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Search: Posts Made By: samanthasmom
Forum: Port Wine Stain Help and Resources 11-15-2007, 12:20 PM
Replies: 11
Views: 2,923
Posted By samanthasmom
In my experience with Samantha's treatments it...

In my experience with Samantha's treatments it absolutely looks darker/more red for a few weeks afterwards. I will give you an example...

Sam had her last laser treatment on Sept. 14. Her first...
Forum: Port Wine Stain Help and Resources 11-12-2007, 02:16 PM
Replies: 11
Views: 2,923
Posted By samanthasmom
It usually takes about 2 1/2 weeks until my...

It usually takes about 2 1/2 weeks until my daughter's "spots" completely fade. I notice that it takes a good 4-6 weeks after each treatment for us to notice fading of the birthmark itself. From what...
Forum: Port Wine Stain Help and Resources 11-08-2007, 01:13 PM
Replies: 6
Sws
Views: 1,380
Posted By samanthasmom
Thanks. I really do try not to worry, but some...

Thanks. I really do try not to worry, but some days it gets the best of me. She really will be fine. As with everything, we just have to be patient and positive.

Speaking of Josie's gums, how is...
Forum: Port Wine Stain Help and Resources 11-02-2007, 01:14 PM
Replies: 6
Sws
Views: 1,380
Posted By samanthasmom
Thank you so much for your well wishes. I really...

Thank you so much for your well wishes. I really appreciate it. Sam is doing really well. We just keep our fingers crossed and continue to give her lots of love!

We noticed her first three seizures...
Forum: Port Wine Stain Help and Resources 10-30-2007, 01:29 PM
Replies: 6
Sws
Views: 1,380
Posted By samanthasmom
Sws

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I've been reluctant to do this, but I want to update you all on Samantha. She had her 3rd laser treatment in...
Forum: Port Wine Stain Help and Resources 10-09-2007, 01:15 PM
Replies: 2
Views: 1,073
Posted By samanthasmom
Jen, When our daughter has her treatments they...

Jen,

When our daughter has her treatments they are usually in the afternoon so she at least gets to load up on breakfast before fasting. She did have to get an MRI under anesthesia at 3 months. It...
Forum: Port Wine Stain Help and Resources 09-13-2007, 12:40 PM
Replies: 7
Views: 1,333
Posted By samanthasmom
I agree. My daughter has an extensive PWS and...

I agree. My daughter has an extensive PWS and goes under GA for treatment. The whole experience causes her dad and I more pain than it does to her. It amazes me that just five or so minutes after...
Forum: Port Wine Stain Help and Resources 09-13-2007, 12:30 PM
Replies: 8
Views: 1,778
Posted By samanthasmom
My daughter has markings on the same areas of her...

My daughter has markings on the same areas of her body that you described. She also has PWS on her face. She has had two laser treatments and the last time they tested a patch on her arm. That...
Forum: Port Wine Stain Help and Resources 08-22-2007, 01:24 PM
Replies: 12
Views: 3,221
Posted By samanthasmom
Thanks to everyone for all of these posts....

Thanks to everyone for all of these posts. Sometimes I feel guilty for some of my feelings over the past few months and seeing that I am not alone is very comforting and helps me a lot.

When our...
Forum: Port Wine Stain Help and Resources 08-15-2007, 07:26 PM
Replies: 15
Views: 3,338
Posted By samanthasmom
We had our daughter at a pediatric dentist...

We had our daughter at a pediatric dentist recently. We were concerned because her teeth on the overgrown side were coming out one after the other and the opposite side teeth were slower to come...
Forum: Port Wine Stain Help and Resources 08-15-2007, 01:12 AM
Replies: 16
Views: 4,896
Posted By samanthasmom
We were given a low dose hydrocortisone to use...

We were given a low dose hydrocortisone to use after laser treatments and told we could also use Vaseline. I recently read somewhere online that the use of hydrocortisone can cause hypopigmentation...
Forum: Port Wine Stain Help and Resources 08-06-2007, 01:46 PM
Replies: 16
Views: 4,896
Posted By samanthasmom
I am just wondering have you noticed any...

I am just wondering have you noticed any lightening of her skin tone in the areas where she had her laser treatment? Since her second treatment my daughter's normal skin tone seems lighter than the...
Forum: Port Wine Stain Help and Resources 07-30-2007, 02:39 PM
Replies: 16
Views: 4,896
Posted By samanthasmom
Wow!That really gives me hope. (She's a cutie...

Wow!That really gives me hope. (She's a cutie pie!)

My daughter has the white spots too. They have only treated her neck, chest and affected arm once. In comparison to the rest of her we have...
Forum: Port Wine Stain Help and Resources 06-18-2007, 05:35 PM
Replies: 15
Views: 3,338
Posted By samanthasmom
We've tried it all. Baby Orajel is a must these...

We've tried it all. Baby Orajel is a must these days! We just do all we can to help her and wait for it to pass...
Forum: Port Wine Stain Help and Resources 06-18-2007, 12:24 PM
Replies: 15
Views: 3,338
Posted By samanthasmom
Just wanted to post a little update for those...

Just wanted to post a little update for those searching on this thread. ...

My daughter is now teething full speed ahead! It is very painful for her, but I don't know if it would be less painful if...
Forum: Port Wine Stain Help and Resources 05-23-2007, 01:51 AM
Replies: 16
Views: 4,896
Posted By samanthasmom
I agree. My daughter just had her second...

I agree. My daughter just had her second treatment last Monday and it looks so red for the first few weeks. Last time it wasn't until maybe week six that we noticed obvious fading. I attached some...
Forum: Port Wine Stain Help and Resources 05-17-2007, 12:13 PM
Replies: 15
Views: 3,338
Posted By samanthasmom
I'm with you both... I have struggled with the...

I'm with you both... I have struggled with the fact that most of the syndromes associated with PWS can present up to a few years of age. You can be so happy and carefree one day and then the fear can...
Forum: Port Wine Stain Help and Resources 05-14-2007, 12:45 PM
Replies: 15
Views: 3,338
Posted By samanthasmom
Has your son started teething yet? Samantha is...

Has your son started teething yet? Samantha is now seven months old and has her bottom two and one top tooth. The other top one is starting to make it's way down. Now that her teeth have started...
Forum: Port Wine Stain Help and Resources 05-07-2007, 07:01 PM
Replies: 19
Views: 3,159
Posted By samanthasmom
Smile Your little girls are ADORABLE! My daughter has...

Your little girls are ADORABLE!

My daughter has a similar PWS except she has patches on her head and it extends on to her neck and chest. She had and MRI of her brain with contrast at three months...
Forum: Port Wine Stain Help and Resources 02-23-2007, 01:45 AM
Replies: 9
Views: 1,649
Posted By samanthasmom
Hi. I just want to say that I know how you feel....

Hi. I just want to say that I know how you feel. I am the mom who can't fix my daughter's PWS. I am married to the dad who can't fix it either.

When Sam was first born it was a complete shock to...
Forum: Port Wine Stain Help and Resources 02-21-2007, 06:04 PM
Replies: 15
Views: 3,338
Posted By samanthasmom
Issues with gums

My 4 month old, Samantha, has extensive port wine stains on the right side of her face, her neck, chest, arms and legs. They are very light and lacey looking. We went through all sorts of testing...
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