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1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
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Search: Posts Made By: Jaja Krijesnica
Forum: Port Wine Stain Help and Resources 08-12-2012, 08:24 PM
Replies: 13
Views: 14
Posted By Jaja Krijesnica
Hi nataliegrace, I wrote about my daughter she...

Hi nataliegrace,

I wrote about my daughter she has PWS on the right leg, buttocks, tongue, lower lip and forehead, also the right leg is thinner and shorter, about 1.5 cm.
Exploring all the...
Forum: Port Wine Stain Help and Resources 07-26-2012, 08:45 PM
Replies: 13
Views: 14
Posted By Jaja Krijesnica
Unhappy I am mom of 20 month old girl in Croatia. She...

I am mom of 20 month old girl in Croatia. She has born with birthmark PWS on her right leg, lower lip,tounge and forehead. Her right leg is thinner and shorter and has varicose veins. We Controlled...
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