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Search: Posts Made By: CarrieChris
Forum: Help and Resources for Hemangiomas 07-26-2012, 05:29 PM
Replies: 19
Views: 20
Posted By CarrieChris
I wish we had propranolol when Bella was born! ...

I wish we had propranolol when Bella was born! It seems to be a miracle drug for the segmental hemangiomas!
Forum: Help and Resources for Hemangiomas 07-26-2012, 05:23 PM
Replies: 5
Views: 6
Posted By CarrieChris
http://www.onetruemedia.com/shared?p=2a78e6e6c0950...

http://www.onetruemedia.com/shared?p=2a78e6e6c0950aa38520aa&skin_id=601&utm_source=otm&utm_medium=text_url

Here is Bella's story with before and after laser photos.

Carrie
Forum: Help and Resources for Hemangiomas 07-26-2012, 05:21 PM
Replies: 5
Views: 6
Posted By CarrieChris
The black scabby dot is likely the beginning of...

The black scabby dot is likely the beginning of an ulcer. Make sure you keep putting the aquafor on it or whatever the doctor prescribed. Good luck!

Carrie
Forum: Help and Resources for Hemangiomas 10-21-2011, 05:05 PM
Replies: 4
Views: 5
Posted By CarrieChris
Bella is doing great. She's really come a long...

Bella is doing great. She's really come a long way! She's in Pre-K this year. She went to P-3 last year for 3 year olds but the 4 yr old class is really great. She's learning so much and really...
Forum: Help and Resources for Hemangiomas 10-20-2011, 02:14 PM
Replies: 4
Views: 5
Posted By CarrieChris
Facial Tissue Expander

I was just wondering if anyone has an before and after pictures of their children that have had facial tissue expanders / reconstruction. We'd love to see that. Bella will start this process in the...
Forum: Help and Resources for Hemangiomas 11-29-2010, 10:56 PM
Replies: 3
Views: 4
Posted By CarrieChris
Bella has had facial reconstructive surgery...

Bella has had facial reconstructive surgery already. This coming year she will need to have more surgery. I know that there is an end in site, I just feel so bad for her now. I think some lasering...
Forum: Help and Resources for Hemangiomas 11-29-2010, 06:21 PM
Replies: 3
Views: 4
Posted By CarrieChris
Feeling bad for my little princess

Well it offically took just under four years for my daughter to give a care about her hemangioma. She never ever acted like it bothered her a bit until lately. She just looked at a picture of her...
Forum: Help and Resources for Hemangiomas 10-13-2010, 02:43 PM
Replies: 2
Views: 3
Posted By CarrieChris
Thats wonderful! I am so glad to hear it was a...

Thats wonderful! I am so glad to hear it was a sucess. We went last year and really enjoyed it. Dr. Levitin had asked if he could use Bella's pictures to show how good her segmental hemangioma...
Forum: Help and Resources for Hemangiomas 09-23-2010, 03:35 PM
Replies: 4
Views: 5
Posted By CarrieChris
Thanks! That is very helpful! Carrie

Thanks! That is very helpful!
Carrie
Forum: Help and Resources for Hemangiomas 09-22-2010, 12:46 PM
Replies: 4
Views: 5
Posted By CarrieChris
Being like everyone else

Hello there! I was just wondering if you parents can help me out here! Our daughter is going to be four years old in December. She just started pre-school this fall and she goes 5 full days per...
Forum: Help and Resources for Hemangiomas 09-08-2010, 01:31 PM
Replies: 11
Views: 483
Posted By CarrieChris
Scars..... Unfortunately, there will always be a...

Scars..... Unfortunately, there will always be a scar if the little ones had surgery or if they had ulcerations. In time they change colors, lighten, stretch out, smoothe out on their own. BUT...
Forum: Help and Resources for Hemangiomas 06-29-2010, 05:26 PM
Replies: 9
Views: 10
Posted By CarrieChris
I had never had the insurance say it wasn't...

