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Search: Posts Made By: missy
Forum: Help and Resources for Hemangiomas 01-29-2015, 06:33 PM
Replies: 8
Views: 9
Posted By missy
Yes, he's pretty awesome all around and we are...

Yes, he's pretty awesome all around and we are lucky to have him as a resource!

Good news! Let us know what happens!

Missy
Forum: Help and Resources for Hemangiomas 01-28-2015, 04:16 PM
Replies: 8
Views: 9
Posted By missy
If you are seeing Dr. Levitin, you are in the...

If you are seeing Dr. Levitin, you are in the best hands, so you don't have to worry anymore.

Let us know what he says, though. I'd be interested to hear his diagnosis.

Missy
Forum: Help and Resources for Hemangiomas 01-28-2015, 04:14 PM
Replies: 1
Views: 2
Posted By missy
Hi! There are other parents around here who did...

Hi!

There are other parents around here who did use timolol, some with great results. Side effects of this medicine are very rare and if you will monitor her blood pressure, I think you will be...
Forum: Help and Resources for Hemangiomas 01-26-2015, 04:04 PM
Replies: 8
Views: 9
Posted By missy
Seven weeks is kind of late. Any chance you did...

Seven weeks is kind of late. Any chance you did not carry him to term?

You need to have that evaluated by a good physician.

Missy
Forum: Port Wine Stain Help and Resources 01-26-2015, 04:01 PM
Replies: 1
Views: 2
Posted By missy
Hi and welcome! You should really call your...

Hi and welcome!

You should really call your doctor and ask. At least speak to the nurse there. Any chance you can reschedule the laser? I would be hesitant to risk makeup right after.

Let us...
Forum: Help and Resources for Hemangiomas 01-25-2015, 07:22 PM
Replies: 14
Views: 617
Posted By missy
Please do let us know what the dermatologist says...

Please do let us know what the dermatologist says and good luck!!

Missy
Forum: Help and Resources for Hemangiomas 01-25-2015, 07:21 PM
Replies: 8
Views: 9
Posted By missy
Hi and welcome! Very possibly, that might be the...

Hi and welcome!

Very possibly, that might be the beginnings of a hemangioma. How old is he and how old was he when you first noticed it?

Missy
Forum: Announcements 01-25-2015, 07:20 PM
Replies: 0
Views: 1
Posted By missy
SWS study participants needed

Please see http://birthmark.org/node/323 for more information!
Forum: Help and Resources for Hemangiomas 01-22-2015, 04:06 PM
Replies: 14
Views: 617
Posted By missy
Here ya go!

Here ya go!
Forum: Announcements 01-21-2015, 11:31 PM
Replies: 0
Views: 37
Posted By missy
Study participants with PWS needed

The Department of Dermatology at the University of California, Irvine is

conducting a research study evaluating the use of an investigational treatment

for port wine stains.

Study Title: Novel...
Forum: Help and Resources for Hemangiomas 01-21-2015, 03:48 PM
Replies: 2
Views: 56
Posted By missy
Hi and welcome! Other than keeping him...

Hi and welcome!

Other than keeping him comfortable, no real tips. Your physician should tell you what to do post treatment. You might be surprised at how well he does afterwards....many parents...
Forum: Help and Resources for Hemangiomas 01-14-2015, 03:57 PM
Replies: 0
Views: 158
Posted By missy
Need for study participants for hemangioma study - babies under 1 year

from http://birthmark.org/node/319

Curtis Analytic Partners, Inc, (CAP) a global marketing research and consulting company located in Philadelphia, PA, is conducting a study on the topic of...
Forum: Announcements 01-14-2015, 03:56 PM
Replies: 0
Views: 189
Posted By missy
Urgent Need for Participants for Hemangioma Study - babies under 1 year

http://birthmark.org/node/319

Curtis Analytic Partners, Inc, (CAP) a global marketing research and consulting company located in Philadelphia, PA, is conducting a study on the topic of infantile...
Forum: Help and Resources for Hemangiomas 01-14-2015, 03:34 PM
Replies: 2
Views: 156
Posted By missy
Hi and welcome! Congratulations on your new...

