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Search: Posts Made By: cheryl&brooke
Forum: Help and Resources for Hemangiomas 05-15-2011, 08:27 PM
Replies: 6
Views: 7
Posted By cheryl&brooke
Skip

Hi

So sorry only just seen your message. I have sent you an email to the address you left.

More than happy to speak to you. I wish you son well.

Cheryl & Brooke
Forum: Help and Resources for Hemangiomas 04-13-2011, 09:02 PM
Replies: 6
Views: 7
Posted By cheryl&brooke
Smile Success treatment is finished

Hi All

We have not posted for sometime. I wanted to share out wonderful news with you all.

My daughter Brooke was born with KHE down her throat and accross her face, after 3 1/2 year of steriod...
Forum: Help and Resources for Hemangiomas 02-01-2010, 01:00 PM
Replies: 16
Views: 17
Posted By cheryl&brooke
Hi Just saw your post, my daughter Brooke was...

Hi

Just saw your post, my daughter Brooke was born with a very large KHE down her throat and accross her face. She had very bad platlet trapping and had to go on a ventilator for a while due to...
Forum: Help and Resources for Hemangiomas 07-29-2009, 10:06 AM
Replies: 4
Views: 971
Posted By cheryl&brooke
Brooke

Hi

My daughter was diagnoised with KHE at birth which is down her throat and removal is not an option her hemangioma was much larger than your daughters and was very visable across one whole side...
Forum: Help and Resources for Hemangiomas 07-29-2009, 09:44 AM
Replies: 11
Views: 1,322
Posted By cheryl&brooke
Hello janieb and Donna Hello I have just seen...

Hello janieb and Donna

Hello I have just seen you post. My daughter Brooke was diagnoised with heminagoma (KHE) at birth which is down her throat and across her face and we live in birmingham so...
Forum: Help and Resources for Hemangiomas 09-23-2008, 11:59 AM
Replies: 4
Views: 985
Posted By cheryl&brooke
Help

Hi

sorry to hear about your granddaughter, my daughter only has one large internal hemangioma so is very different to your experience.

The only help I can offer is another website the link...
Forum: Help and Resources for Hemangiomas 09-19-2008, 07:44 PM
Replies: 7
Views: 1,294
Posted By cheryl&brooke
Brooke

Hi
Glad to hear you son is doing better. Brookes count when down very low to under 1,000. I actually had to stop platelets being given as they were increasing the size of her H due to it being...
Forum: Help and Resources for Hemangiomas 09-15-2008, 07:51 PM
Replies: 7
Views: 1,294
Posted By cheryl&brooke
Brooke

Hi

So glad you managed to find a surgeon to do a port.

Brooke was given vincristine for 10 months, we noticed a change in her hemangioma after about 2 weeks, it started to get softer. By the time...
Forum: Help and Resources for Hemangiomas 09-14-2008, 08:19 PM
Replies: 7
Views: 1,294
Posted By cheryl&brooke
Brooke

Hello

My daughter Brooke is 14 months old now. She was born with a Hemangioma down her throat, also with kasabach merrit syndrome. Brooke was on high steriod from birth, which much like your story...
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