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Search: Posts Made By: EJsMommy
Forum: Help and Resources for Hemangiomas 06-16-2010, 04:00 AM
Replies: 6
Views: 7
Posted By EJsMommy
WOW! So many of your little ones had them,...

WOW! So many of your little ones had them, that's very interesting! I thought it was strange that both my girls had it too, considering I always read that it's rare!

Thank you for the kind words...
Forum: Help and Resources for Hemangiomas 06-16-2010, 02:43 AM
Replies: 6
Views: 7
Posted By EJsMommy
Thank you! I'm hoping to find some info out...

Thank you!

I'm hoping to find some info out about this steroid... But everything I'm reading is quite vague :(
Forum: Help and Resources for Hemangiomas 06-16-2010, 02:25 AM
Replies: 6
Views: 7
Posted By EJsMommy
Wow, it's been a LONG time! First baby had H excised, second baby born with large H!

Hi everyone, it's been a VERY (too long) time since I've been on here.

About 2 years ago, Dr's Waner and Levitin worked their magic on my Oldest daughter, Eva. She had a large Hemangioma on her...
Forum: Help and Resources for Hemangiomas 06-19-2008, 05:20 AM
Replies: 1
Views: 856
Posted By EJsMommy
Regrowth after excision?

My daughter had her H excised by Drs Waner and Levitin on May 15 2008. This morning, I noticed a bump where the H used to be, and when I pass my hand over it, I can feel it. I am trying not to...
Forum: Help and Resources for Hemangiomas 06-04-2008, 05:17 AM
Replies: 2
Views: 859
Posted By EJsMommy
Looks like you have most of it covered. Dr....

Looks like you have most of it covered. Dr. Levitin is VERY thorough and will most likely answer your questions before you even get a chance to ask them. He's great and easy to talk to as well.
Forum: Help and Resources for Hemangiomas 06-04-2008, 05:16 AM
Replies: 8
Views: 999
Posted By EJsMommy
I had no Amnio, and had a daughter with a...

I had no Amnio, and had a daughter with a Hemangioma.
Forum: Help and Resources for Hemangiomas 05-25-2008, 07:39 PM
Replies: 4
Views: 1,163
Posted By EJsMommy
Talking 11 Days Post Op - Pics!

Our baby girl had her H removed by Dr's Waner and Levitin on Thursday, May15th. She did very well with the surgery, woke up from the Anesthesia smiling, and was acting like her normal self almost...
Forum: Help and Resources for Hemangiomas 05-25-2008, 11:45 AM
Replies: 3
Views: 969
Posted By EJsMommy
I went to NYC all the way from Guam to have my...

I went to NYC all the way from Guam to have my daughter treated by Dr's Waner and Levitin. They did a wonderful job (we are now 10 days post op).

Best of luck!
Forum: Help and Resources for Hemangiomas 05-25-2008, 11:43 AM
Replies: 6
Views: 822
Posted By EJsMommy
Wonderful! I'm glad she recovered so smoothly...

Wonderful! I'm glad she recovered so smoothly and is doing so well! We'd love photos :)
Forum: Help and Resources for Hemangiomas 05-09-2008, 04:37 AM
Replies: 9
Views: 1,434
Posted By EJsMommy
My situation

My daughter (Eva), has a Hemangioma as well. At first hers looked like Ava's, but grew and grew and grew. She is having it removed next week (thursday) and in my opinion that is what's best for...
Forum: Help and Resources for Hemangiomas 05-09-2008, 04:29 AM
Replies: 6
Views: 1,284
Posted By EJsMommy
She is so cute

She is so beautiful. I hope the doctors give you some good news. Please don't give up!!!! She's so cute.
Forum: Help and Resources for Hemangiomas 05-07-2008, 12:54 AM
Replies: 16
Views: 2,198
Posted By EJsMommy
Hi Sara, You should document the Hemangioma and...

Hi Sara,

You should document the Hemangioma and its growth with photos and send any info you can to a specialist in Vascular Anomalies. I am going to see Dr. Waner (the best there is) for treatment...
Forum: Help and Resources for Hemangiomas 05-05-2008, 04:29 AM
Replies: 4
Views: 1,167
Posted By EJsMommy
Forehead Hemangioma Excision-Next week with Dr. Waner!

