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Search: Posts Made By: mjwrw
Forum: Help and Resources for Hemangiomas 04-07-2013, 08:07 PM
Replies: 19
Views: 20
Posted By mjwrw
Sorry to post twice, but here is a photo from a...

Sorry to post twice, but here is a photo from a few months ago, 5 1/5 years after surgery.
Good luck!
Forum: Help and Resources for Hemangiomas 04-07-2013, 08:05 PM
Replies: 19
Views: 20
Posted By mjwrw
Hi Sarah, Your baby is beautiful! I know how...

Hi Sarah,
Your baby is beautiful! I know how worried you must be. My daughter, who is now almost 7 had a large hemangioma in the center of her forehead. She had surgery at 13 months. Propranolol...
Forum: Help and Resources for Hemangiomas 03-04-2013, 12:19 PM
Replies: 3
Views: 4
Posted By mjwrw
My daughter is 6 1/2 in this picture:)

My daughter is 6 1/2 in this picture:)
Forum: Help and Resources for Hemangiomas 03-04-2013, 12:18 PM
Replies: 3
Views: 4
Posted By mjwrw
Hello, My daughter had a large hemangioma on her...

Hello,
My daughter had a large hemangioma on her forehead that was removed by Dr. Reinisch in LA when she was 13 months old. She is now six. I can not say enough wonderful things about Dr. Reinsich...
Forum: Help and Resources for Hemangiomas 01-16-2013, 03:49 PM
Replies: 8
Views: 9
Posted By mjwrw
Sorry no one has posted anything to help you out...

Sorry no one has posted anything to help you out here. Just wanted to check in and see if you have had the appointment yet and how it went.

My daughter had a large forehead hemangioma that was...
Forum: Help and Resources for Hemangiomas 01-10-2013, 07:07 PM
Replies: 7
Views: 8
Posted By mjwrw
After picture, age 6 1/2.

After picture, age 6 1/2.
Forum: Help and Resources for Hemangiomas 01-10-2013, 07:06 PM
Replies: 7
Views: 8
Posted By mjwrw
My daughter had surgery to remove a large...

My daughter had surgery to remove a large hemangioma in the center of her forehead when she was 13 months old. She is now 6 1/2. We have absolutely no regrets and are thrilled with the results. ...
Forum: Help and Resources for Hemangiomas 09-12-2011, 12:06 AM
Replies: 2
Views: 3
Posted By mjwrw
What a beautiful little girl!! And what an...

What a beautiful little girl!! And what an amazing surgery result! Thank you so much for sharing:)
Forum: Help and Resources for Hemangiomas 08-25-2011, 03:13 AM
Replies: 33
Views: 34
Posted By mjwrw
Hi Kate, I'm not sure if you are still checking...

Hi Kate,
I'm not sure if you are still checking these posts, but my daughter also had a similar hemangioma right in the middle of her forehead. It grew very large and we ended up having it...
Forum: Help and Resources for Hemangiomas 08-01-2011, 06:53 PM
Replies: 16
Views: 17
Posted By mjwrw
It is awful to see your little one suffering and...

It is awful to see your little one suffering and not know what to do. I would definitely get a second opinion. When we were looking into treatment options for our daughter four years ago I was able...
Forum: Help and Resources for Hemangiomas 07-15-2011, 11:01 PM
Replies: 11
Views: 483
Posted By mjwrw
Pictures

Here are the pictures of my daughter. The first is of her on her first birthday, about 5 weeks prior to surgery. The other two are from a few weeks ago. She just turned five. Given the size and...
Forum: Help and Resources for Hemangiomas 07-15-2011, 10:18 PM
Replies: 11
Views: 483
Posted By mjwrw
Hi again

I have clearly not logged into this discussion forum in a very long time. I am very sorry to those of you who posed questions to me and I did not get back to you.
Also, I am in no way disappointed...
Forum: Help and Resources for Hemangiomas 05-17-2010, 12:38 AM
Replies: 14
Views: 15
Posted By mjwrw
Hi, My daughter had a large hemangioma in the...

Hi,
My daughter had a large hemangioma in the center of her forehead and it often took a similar appearance to your daughter's. It would get kind of gray/black and saggy and bled once or twice. ...
Forum: Help and Resources for Hemangiomas 05-04-2010, 01:42 AM
Replies: 6
Views: 7
Posted By mjwrw
Hi! My daughter is now almost four but had...

