urgent care. Of course, they couldn't see that her eyes looked "off", b/c they didn't know what she looked lke normally. LOL Aside from the eye...
Forum: Help and Resources for Hemangiomas 01-23-2009, 02:25 PM
Replies: 5
Views: 751
Posted By mrssuperspy
Thanks Missy, I will call. I searched, too and...

Thanks Missy, I will call. I searched, too and didn't think that I had seen any others with this response. She is a tiny one, though, so it may have affected her a bit more. She's 7 weeks, but...
Forum: Help and Resources for Hemangiomas 01-23-2009, 02:14 AM
Replies: 5
Views: 751
Posted By mrssuperspy
Side effects from steroid injection?

Hi all,

My daughter had a steroid injection this morning. Her H is on her upper lip, under the nose. The dr. said that the only side effect I should see is that she may be hungrier than normal. ...
Forum: Help and Resources for Hemangiomas 01-21-2009, 02:33 PM
Replies: 12
Views: 1,286
Posted By mrssuperspy
Hi, I wanted to let you know that I just gave...

Hi,

I wanted to let you know that I just gave my baby her first dose this morning. She is 7 weeks old today. You can email me, thegarzafamily5@msn.com, or follow along on our family blog ...
Showing results 1 to 25 of 28

 
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