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Search: Posts Made By: sweet pea
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 02-16-2013, 05:59 AM
Replies: 5
Views: 6
Posted By sweet pea
I also live in Socal and see Dr. John Reinisch in...

I also live in Socal and see Dr. John Reinisch in Los Angeles. He did my last surgery and did an amazing job with it all. He works through Cedars Sinai, if you want to look him up.

I'm 23 with the...
Forum: Youth and Teen Support 09-13-2012, 12:36 AM
Replies: 3
Views: 4
Posted By sweet pea
Hi, Welcome to the VBF site. I don't have the...

Hi, Welcome to the VBF site. I don't have the same condition as you do, so I don't have experience with laser treatments. I'm afraid I am not of much help there, but what I wanted to add in some...
Forum: Adults Living with Birthmarks 06-27-2012, 02:23 AM
Replies: 6
Views: 7
Posted By sweet pea
Yay, congrats!! Your story is very similar to...

Yay, congrats!! Your story is very similar to mine. I'm getting married as well this summer(been with him the last 3 years) and can't use hormonal birth control, although for a different reason(have...
Forum: Adults Living with Birthmarks 06-27-2012, 02:12 AM
Replies: 1
Views: 2
Posted By sweet pea
These are great questions to ask your doctor....

These are great questions to ask your doctor. There are no doctors on this forum, so it would be best to make an appointment with your doctor to ask about this and treatment options. Hope it all goes...
Forum: Youth and Teen Support 06-27-2012, 02:05 AM
Replies: 26
Views: 6,378
Posted By sweet pea
Update

I posted on here a few years back about having very little luck in the relationship department, but I am so happy to say that it all changed after high school. I dated a couple guys my freshman year...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-27-2012, 01:56 AM
Replies: 9
Views: 10
Posted By sweet pea
Typically, my specialist never treated the...

Typically, my specialist never treated the blisters, as they weren't really a concern and would stay small. Occasionally, some would "weep"(leak lymph fluid) which I was self-conscious about, but...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-12-2012, 04:21 AM
Replies: 9
Views: 10
Posted By sweet pea
The "blister" you are referring to is...

The "blister" you are referring to is actually quite normal. I get those myself and know of many others who experience them as well. They look like tiny red "hemangiomas", as someone else had...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-12-2012, 04:13 AM
Replies: 4
Views: 5
Posted By sweet pea
The page now has over 360 likes! It's amazing to...

The page now has over 360 likes! It's amazing to watch the page grow. I keep sending people here to find a specialist, as we have people from all over the world who are on the page and need someone...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-12-2012, 04:10 AM
Replies: 3
Views: 4
Posted By sweet pea
How did they do the diagnosis? As in what tests...

How did they do the diagnosis? As in what tests were done to figure out what you have?

I know it isn't a long term fix, but have you tried wearing compression garments(compression sleeves)? Those...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-12-2012, 04:04 AM
Replies: 4
Views: 909
Posted By sweet pea
Thank you so much for the reply. I haven't been...

Thank you so much for the reply. I haven't been on here in ages. I find the link interesting, as I have had the opposite reaction. I ended up just trying the birth control pill to see how my body...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-22-2011, 02:14 AM
Replies: 22
Views: 23
Posted By sweet pea
The doctor advised no treatment? That seems a bit...

The doctor advised no treatment? That seems a bit odd. Microcystic LMs are a bit more difficult to treat than macrocystic lesions since they are smaller and often times they are intertwined with...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 06-22-2011, 02:08 AM
Replies: 4
Views: 5
Posted By sweet pea
Yes, the profile picture on the page has a large...

Yes, the profile picture on the page has a large red ribbon. The ribbon says Lymphatic Malformation <3.
Forum: Adults Living with Birthmarks 05-12-2011, 01:40 AM
Replies: 4
Views: 5
Posted By sweet pea
Congrats! It's always good to feel confident in...

