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1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
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Search: Posts Made By: CelesX
Forum: Help and Resources for Hemangiomas 04-19-2008, 03:36 AM
Replies: 3
Views: 1,084
Posted By CelesX
My son has a tufted angioma on his leg. When he...

My son has a tufted angioma on his leg. When he was 2 days old, they tried an MRI but it didn't work, so they did one the next day on anesthesia. He ended up having to stay in the NICU for one...
Forum: General Resources 04-18-2008, 03:36 AM
Replies: 1
Views: 1,958
Posted By CelesX
New to the boards, have question about vincristine

My son was born with a tufted angioma on his left ankle. They started treating him with steroids, because they believed it was a cavernous hemangioma. After a few months of the steroid treatment,...
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