I had never had the insurance say it wasn't medically necessary. They always bill as a vascular lesion removal and it was always covered.
Forum: Help and Resources for Hemangiomas 04-03-2010, 04:53 AM
Replies: 2
Views: 3
Posted By CarrieChris
Wound consults discouraged

I have been thinking alot about our daughters hemangioma and the horrendous ulceration that she had and it leaves me feeling frustrated. You know we spent seven months watching the monsterous ulcer...
Forum: Help and Resources for Hemangiomas 04-02-2010, 07:12 PM
Replies: 9
Views: 10
Posted By CarrieChris
regranex

We used regranex on our daughters wound too and it does get mixed reviews. If you talk with Dr. Serena ask him if Suile Ointment (pronounced swilley) is an option. That seems to work very...
Forum: Help and Resources for Hemangiomas 03-29-2010, 03:00 PM
Replies: 3
Views: 4
Posted By CarrieChris
http://www.serena-v.com/news/drserena-receives-saw...

http://www.serena-v.com/news/drserena-receives-sawc-award.html

Check out the following link to see Bella's progress

Carrie
Forum: Help and Resources for Hemangiomas 03-29-2010, 02:58 PM
Replies: 3
Views: 4
Posted By CarrieChris
Mist Therapy

Our daughter was treated by Dr. Serena with Mist Therapy and it was the best thing we ever did for her ulcer treatment. Bella had a horrendous ulcer for 7 months. Her ulcer healed within 5 weeks...
Forum: Help and Resources for Hemangiomas 03-10-2010, 02:53 PM
Replies: 8
Views: 9
Posted By CarrieChris
after a closer look I see what you are talking...

after a closer look I see what you are talking about. I would just ask for a referral to the Ped. Ophthalmologist just for a closer look. It can't hurt.
Carrie
Forum: Help and Resources for Hemangiomas 03-10-2010, 02:51 PM
Replies: 8
Views: 9
Posted By CarrieChris
I didn't even notice anything by the eye. I saw...

I didn't even notice anything by the eye. I saw the "stork bite" under his nose but nothing by the eye. Has he seen a pediatric ophthalmologist to check for a blocked tear duct? 90 % of blocked...
Forum: Help and Resources for Hemangiomas 03-10-2010, 02:46 PM
Replies: 9
Views: 10
Posted By CarrieChris
Ulcer

Our daughter had her ulcer for 7 months. The worst of it was about 5 months into it. She had several lasers (4) and it did not work for her. The lasers seemed to break down the edges of the ulcer...
Forum: Help and Resources for Hemangiomas 03-05-2010, 05:06 PM
Replies: 4
Views: 5
Posted By CarrieChris
Pics of before and after

I am attaching before and after pictures of our daughter. Of course there was ALOT in between but you can see she's had an excellent outcome so far!
Carrie
Forum: Help and Resources for Hemangiomas 02-25-2010, 02:32 PM
Replies: 4
Views: 5
Posted By CarrieChris
You will love him

Our daughter had multiple procedures done by Dr. Levitin. You will love him. He has incredible skill and an exquisite bedside manner. Your child will be in the best of hands with Dr. Levitin.
Forum: Help and Resources for Hemangiomas 02-22-2010, 03:17 PM
Replies: 18
Views: 19
Posted By CarrieChris
Wouldn't Dr. Hochman be closer or Dr. Freeman? ...

Wouldn't Dr. Hochman be closer or Dr. Freeman? They are both in the Carolinas.
Forum: Help and Resources for Hemangiomas 02-15-2010, 02:58 PM
Replies: 9
Views: 10
Posted By CarrieChris
Our daughter had all of her immunizations on time...

Our daughter had all of her immunizations on time with the exception of the varicella and MMR. She got those when she was off of steroids for 6 months.
Forum: Help and Resources for Hemangiomas 11-29-2009, 04:12 AM
Replies: 6
Views: 269
Posted By CarrieChris
Dr. Serena's website

You can go to www.serena-v.com and check out the pediatric wound section. There is a picture of our daughter before and after treatment of the ulceration on her segmental hemangioma.
Carrie
Forum: Help and Resources for Hemangiomas 11-29-2009, 04:00 AM
Replies: 6
Views: 269
Posted By CarrieChris
Oh, if it bleeds, cover it with a gauze pad and...

Oh, if it bleeds, cover it with a gauze pad and hold pressure on it for 15 minutes. NO PEEKING! Hemangioma's have a vast blood supply and they can really bleed.
Showing results 1 to 25 of 63

 
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