Vascular Birthmarks Foundation Forum - Search Results
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Search Forums

Showing results 1 to 25 of 413
Search took 0.03 seconds.
Search: Posts Made By: smurph
Forum: Help and Resources for Hemangiomas 11-02-2014, 04:00 AM
Replies: 5
Views: 6
Posted By smurph
Hi there! I know how hard it can be to try to...

Hi there! I know how hard it can be to try to sift through the information and recommendations of the doctors and make a decision on what to do. I have been there myself. I would suggest taking...
Forum: Help and Resources for Hemangiomas 11-02-2014, 03:53 AM
Replies: 1
Views: 2
Posted By smurph
I am not sure what is the best way to approach...

I am not sure what is the best way to approach this. Perhaps you could email Basia Joyce (click on Ask the Experts) because she knows a lot about insurance questions, etc. She may be able to help!...
Forum: Help and Resources for Hemangiomas 11-02-2014, 03:45 AM
Replies: 4
Views: 5
Posted By smurph
Hi! What a cutie! It is hard to tell since they...

Hi! What a cutie! It is hard to tell since they are so light. I really can't say. I can just tell you that 3 of my girls have had hemangiomas and they all grew to be pretty dark by one month of age. ...
Forum: Help and Resources for Hemangiomas 11-02-2014, 03:40 AM
Replies: 2
Views: 3
Posted By smurph
Hi there! I agree with Missy. Hemangiomas don't...

Hi there! I agree with Missy. Hemangiomas don't just pop up when a child is 5 so it is likely to be something else.
Forum: Help and Resources for Hemangiomas 09-23-2014, 02:57 AM
Replies: 1
Views: 2
Posted By smurph
Hi there! Welcome! It is so difficult to predict...

Hi there! Welcome! It is so difficult to predict what will happen with each hemangioma...it's hard to know....so I think it mostly depends on your comfort level. If you feel comfortable letting it...
Forum: Help and Resources for Hemangiomas 09-17-2014, 09:59 PM
Replies: 1
Views: 2
Posted By smurph
I'm not sure I understand. So you were put on the...

I'm not sure I understand. So you were put on the medicine after he was born? If you were put on the medicine after he was born, I would say that it would not have any connection to the hemangioma...
Forum: Help and Resources for Hemangiomas 09-17-2014, 09:50 PM
Replies: 7
Views: 8
Posted By smurph
I'm pretty sure he will get back to you. He is...

I'm pretty sure he will get back to you. He is usually very good about it. Hopefully soon! Keep us posted!
Shannon
Forum: Help and Resources for Hemangiomas 09-17-2014, 01:57 AM
Replies: 7
Views: 8
Posted By smurph
Hi there! I think the best thing to do would be...

Hi there! I think the best thing to do would be to forward these pictures and reports to Dr. Levitin (look on the Ask the Expert page here) and perhaps he will be able to give you some guidance. ...
Forum: Help and Resources for Hemangiomas 09-06-2014, 09:23 PM
Replies: 5
Views: 6
Posted By smurph
Hi there! She is so adorable! You can email the...

Hi there! She is so adorable! You can email the other photos to Missy at
contact@birthmark.org
She can upload them for you. For me, it's so hard to tell from the pictures- I think a portwine stain...
Forum: Help and Resources for Hemangiomas 09-06-2014, 09:18 PM
Replies: 1
Views: 2
Posted By smurph
Hi there! It looks like it has involuted some...

Hi there! It looks like it has involuted some already and I bet it will continue to do so for the next few years. It's a slow process and it's hard to wait it out sometimes. I'm not sure what the...
Forum: Help and Resources for Hemangiomas 09-06-2014, 09:05 PM
Replies: 12
Views: 13
Posted By smurph
Hi there! For me, it's hard to say because my...

Hi there! For me, it's hard to say because my daughter's laser surgeries were much further down the road- she was 5 and 7 when she had them so it had involuted a lot on its own by then and the laser...
Forum: Help and Resources for Hemangiomas 08-05-2014, 03:42 AM
Replies: 12
Views: 13
Posted By smurph
Great news!!!! Let us know how it goes! :) ...

Great news!!!! Let us know how it goes! :) Thanks for the update.
Shannon
Forum: Help and Resources for Hemangiomas 07-26-2014, 02:17 PM
Replies: 19
Views: 20
Posted By smurph
Hi there! If you feel comfortable with the docs...

