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Search: Posts Made By: mrssied
Forum: Help and Resources for Hemangiomas 03-05-2012, 12:54 AM
Replies: 17
Views: 18
Posted By mrssied
her recovery is going great! I was really...

her recovery is going great! I was really surprised she healed as well as she has. It was a week Thursday and you can't even tell she had anything done. The swelling and stitches have dissolved in...
Forum: Help and Resources for Hemangiomas 02-24-2012, 07:17 PM
Replies: 3
Views: 4
Posted By mrssied
Surgery on lower lip H went well

My 2 year old (3 in May) just had surgery on Thursday on her divot left from her lower lip H. We decided to do it earlier than the suggested age of 4 or 5 because she had to have a nevus sebaceous...
Forum: Help and Resources for Hemangiomas 02-24-2012, 07:13 PM
Replies: 17
Views: 18
Posted By mrssied
my almost 3 year old just had surgery on Thursday...

my almost 3 year old just had surgery on Thursday to correct her lower lip H. It ulcerated at 3 months and was left with a very big circle divot and then a line scar up into her lip (looked like a...
Forum: Help and Resources for Hemangiomas 02-21-2012, 01:54 AM
Replies: 3
Views: 4
Posted By mrssied
thanks! I know it is tough trying to keep her...

thanks! I know it is tough trying to keep her and her sister from doing things this week since it is school vacation week.
Forum: Help and Resources for Hemangiomas 02-20-2012, 11:55 AM
Replies: 3
Views: 4
Posted By mrssied
surgery is Thursday....getting nervous

So my 2.5 yr old is going in for surgery on Thursday. Fingers crossed we don't get sick before then. SHe is getting a nevus sebaceous removed from her head and while she is under they suggested...
Forum: Help and Resources for Hemangiomas 02-20-2012, 11:51 AM
Replies: 5
Views: 6
Posted By mrssied
we didn't stay when they were monitoring my...

we didn't stay when they were monitoring my daughter. We had a 3 hour appointment and they wanted me to give the med at home, come in and tehy took vitals every hour until the dose was gone and I...
Forum: Help and Resources for Hemangiomas 01-26-2012, 04:59 PM
Replies: 3
Views: 4
Posted By mrssied
thanks so much for getting back to me and for...

thanks so much for getting back to me and for sharing the pictures of your beautiful daughter!
I was also thinking of trying to keep her healthy before the surgery and how I am going to do this...
Forum: Help and Resources for Hemangiomas 01-24-2012, 06:02 PM
Replies: 15
Views: 16
Posted By mrssied
my daughter had a similar H on her lower lip as...

my daughter had a similar H on her lower lip as well. It ulcerated at 3 months and looked about the same as your daughter's before ulcerating.
we put aquaphor on it as well.
Good Luck
Forum: Help and Resources for Hemangiomas 01-24-2012, 05:48 PM
Replies: 3
Views: 4
Posted By mrssied
Very nervous scheudled daughter surgery

My daughter will be 3 in May and has to have a small Nevus sebaceous removed from her scalp and the surgeon recommended fixing the scar left from her lower lip H removed at the same time since is...
Forum: Help and Resources for Hemangiomas 06-22-2011, 05:18 PM
Replies: 21
Views: 22
Posted By mrssied
my daughter who just turned 2 in May, has a lower...

my daughter who just turned 2 in May, has a lower lip H. It ulcerated at 3 months old and she is left with a scar in her lip. We just met with a surgeon yest. and she said she will smooth it out...
Forum: Help and Resources for Hemangiomas 10-20-2010, 12:24 AM
Replies: 2
Views: 3
Posted By mrssied
surgery on lower lip

Just wondering if anyone has before and after pictures of a lower lip H that they had removed. My daughter's H ulcerated at 3 months old, and she now has scarring on her lower lip. I am not sure if...
Forum: Help and Resources for Hemangiomas 02-28-2010, 05:06 PM
Replies: 3
Views: 4
Posted By mrssied
we are in RI and seeing Dr. Bercovitch who is a...

we are in RI and seeing Dr. Bercovitch who is a Pedi Derm. She will continue on the P for another 10 weeks and then start to wean off. This will bring her to a year old.
Forum: Help and Resources for Hemangiomas 02-25-2010, 08:41 PM
Replies: 3
Views: 4
Posted By mrssied
laser treatments and surgery