Hi everyone,
Next week my daughter is scheduled for an Excision of her forehead Hemangioma. I am comfortable with Dr. Waners reputation, but I am SO nervous about the whole thing. I will post...
Forum: Help and Resources for Hemangiomas 04-11-2008, 10:23 PM
Replies: 3
Views: 965
Posted By EJsMommy
Lightbulb apts

there are dorms for Beth Israel as well. I am staying there in May for my daughter's excision. Perhaps you could stay there? Cheryl told me there's a shuttle as well, in case you need to get back...
Forum: Twins With Birthmarks 04-11-2008, 10:19 PM
Replies: 12
Views: 6,447
Posted By EJsMommy
That is so heartbreaking. Although rare, these...

That is so heartbreaking. Although rare, these things can happen with Hemangiomas and doctors don't validate that possibility when it comes to treating these lesions. I have fought with my...
Forum: Help and Resources for Hemangiomas 04-08-2008, 12:19 PM
Replies: 43
Views: 7,084
Posted By EJsMommy
That looks like a Hemangioma to me! They go away...

That looks like a Hemangioma to me! They go away over time, but there's no telling how long it'll take to go away, and what the cosmetic outcome will be. There are treatment options, including...
Forum: Help and Resources for Hemangiomas 04-04-2008, 05:05 AM
Replies: 4
Views: 1,106
Posted By EJsMommy
Good Luck... I hope it goes well!!!

Good Luck... I hope it goes well!!!
Forum: Help and Resources for Hemangiomas 04-03-2008, 03:26 AM
Replies: 4
Views: 1,106
Posted By EJsMommy
Hi

I don't know what the procedure is with your particular insurance, but just keep in mind there is always a way. If your daughter's doctors won't refer you to a Hemangioma specialist, you can request...
Forum: Help and Resources for Hemangiomas 04-01-2008, 01:47 AM
Replies: 1
Views: 850
Posted By EJsMommy
I don't believe her touching it actually...

I don't believe her touching it actually stimulates growth. However, she could potentially scratch it. My daughter grabs her Hemangioma all the time, and I have to watch her to prevent her from...
Forum: Help and Resources for Hemangiomas 03-31-2008, 04:33 AM
Replies: 6
Views: 1,205
Posted By EJsMommy
Red face yay

Hi everyone

Thanks for the info, insurance is going to cover it! Whew. :)

Eva's surgery is scheduled for mid-may... I'm so excited AND nervous at the same time!
Forum: Help and Resources for Hemangiomas 03-28-2008, 04:12 AM
Replies: 4
Views: 1,001
Posted By EJsMommy
Thumbs down IMO, Docs are too passive

In my opinion, they need to take your baby's multiple H's very seriously. I had to be agressive with seeking my daughter's treatment because her pediatricians/opthamologists/dermatologists said the...
Forum: Help and Resources for Hemangiomas 03-27-2008, 01:06 PM
Replies: 7
Views: 1,690
Posted By EJsMommy
Thumbs up cute

Very cute... I like the cute little Clown Hospital Gown!! :p
Forum: Help and Resources for Hemangiomas 03-27-2008, 01:10 AM
Replies: 7
Views: 1,690
Posted By EJsMommy
yipeeee

Congrats! I'm glad to hear all went well! Best of luck with recovery :)
Forum: Help and Resources for Hemangiomas 03-26-2008, 06:11 AM
Replies: 2
Views: 833
Posted By EJsMommy
Talking Upcoming Surgery!

Hi!

I have finally succeeded in obtaining approval from my insurance for the treatment and surgical excision of my daughter's Hemangioma. ::Throws Confetti:: YES!

I am happy, but so very nervous...
Forum: Help and Resources for Hemangiomas 03-26-2008, 05:54 AM
Replies: 9
Views: 1,183
Posted By EJsMommy
Cool Watery Eye

My daughter has a Hemangioma above her right eye and her eye waters a lot too!!! My docs wouldn't order an MRI to confirm that the tear duct was affected, but it doesn't take a rocket-scientist to...
Showing results 1 to 25 of 37

 
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