Hi there! If you feel comfortable with the docs recommendations then you can always watch it and see how it goes. I would suggest taking pictures of it regularly to document any...
Forum: Help and Resources for Hemangiomas 07-17-2014, 02:27 AM
Replies: 19
Views: 20
Posted By smurph
I'm glad you were able to get an appt. Just tell...

I'm glad you were able to get an appt. Just tell your concerns to the doctor about the propanolol. Good luck! Keep us posted! :) I will be thinking of you on the 24th.
Shannon
Forum: Help and Resources for Hemangiomas 07-14-2014, 08:34 PM
Replies: 4
Views: 5
Posted By smurph
I think the best thing to do is to talk to the...

I think the best thing to do is to talk to the doc that prescribed the Timolol and see if he/she can order it from the U.S. Hope that helps!
Shannon
Forum: Help and Resources for Hemangiomas 07-14-2014, 02:03 PM
Replies: 4
Views: 5
Posted By smurph
Hi there! I can try to look into this. Who...

Hi there! I can try to look into this. Who prescribed the propanolol? Did the same doctor prescribe the timolol cream?
Shannon
Forum: Help and Resources for Hemangiomas 07-11-2014, 10:21 PM
Replies: 19
Views: 20
Posted By smurph
Great news! :)

Great news! :)
Forum: Help and Resources for Hemangiomas 07-11-2014, 12:05 PM
Replies: 19
Views: 20
Posted By smurph
Hi there! I talked with the VBF Family Service...

Hi there! I talked with the VBF Family Service Director and she recommended you see:
Sophia J. Hendrick, MD
900 E. Woodland Avenue
Knoxville, TN 37917
(865) 524-7107
Treated children in Knoxville...
Forum: Help and Resources for Hemangiomas 07-11-2014, 02:24 AM
Replies: 19
Views: 20
Posted By smurph
Honestly, if it were me, I would not delay in...

Honestly, if it were me, I would not delay in seeing a specialist. I have seen people posting on here about ulcerations in the diaper area and they can be very painful and hard to get a handle on. ...
Forum: Help and Resources for Hemangiomas 07-11-2014, 02:12 AM
Replies: 12
Views: 13
Posted By smurph
Oh my goodness-She is so adorable!! I see what...

Oh my goodness-She is so adorable!! I see what you are saying about her hemangioma. Lips can be so tricky. Let us know how her appointment goes in a couple of weeks. Good luck and hope to hear from...
Forum: Help and Resources for Hemangiomas 07-10-2014, 02:29 PM
Replies: 19
Views: 20
Posted By smurph
My daughter's hand hemangioma was not as large as...

My daughter's hand hemangioma was not as large as your daughter's. The best way to explain I think would be to show you these pictures. Hopefully you will be able to see them. Let me know if you...
Forum: Help and Resources for Hemangiomas 07-10-2014, 01:31 AM
Replies: 12
Views: 13
Posted By smurph
Sometimes posting pictures on here is tricky for...

Sometimes posting pictures on here is tricky for some reason. Let me see if I can get Missy to help. I'm not sure if her lip sagged from the weight of the hemangioma or that it was like lumpy...
Forum: Help and Resources for Hemangiomas 07-09-2014, 04:27 AM
Replies: 19
Views: 20
Posted By smurph
I am not sure what is the best route to take. I...

I am not sure what is the best route to take. I would just say that many pediatricians encourage the wait and see approach which is sometimes certainly a viable option, but at other times it is good...
Forum: Help and Resources for Hemangiomas 07-09-2014, 01:10 AM
Replies: 12
Views: 13
Posted By smurph
Hi there! I just want to assure you that you are...

Hi there! I just want to assure you that you are NOT alone in any way. My daughter also had an upper lip hemangioma. She in 9 now but I remember the stress from when she was a baby like it was...
Forum: Help and Resources for Hemangiomas 07-09-2014, 12:38 AM
Replies: 19
Views: 20
Posted By smurph
I guess I was just wondering if it would be at...

I guess I was just wondering if it would be at risk at all for ulceration???? Is it in her diaper area at all? It might be a good idea to take pictures of it on a regular basis to show any...
Showing results 1 to 25 of 413

 
Forum Jump