Hi!
My daughter is now almost four but had surgery to remove a fairly large, superficial hemangioma on her forehead when she was 13 months old. We sought an opinion from a local plastic surgeon but...
Forum: Help and Resources for Hemangiomas 05-04-2010, 01:33 AM
Replies: 14
Views: 15
Posted By mjwrw
Hi Sally, Your daughter is adorable--what a great...

Hi Sally,
Your daughter is adorable--what a great picture! I can completely empathize with what you are going through. Deciding about surgery and dealing with the rude comments of others is...
Forum: Help and Resources for Hemangiomas 10-30-2009, 11:49 PM
Replies: 11
Views: 483
Posted By mjwrw
Scar management

Hi everyone,
My daughter had a large hemangioma in the center of her forehead that was removed when she was 13 months old. Dr. Reinisch did an amazing job but it seems that as she is getting older...
Forum: Help and Resources for Hemangiomas 09-14-2009, 01:40 AM
Replies: 8
Views: 722
Posted By mjwrw
My daughter had a large hemangioma on her...

My daughter had a large hemangioma on her forehead. We now also have a son, 21 months younger, and has no hemangiomas.
It does seem that anecdotally, there is a hereditary component to hemangomas...
Forum: Help and Resources for Hemangiomas 08-04-2009, 07:10 PM
Replies: 19
Views: 1,070
Posted By mjwrw
The "wait and see" approach is very...

The "wait and see" approach is very popular in the US as well. It pretty much depends what type of doctor you talk to, but unless it is a surgeon they will most likely tell you to wait if it is not...
Forum: Help and Resources for Hemangiomas 08-03-2009, 04:12 PM
Replies: 2
Views: 491
Posted By mjwrw
I don't know of any direct links there, but I...

I don't know of any direct links there, but I suppose it could depend on the location of the hemangioma--internal perhaps? My father is a chiropractor and has been practicing for over 30 years. My...
Forum: Help and Resources for Hemangiomas 08-03-2009, 04:10 PM
Replies: 19
Views: 1,070
Posted By mjwrw
If you are interested in other opinions regarding...

If you are interested in other opinions regarding sugery or other options, you may try just contacting surgeons or other doctors. I found names and recommendations from other parents on this site...
Forum: Help and Resources for Hemangiomas 08-02-2009, 06:47 PM
Replies: 11
Views: 1,099
Posted By mjwrw
Hi again, I have attached some pictures of my...

Hi again,
I have attached some pictures of my daughter so you can see a before and after type view. The first picture is from her first birthday, about 5 weeks prior to surgery. The second picture...
Forum: Help and Resources for Hemangiomas 08-02-2009, 06:30 PM
Replies: 14
Views: 2,319
Posted By mjwrw
My daughter's hemangioma was very similar to...

My daughter's hemangioma was very similar to your's. We had consultations with several doctors around the country, including Dr. Levitan in Dr. Waner's office. All but one doctor (in Seattle)...
Forum: Help and Resources for Hemangiomas 08-02-2009, 06:20 PM
Replies: 19
Views: 1,070
Posted By mjwrw
Hi, I may have corresponded with you on earlier...

Hi,
I may have corresponded with you on earlier posts so my post here may be irreleveant..but just in case:)
My daughter had a large hemangioma on her forehead and it was removed at 13 months of age....
Forum: Help and Resources for Hemangiomas 07-17-2009, 01:07 PM
Replies: 11
Views: 1,099
Posted By mjwrw
Hi Tessa, Your story is heartbreaking. I know...

Hi Tessa,
Your story is heartbreaking. I know exactly how you feel. My daughter had a large hemangioma on her forehead as well. It is an area people notice right away and tend to comment on. It...
Forum: Help and Resources for Hemangiomas 07-13-2009, 12:51 AM
Replies: 7
Views: 785
Posted By mjwrw
From the sound of your description, my daughter...

From the sound of your description, my daughter had a hamngioma very similar to your youngest son's. By the time it stopped growing, her hemangioma was about 2 inches long, 1 inch wide and stuck out...
Showing results 1 to 25 of 34

 
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