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Search: Posts Made By: missy
Forum: Help and Resources for Hemangiomas 05-20-2013, 01:11 PM
Replies: 7
Views: 8
Posted By missy
Hi, There is this doctor. Sami N. Alsuwaidan...

Hi,

There is this doctor. Sami N. Alsuwaidan (salsuwaidan@KSU.EDU.SA)

Or there is this listing:

IMDAD Tamer Wali at 966-1-465-0371
Saudi Arabia Laser surgery specialists ...
Forum: Help and Resources for Hemangiomas 05-11-2013, 10:54 PM
Replies: 9
Views: 10
Posted By missy
Hi and welcome! You're right. There's no...

Hi and welcome!

You're right. There's no predicting what will happen. Have you discussed proplanolol with your physician yet?

Missy
Forum: Announcements 05-10-2013, 03:05 PM
Replies: 0
Views: 1
Posted By missy
2013 Conference in Irvine, California

VBF is very excited to announce that despite the economy the Port Wine Stain and Vascular Birthmarks Conference will be held once again in Irvine, California on Saturday, October 12th. This...
Forum: Port Wine Stain Help and Resources 05-10-2013, 02:34 PM
Replies: 0
Views: 1
Posted By missy
Amazing Breakthrough!

Cause of Port Wine Stain/SWS Identified in Recent Study (http://www.webmd.com/skin-problems-and-treatments/news/20130508/researchers-pinpoint-cause-of-port-wine-stain-birthmarks)
Or download the...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 05-03-2013, 09:26 PM
Replies: 3
Views: 4
Posted By missy
California? See if you can go see Dr....

California? See if you can go see Dr. Frieden:

Dr. Ilona Frieden
University of California at San Francisco
Box 0316
San Francisco, CA 94115
friedeni@derm.ucsf.edu
Nurse: Louise Crotwell...
Forum: Help and Resources for Hemangiomas 04-30-2013, 10:34 AM
Replies: 7
Views: 8
Posted By missy
Any chance you could go...

Any chance you could go here:

http://www.sickkids.ca/PlasticSurgery/What-we-do/Vascular-Anomalies-Clinic/index.html

My opinion is that you do need to have a specialist look at it. Hemangiomas can...
Forum: Help and Resources for Hemangiomas 04-29-2013, 12:47 PM
Replies: 7
Views: 8
Posted By missy
Hi and welcome! You should see if you can find a...

Hi and welcome!

You should see if you can find a specialist. Hemangiomas near the eye usually do require treatment as they can sometimes distort the eye itself and affect vision. Where are you...
Forum: Port Wine Stain Help and Resources 04-20-2013, 11:46 PM
Replies: 18
Views: 19
Posted By missy
Yes, you should absolutely use sunscreen every...

Yes, you should absolutely use sunscreen every day.

When is the next treatment?
Forum: Help and Resources for Hemangiomas 04-16-2013, 02:28 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! Lots of people here have gone...

Hi and welcome!

Lots of people here have gone that route and they will post soon.

I didn't want you to have to wait for a response, but have no advice. Have you chosen a physician yet?

Missy
Forum: General Resources 04-15-2013, 11:24 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! I'm not sure I could say for...

Hi and welcome!

I'm not sure I could say for sure what that was. I don't know that a dermatologist is going to be able to help. Where are you located? Is there a specialist close to you?

Missy
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 04-02-2013, 12:10 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome again! I don't have advice for...

Hi and welcome again!

I don't have advice for you, just wanted to say hi. Do get in touch with one of the experts, if you haven't already. Http://birthmark.org/experts.php

Missy
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 03-26-2013, 11:06 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! If you look at...

Hi and welcome!

If you look at HTTP:\\birthmark.org\node\47 then you will find listings there.

Missy
Forum: General Resources 03-13-2013, 09:21 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! Many times, it's too difficult...

Hi and welcome!

Many times, it's too difficult to diagnose by imaging studies alone and surgically removing it is the only way to tell what exactly it is.

That said, it's still your option not to...
Forum: Help and Resources for Hemangiomas 03-13-2013, 01:48 PM
Replies: 14
Views: 1,337
Posted By missy
Hi and welcome! Hemangioma is a term that refers...

Hi and welcome!

Hemangioma is a term that refers to a birthmark that only babies have. They resolve in some way or other by puberty.

If you have a vascular birthmark as an adult, it is either a...
Forum: Port Wine Stain Help and Resources 03-13-2013, 12:13 AM
Replies: 1
Views: 2
Posted By missy
To upload photo, go to "manage...

To upload photo, go to "manage attachments." If you have trouble, email it to contact@birthmark.org and I'll take care of it.

Missy
Forum: Help and Resources for Hemangiomas 03-12-2013, 09:43 PM
Replies: 19
Views: 20
Posted By missy
Good luck, Sarah, and keep us updated! Missy

Good luck, Sarah, and keep us updated!

Missy
Forum: Help and Resources for Hemangiomas 03-11-2013, 12:27 AM
Replies: 19
Views: 20
Posted By missy
Let us know what happens. Missy

Let us know what happens.

Missy
Forum: Help and Resources for Hemangiomas 03-09-2013, 02:22 PM
Replies: 19
Views: 20
Posted By missy
Photos

Here you go!
Forum: AVM Help and Resources 03-04-2013, 10:59 AM
Replies: 6
Views: 7
Posted By missy
Thank you for the update. I'm so glad you've...

Thank you for the update. I'm so glad you've seen progress. That's encouraging.

Missy
Forum: Adults Living with Birthmarks 02-27-2013, 11:20 AM
Replies: 1
Views: 2
Posted By missy
That's a cute story. :) Missy

That's a cute story.

:)

Missy
Forum: Help and Resources for Hemangiomas 02-18-2013, 01:59 PM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! Congratulations on your almost...

Hi and welcome!

Congratulations on your almost new baby!!

Can you post a photo? And, where are you located? Have you been able to see a specialist?

Missy
Forum: Help and Resources for Hemangiomas 01-29-2013, 07:57 PM
Replies: 3
Views: 4
Posted By missy
Hi and welcome, More than likely, what you have...

Hi and welcome,

More than likely, what you have is not technically a hemangioma. That is the term for a birthmark that goes away by the time puberty is reached (usually earlier). However, back...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 01-22-2013, 11:20 AM
Replies: 2
Views: 3
Posted By missy
Hi and welcome! I don't know that you're going...

Hi and welcome!

I don't know that you're going to find anyone to answer your question quickly. If you go over to the ask the expert section and write in to Dr. Linda, she may be able to help...
Forum: Help and Resources for Hemangiomas 01-09-2013, 11:14 AM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! If you send a photo to...

Hi and welcome!

If you send a photo to contact@birthmark.org I'll post it for you. I can crop out everything but the rash.

Where are you located? It might be wise to see a specialist if it...
Forum: Adults Living with Birthmarks 01-05-2013, 01:08 PM
Replies: 24
Views: 13,974
Posted By missy
Hemangioma usually go away in infancy, but many...

Hemangioma usually go away in infancy, but many times doctors still use that term to diagnose adults.

Have you considered seeing a specialist?

Missy
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