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Search: Posts Made By: eprmo
Forum: Help and Resources for Hemangiomas 01-18-2010, 08:10 PM
Replies: 13
Views: 507
Posted By eprmo
My daughter had two different types of H's. One...

My daughter had two different types of H's. One large one on her nose, which never completely involuted on it's own, and then a cluster of H's on her thigh,,,similar to your photo's which completely...
Forum: Help and Resources for Hemangiomas 11-16-2009, 11:30 PM
Replies: 5
Views: 478
Posted By eprmo
I think you are brilliant!!! Three cheers for...

I think you are brilliant!!!

Three cheers for you and your attitude

we should all be like you~
Forum: Help and Resources for Hemangiomas 11-16-2009, 11:27 PM
Replies: 5
Views: 364
Posted By eprmo
adorable baby..what a precious face.. good...

adorable baby..what a precious face..

good luck on your follow up,,lets us know
Forum: Help and Resources for Hemangiomas 11-13-2009, 03:19 PM
Replies: 2
Views: 295
Posted By eprmo
it's working~

it's working~
Forum: Help and Resources for Hemangiomas 11-13-2009, 03:18 PM
Replies: 1
Views: 266
Posted By eprmo
maybe put the ages in to coorelate with who we...

maybe put the ages in to coorelate with who we need...

glad your computer is back up~
Forum: Help and Resources for Hemangiomas 11-13-2009, 03:15 PM
Replies: 5
Views: 369
Posted By eprmo
my daughter had the same situation.. many tiny...

my daughter had the same situation..

many tiny little red ones on her thigh, eventually went away by age 2,,one large one on her nose,,, needed to eventually have some surgical intervention for...
Forum: Help and Resources for Hemangiomas 10-31-2008, 01:17 AM
Replies: 2
Views: 791
Posted By eprmo
i AGREE, THIS DOES NOT SOUND LIKE A HEMANGIOMA, I...

i AGREE, THIS DOES NOT SOUND LIKE A HEMANGIOMA, I WOULD GET ANOTHER DOCTORS OPINION.
Forum: Help and Resources for Hemangiomas 08-10-2008, 08:34 PM
Replies: 4
Views: 920
Posted By eprmo
I'd start looking for another doctor ASAP

I'd start looking for another doctor ASAP
Forum: Help and Resources for Hemangiomas 07-10-2008, 12:47 AM
Replies: 4
Views: 1,158
Posted By eprmo
I can help with any questions you may have.. ...

I can help with any questions you may have.. just write and ask...
Forum: Help and Resources for Hemangiomas 07-10-2008, 12:46 AM
Replies: 8
Views: 1,924
Posted By eprmo
she looks wonderful.. GREAT NEWS!

she looks wonderful.. GREAT NEWS!
Forum: Help and Resources for Hemangiomas 06-25-2008, 01:34 AM
Replies: 9
Views: 1,510
Posted By eprmo
welcome,,he is adorable...

welcome,,he is adorable...
Forum: Help and Resources for Hemangiomas 03-07-2008, 04:59 PM
Replies: 5
Views: 1,204
Posted By eprmo
Hi, I'd be glad to answer any questions you may...

Hi,

I'd be glad to answer any questions you may have. As Corinne said, my daughter grew up with a nasal hemangioma, and had ZERO interventions until she was 11 years old. You can email me and send a...
Forum: Living with a birthmark - my story 03-05-2008, 07:23 PM
Replies: 17
Views: 4,044
Posted By eprmo
you were a beautiful baby, and now you are a...

you were a beautiful baby, and now you are a beautiful woman. I too thank you so much for sharing your story. My daughter is 18 now, and we too were alone throughout her hemangioma journey. I believe...
Forum: Announcements 02-22-2008, 03:43 PM
Replies: 1
Views: 1,828
Posted By eprmo
Linda Shannon & VBF

I just finished watching Linda Shannon on Montel..

we all should feel proud to be a part of her mission.

and publicly, thank her~


Thank You, Linda!
Forum: Twins With Birthmarks 02-21-2008, 02:53 AM
Replies: 5
Views: 2,195
Posted By eprmo
Dr. Milton Waner Dr. Alex Berenstein Dr. Gregory...

Dr. Milton Waner
Dr. Alex Berenstein
Dr. Gregory Levitin
Vascular and Birthmark Institute of New York
126 West 60th Street
New York, NY 10023
212-636-3977
Forum: Help and Resources for Hemangiomas 02-15-2008, 03:09 AM
Replies: 2
Views: 888
Posted By eprmo
welcome to the web site, and Greece is a lovey...

welcome to the web site, and Greece is a lovey place, I visited it last summer, and yes, you have one of the tops doctors there in Athens, !!!

The H should always be covered in the sun with a skin...
Forum: CMTC 01-14-2008, 03:38 PM
Replies: 5
Views: 4,442
Posted By eprmo
Excellent personal story,, you will be an...

Excellent personal story,, you will be an inspiration for all who read...
I am so impressed you were properly diagnosed from the start!
I am also so pleased how well you and your parents have come...
Forum: Help and Resources for Hemangiomas 01-08-2008, 04:40 PM
Replies: 3
Views: 1,118
Posted By eprmo
I think a few people have used him on the other...

I think a few people have used him on the other web site ,,here it is:

vascularbirthmarksupport@groups.msn.com
I'd post your questions there..
you need to join first (it's free) just mention this...
Forum: Help and Resources for Hemangiomas 12-25-2007, 10:13 PM
Replies: 16
Views: 2,353
Posted By eprmo
the H you described with black and yellow,,sounds...

the H you described with black and yellow,,sounds infected.... you should have it checked out..

Graying does mean that specific part may have stopped growing..although it may grow in other...
Forum: AVM Help and Resources 12-19-2007, 03:36 PM
Replies: 3
Views: 1,732
Posted By eprmo
I have met him though my work with the VBF. He...

I have met him though my work with the VBF. He seems kind and compassionate.. If you need more assistance, let me know..
Forum: AVM Help and Resources 12-19-2007, 01:06 PM
Replies: 3
Views: 1,732
Posted By eprmo
contact Dr. Matthew Smythe at Barnes Hospital in...

contact Dr. Matthew Smythe at Barnes Hospital in St. Louis, MO His contact info is under "find a physician".. He may be able to assist you.
Forum: Living with a birthmark - my story 11-13-2007, 12:36 AM
Replies: 4
Views: 2,757
Posted By eprmo
I truly loved reading your inspirational story....

I truly loved reading your inspirational story.

My daughter who is almost 18, also was born in a time when nothing was being done to treat H's., and she grew up with the same questions and...
Forum: Help and Resources for Hemangiomas 11-12-2007, 02:52 PM
Replies: 3
Views: 1,407
Posted By eprmo
all hemagioma's grow and appear different..some...

all hemagioma's grow and appear different..some start very pale white/ some blue, some mauve,,etc..so to answer your question, not all H's turn red...

my daughter's started as a pale gray, and each...
Forum: Youth and Teen Support 07-27-2007, 03:50 PM
Replies: 5
Views: 2,463
Posted By eprmo
It seems you have a cafe au lait...

It seems you have a cafe au lait birthmark..sometimes they change in climate,,darker and lighter depending on the weather. I am not a doctor , but from my experience ....,that is my educated...
Forum: Adults Living with Birthmarks 07-20-2007, 09:37 PM
Replies: 48
Views: 9,999
Posted By eprmo
I agree with everything you said...welcome to...

I agree with everything you said...welcome to VBF

Elissa
Showing results 1 to 25 of 149

 
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