I know each insurance is different but are these normally covered? We are still on propranoral but I think from the ulceration, surgery maybe needed to correct.
Forum: Help and Resources for Hemangiomas 01-07-2010, 03:29 PM
Replies: 5
Views: 6
Posted By mrssied
yes, isn't the growing phase from 6-12 months. ...

yes, isn't the growing phase from 6-12 months. It does look great with the med, and if I forget or give it late, it just puffs a little but not much. I still am worried. I guess time will tell, we...
Forum: Help and Resources for Hemangiomas 01-06-2010, 06:13 PM
Replies: 5
Views: 6
Posted By mrssied
stopping proranolol questions

my daughter is 8 months and has been on propranolol since about 5 months.She has been off of the oral steroid for a week now. At her last appt. the derm said we will come back in 7 weeks and he...
Forum: Help and Resources for Hemangiomas 12-31-2009, 02:47 AM
Replies: 7
Views: 167
Posted By mrssied
He looks wonderful! thanks for sharing

He looks wonderful! thanks for sharing
Forum: Help and Resources for Hemangiomas 12-31-2009, 02:43 AM
Replies: 6
Views: 57
Posted By mrssied
My daughter started with oral steroids at 3...

My daughter started with oral steroids at 3 months and we just weaned off them at almost 8 months. She started the propranrol at 5 months and it is wonderful. We will be off of the oral for a week...
Forum: Help and Resources for Hemangiomas 11-13-2009, 05:31 PM
Replies: 10
Views: 1,778
Posted By mrssied
I just asked this at my daughters 6month...

I just asked this at my daughters 6month check-up. She is not sleeping through the night yet, but is close and it was my concern feed or not feed when she wakes. He said it is ok to let her sleep.
Forum: Help and Resources for Hemangiomas 11-04-2009, 05:25 PM
Replies: 6
Views: 799
Posted By mrssied
that is funny you mentioned teh Nuk bottle cause...

that is funny you mentioned teh Nuk bottle cause that is the only one my daughter will take. Her lip ulcerated at 3 months and has healed ..we put aquaphor on it to help
Forum: Help and Resources for Hemangiomas 11-04-2009, 05:23 PM
Replies: 6
Views: 511
Posted By mrssied
I would so love the 2x a day as well. We went to...

I would so love the 2x a day as well. We went to the derm today and I asked him about teh hr spacing and he said as close to 8 hrs as I can get but not to worry if I can't do it.
Forum: Help and Resources for Hemangiomas 10-30-2009, 04:57 PM
Replies: 6
Views: 511
Posted By mrssied
propranolol users

my almost 6 month old is switching her schedule and it is getting more difficult to give the dose 8 hrs apart. We used to do 7am (wake-up) 1pm(nap) and then 8pm (final dose) But now she is still...
Forum: Help and Resources for Hemangiomas 10-26-2009, 12:33 AM
Replies: 0
Views: 230
Posted By mrssied
Propranolol and spit up

it seems like my daughter is spitting up a night after I give her the med. I am not sure if I should give her another dose or not. Or maybe give her the dose and then feed her after 10 min. How do...
Forum: Help and Resources for Hemangiomas 10-26-2009, 12:32 AM
Replies: 7
Views: 731
Posted By mrssied
we are giving 1 and 1/4 ml every 8 hrs. so 3 x's...

we are giving 1 and 1/4 ml every 8 hrs. so 3 x's a day
Forum: Help and Resources for Hemangiomas 10-26-2009, 12:29 AM
Replies: 3
Views: 348
Posted By mrssied
so I have never met with him but have emailed him...

so I have never met with him but have emailed him and he is very nice and offered his options and support on my questions.
Forum: Help and Resources for Hemangiomas 10-26-2009, 12:27 AM
Replies: 7
Views: 581
Posted By mrssied
my almost 6 months old daughter has been on Prop...

my almost 6 months old daughter has been on Prop for about 4 weeks and it has worked great. Her H is on her lower lip and it has returned to lip color and shrunk her lip.
She should be on this for...
Showing results 1 to 25 of 40

 
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