Congrats! It's always good to feel confident in your own skin. My birthmark is not gone by any means, but I've learned to accept my body for what it is. I've gotten a lot of attention from guys even...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 05-12-2011, 01:34 AM
Replies: 4
Views: 5
Posted By sweet pea
facebook

A friend I met online, who also has a LM, and I started a page on facebook called Lymphatic Malformation Awareness if anyone is interested in "liking" that page. We have about 60 people who have...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 05-12-2011, 01:27 AM
Replies: 22
Views: 23
Posted By sweet pea
Sclerotherapy is a good option. Everyone's body...

Sclerotherapy is a good option. Everyone's body is different, so each person will react differently to treatment. It may be tender and a bit inflamed after the treatment, but will slowly shrink down...
Forum: Adults Living with Birthmarks 01-25-2011, 03:52 AM
Replies: 4
Views: 5
Posted By sweet pea
It really takes time to come to terms with what...

It really takes time to come to terms with what you have... I'm 21 and finally feel more at peace with my own body. I have a lymphatic malformation and have been through several surgeries, leaving me...
Forum: Adults Living with Birthmarks 01-25-2011, 03:44 AM
Replies: 5
Views: 6
Posted By sweet pea
Congrats on your engagement!! I know this is a...

Congrats on your engagement!! I know this is a bit late, but you can go to any make-up store, like Mac and ask about what types of foundations they have that may cover up your birthmark well. If you...
Forum: Living with a birthmark - my story 01-25-2011, 03:37 AM
Replies: 5
Views: 6
Posted By sweet pea
"my least favorite part of the party aspect...

"my least favorite part of the party aspect is that split second when a hot guy tells you that you look pretty but it doesn't really mean anything because he's not seeing all of you, and you know...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 01-25-2011, 03:29 AM
Replies: 3
Views: 4
Posted By sweet pea
Well if you are looking for a doctor in the NYC...

Well if you are looking for a doctor in the NYC area, I highly recommend Dr Waner. He has a lot of experience and great results for treatment of LMs. http://vbiny.org/ ... a link to his page.
Forum: Living with a birthmark - my story 11-14-2010, 10:18 PM
Replies: 2
Views: 3
Posted By sweet pea
Good to hear. Scars are cool! lol. I've grown to...

Good to hear. Scars are cool! lol. I've grown to kind of like mine, a physical reminder of what I have overcome. :)
Forum: Living with a birthmark - my story 11-14-2010, 10:16 PM
Replies: 2
Views: 3
Posted By sweet pea
You can try getting a consultation with a...

You can try getting a consultation with a dermatologist. Then ask questions about what options you have. Though having a birthmark isn't so big of a deal. I don't think any one really minds and if...
Forum: Adults Living with Birthmarks 11-14-2010, 10:10 PM
Replies: 14
Views: 15
Posted By sweet pea
Glad yours is going well. I noticed problems...

Glad yours is going well. I noticed problems after 2 months, which is a pretty short period of time. :/ I wish I could use the pill, would make my life so much easier, but oh well. High dose pain...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-13-2010, 06:21 AM
Replies: 6
Views: 7
Posted By sweet pea
Try not to stress too much, you need to take care...

Try not to stress too much, you need to take care of your unborn baby, too. If the lymphatic malformation takes up a lot of his thigh, there are ways of "filling it in" with tissue or something. :)...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-11-2010, 03:40 AM
Replies: 6
Views: 7
Posted By sweet pea
I would definitely go for the MRI. That is a good...

I would definitely go for the MRI. That is a good next step to see how extensive it is and to see what they get to work with. You want to make sure it is a lymphatic malformation vs another type of...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 11-11-2010, 03:18 AM
Replies: 5
Views: 6
Posted By sweet pea
Well the "wait and see" approach is...

Well the "wait and see" approach is still the typical one used by many doctors. Usually, it can be ok to do so that the child is older and can handle treatment better. But it's really on a case by...
Showing results 1 to 25 of 111

 
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