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Search: Posts Made By: kelly007
Forum: AVM Help and Resources 08-02-2015, 02:56 AM
Replies: 0
Views: 1
Posted By kelly007
lower lip hemangioma / VM

Hi everyone

Not sure where we fit into on these forums - hemangioma (as we were always led to believe) or VM.

My 7 year old daughter was two weeks old when a beard distribution of hemangiomas...
Forum: Help and Resources for Hemangiomas 08-02-2015, 12:08 AM
Replies: 4
Views: 2,576
Posted By kelly007
Hi there. Just wondered what happened about your...

Hi there. Just wondered what happened about your little boy's regrowth? We were always told my daughters lower lip hemangioma was a H but its started regrowing so now we are facing the possibility...
Forum: Help and Resources for Hemangiomas 08-01-2015, 11:43 PM
Replies: 10
Views: 3,038
Posted By kelly007
Hi there. This is an older thread but just...

Hi there. This is an older thread but just wondering if any of you could contact me regarding how you got on with your childrens hemangiomas. My daughter has one in the same spot. We are...
Forum: Help and Resources for Hemangiomas 08-01-2015, 08:42 PM
Replies: 5
Views: 6
Posted By kelly007
Dr Linda Rozzell is looking into it for me. Thanks

Dr Linda Rozzell is looking into it for me. Thanks
Forum: Help and Resources for Hemangiomas 08-01-2015, 08:39 PM
Replies: 5
Views: 6
Posted By kelly007
Hi Shannon I remember talking to you years ago...

Hi Shannon
I remember talking to you years ago about this. Thanks for message. I feel so depressed about this. Never thought I would have to go through all this again.

It never involuted or shrunk...
Forum: Help and Resources for Hemangiomas 08-01-2015, 05:05 AM
Replies: 5
Views: 6
Posted By kelly007
Yes. Gutted to be having to worry about this all...

Yes. Gutted to be having to worry about this all over again. The only thing that kept me sane all those years ago was the fact one day it would be sorted with an op. I will send an email to one of...
Forum: Help and Resources for Hemangiomas 08-01-2015, 04:55 AM
Replies: 5
Views: 6
Posted By kelly007
Hi there. I have just posted something similar....

Hi there. I have just posted something similar. My 7yo daughters lower lip H has started re growing but she has been stable for years and never been on meds . Sorry no help but interested in any...
Forum: Help and Resources for Hemangiomas 08-01-2015, 04:46 AM
Replies: 5
Views: 6
Posted By kelly007
Lower lip hemangioma or poss VM 7.5 yr old daughter

Hi everyone

I haven't been on here for years.

My now 7.5 yo daughter had a full lower lip hemangioma show up at 2 weeks. It grew not hugely but enough to ulcerate and leave a divit on her lip. It...
Forum: Help and Resources for Hemangiomas 12-07-2011, 09:06 PM
Replies: 21
Views: 9,490
Posted By kelly007
Hi everyone, thanks for all your emails. I...

Hi everyone, thanks for all your emails. I havent been able to get back on here for a while so missed a couple of them. As an update- Lauren is going to have surgery mid next year so hopefully her...
Forum: Help and Resources for Hemangiomas 07-06-2011, 08:28 AM
Replies: 3
Views: 2,367
Posted By kelly007
Hi there, my daughter Lauren has beard...

Hi there, my daughter Lauren has beard distribution hemangiomas which were in her airway, on her lower gums, under her tongue and entire lower lip. I did read somewhere a few years ago that...
Forum: Help and Resources for Hemangiomas 07-01-2011, 03:12 AM
Replies: 21
Views: 9,490
Posted By kelly007
Hi again everyone, we have an appointment on the...

Hi again everyone, we have an appointment on the 7th with a surgeon to discuss options for Lauren's lip ....finally in NZ they are saying its time to correct it before school YAY! Will keep you...
Forum: Help and Resources for Hemangiomas 06-23-2011, 10:14 AM
Replies: 21
Views: 9,490
Posted By kelly007
Mrssied, your little girl's hemangioma on her lip...

Mrssied, your little girl's hemangioma on her lip is very similar to Laurens. It is hard to know what to do, do you leave well enough alone or try to make it a bit better? Laurens lip is part of...
Forum: Help and Resources for Hemangiomas 06-22-2011, 03:23 AM
Replies: 21
Views: 9,490
Posted By kelly007
Thanks Shannon. I did actually email one of the...

Thanks Shannon. I did actually email one of the doctors about a week ago and havent heard back from her. It wasnt one of the ones you suggested though so I may send an email to them again now. ...
Forum: Help and Resources for Hemangiomas 06-17-2011, 03:52 AM
Replies: 11
Views: 6,360
Posted By kelly007
Hi there, sorry this is years later .... I have...

Hi there, sorry this is years later .... I have just stumbled upon your post. Your daughter's lip is exactly the same as my daughters. I was just wondering how you got on and what it looks like...
Forum: Help and Resources for Hemangiomas 06-15-2011, 08:40 AM
Replies: 21
Views: 9,490
Posted By kelly007
Shannon - your little girl is simply gorgeous :) ...

Shannon - your little girl is simply gorgeous :) Thanks for sharing your pics with me. Would you mind telling me what kind of surgery Faith had? How did they do the rebulking (turned lip inside...
Forum: Help and Resources for Hemangiomas 06-15-2011, 08:34 AM
Replies: 21
Views: 9,490
Posted By kelly007
Hi there, thanks so much for your replies. I am...

Hi there, thanks so much for your replies. I am trying to upload a pic but am having a bit of difficulty - hopefully it attaches here for you. Kelly :)
Forum: Help and Resources for Hemangiomas 06-09-2011, 11:14 PM
Replies: 21
Views: 9,490
Posted By kelly007
Surgery / laser on lower lip hemangioma

Hi everyone, i am new here. My daughter Lauren (now 3.5 years) had beard distribution hemangiomas pop up everywhere when she was two weeks old. All this has pretty much gone (on its own - no...
Showing results 1 to 17 of 17

 
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