Hi and welcome!

Congratulations on your new baby!!!

While it is unusual, yes, I have seen a couple like that and your physician may very well be correct. You are welcome to get in touch with one...
Forum: Help and Resources for Hemangiomas 01-05-2015, 05:34 AM
Replies: 3
Views: 364
Posted By missy
Hi and welcome! I honestly can't tell. I think...

Hi and welcome!

I honestly can't tell. I think you might feel better if it were evaluated by a professional. What has your child's doctor said about it?

You could email that to one of the experts...
Forum: Youth and Teen Support 12-26-2014, 06:25 PM
Replies: 3
Views: 355
Posted By missy
Hi Brad, I posted this and then went to make a...

Hi Brad,

I posted this and then went to make a new pot of coffee, but I kept wondering if I worded my reply correctly. I think it might sound as if we don't want to hear from you unless you decide...
Forum: Youth and Teen Support 12-26-2014, 05:49 PM
Replies: 3
Views: 355
Posted By missy
Hi and welcome! Thank you very much for your...

Hi and welcome!

Thank you very much for your offer of support. Please do keep in touch!

Keep us updated and let us know if you ever do decide to seek treatment.

Missy
Forum: Port Wine Stain Help and Resources 12-08-2014, 04:08 PM
Replies: 5
Views: 580
Posted By missy
First, write to Dr. Linda from...

First, write to Dr. Linda from http://www.birthmark.org/node/46 and see if she can suggest a physician in India. I know we could find someone in the US, but Dr. Linda will know someone in your...
Forum: Port Wine Stain Help and Resources 12-07-2014, 03:57 PM
Replies: 5
Views: 580
Posted By missy
Hi and welcome! Where are you located? Perhaps...

Hi and welcome!

Where are you located? Perhaps we can find a doctor to help you.

Missy
Forum: Help and Resources for Hemangiomas 12-03-2014, 04:13 PM
Replies: 1
Views: 472
Posted By missy
I don't know of anyone in Cape Town, I'm...

I don't know of anyone in Cape Town, I'm sorry.

Please do send the photo to one of our experts at

http://birthmark.org/experts.php and they will try to help you.

congratulations on your new...
Forum: Port Wine Stain Help and Resources 12-02-2014, 04:05 PM
Replies: 1
Views: 436
Posted By missy
Hi and welcome! Have you read this? ...

Hi and welcome!

Have you read this? http://birthmarks.com/Index.cfm?Page=33

Are birthmarks genetic?As of May 8, 2013, with the publishing of research in the New England Journal of Medicine, there...
Forum: Help and Resources for Hemangiomas 11-18-2014, 06:00 PM
Replies: 1
Views: 744
Posted By missy
Hi and welcome! Was your daughter born with this...

Hi and welcome!

Was your daughter born with this or is this something that has come up recently? Generally, hemangioma are present at birth and grow for the first year or so and then stop growing...
Forum: Port Wine Stain Help and Resources 11-16-2014, 04:37 AM
Replies: 1
Views: 543
Posted By missy
Hi and welcome! It looks like a port wine stain,...

Hi and welcome!

It looks like a port wine stain, but you do need to go to see a specialist for a solid diagnosis.

Congratulations on your daughter! Enjoy!

Missy
Forum: AVM Help and Resources 11-12-2014, 04:18 PM
Replies: 2
Views: 870
Posted By missy
Also, is she having any ear pain? Or even...

Also, is she having any ear pain? Or even numbness?

Missy
Forum: AVM Help and Resources 11-12-2014, 04:16 PM
Replies: 2
Views: 870
Posted By missy
Bless her heart. I have some nerve damage in one...

Bless her heart. I have some nerve damage in one side of my face that also affects my smile, and I know how hard that is!

Is she having any other symptoms you might not have thought about? I often...
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