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Search: Posts Made By: abatie
Forum: AVM Help and Resources 03-18-2014, 04:21 PM
Replies: 4
Views: 5
Posted By abatie
I do know that several CMTC kids have had...

I do know that several CMTC kids have had compression garments at a young age and I know that in those cases it was for AVMs. I would guess that it is just an issue with the particular place you are...
Forum: Contact an Individual Privately, or join the Kid's Support Group 12-04-2013, 10:53 PM
Replies: 2
Views: 3
Posted By abatie
What is the type of classification of the...

What is the type of classification of the birthmarks? This may be the reason you are being sent on.
Forum: Youth and Teen Support 12-04-2013, 10:51 PM
Replies: 4
Views: 5
Posted By abatie
I have a daughter (although not the one I usually...

I have a daughter (although not the one I usually post about at this site) that has severe ADHD and anxiety disorder (with possible bipolar). I don't know if I can help you in any way but I am here...
Forum: CMTC 09-14-2013, 03:18 PM
Replies: 7
Views: 8
Posted By abatie
Hi Missy! I have been hanging in there and busy...

Hi Missy!

I have been hanging in there and busy with life. Becca started preschool this fall and it has been going well so far. I took in Buddy Booby's Birthmark and the teacher read it to the...
Forum: CMTC 09-14-2013, 01:09 PM
Replies: 7
Views: 8
Posted By abatie
Sorry I haven't been around here for a very long!...

Sorry I haven't been around here for a very long! Eileen71 I can understand your situation. Our daughter who is four has CMTC. She does have a significant limb length discrepency and she also had...
Forum: Port Wine Stain Help and Resources 02-22-2013, 09:31 PM
Replies: 7
Views: 8
Posted By abatie
Do you think a tatoo is a good idea when you...

Do you think a tatoo is a good idea when you aren't exactly sure of the diagnosis. Also, I would be concerned until you get information on the circulation. My daughter has circulation issue on her...
Forum: Port Wine Stain Help and Resources 02-21-2013, 10:05 PM
Replies: 7
Views: 8
Posted By abatie
I guess I don't have any real input after seeing...

I guess I don't have any real input after seeing the pictures. Sorry!
Forum: Port Wine Stain Help and Resources 02-20-2013, 10:07 PM
Replies: 7
Views: 8
Posted By abatie
Do you have a picture? Maybe your diagnosis...

Do you have a picture? Maybe your diagnosis isn't correct!
Forum: Help and Resources for Hemangiomas 02-15-2013, 02:06 AM
Replies: 91
Views: 92
Posted By abatie
Oh my has she grown up!!! I remember the posts...

Oh my has she grown up!!! I remember the posts as a baby! She is beautiful!
Alison
Forum: CMTC 02-15-2013, 01:24 AM
Replies: 0
Views: 1
Posted By abatie
2013 CMTC Conference

I just wanted to let anyone know who may be here looking for information on CMTC that the date of the 2013 conference has been set. The location has been moved to St. Louis, Missouri and will be...
Forum: Port Wine Stain Help and Resources 01-14-2013, 04:32 PM
Replies: 4
Views: 5
Posted By abatie
Pictures would be helpful! I am wondering about...

Pictures would be helpful! I am wondering about CMTC because of the change with temperature. PWS can be very extensive. CMTC can also be very extensive.
Forum: CMTC 12-19-2012, 06:29 PM
Replies: 3
Views: 4
Posted By abatie
Becca has also seen the doctor from the...

Becca has also seen the doctor from the Netherlands. Becca had many complications when she was younger but thankfully some of those issues have started to resolve (including three holes in her...
Forum: CMTC 12-19-2012, 02:25 AM
Replies: 3
Views: 4
Posted By abatie
Great to see another CMTC parent here. I was the...

Great to see another CMTC parent here. I was the only one active for a long time. I don't check in as often here anymore as it seems there are not a lot of people posting here. I have a daughter...
Forum: CMTC 09-24-2012, 03:07 AM
Replies: 2
Views: 3
Posted By abatie
Curis marmorata is that purple coloring babies...

Curis marmorata is that purple coloring babies get when they are cold or upset. As the skin matures it does go away. CMTC is a vascular birthmark that doesn't go away. It may lighten some as your...
Forum: Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 09-23-2012, 12:58 PM
Replies: 20
Views: 7,043
Posted By abatie
Try checking in the "Find a Doctor"...

Try checking in the "Find a Doctor" section or contact one of the medical experts with your question under the resources tab. In that section there is an "Ask an Expert". You may also want to send...
Forum: Port Wine Stain Help and Resources 09-02-2012, 03:55 PM
Replies: 3
Views: 4
Posted By abatie
I would also suggest compression socks. You do...

I would also suggest compression socks. You do need to find a new doctor ASAP though so that you can find out if there is a more appropriate option. Hopefully you can get some relief until you find...
Forum: Port Wine Stain Help and Resources 08-10-2012, 01:43 AM
Replies: 3
Views: 4
Posted By abatie
Our daughter has a LLD in her leg. She was...

Our daughter has a LLD in her leg. She was having pain in her hip, back, and knee and so we had a custom lift made for her. Took care of all the pain. Becca was also evaluated for KT syndrome at...
Forum: General Resources 07-19-2012, 01:40 AM
Replies: 9
Views: 10
Posted By abatie
Glad that your insurance approved it. Hopefully...

Glad that your insurance approved it. Hopefully you will have some answers soon!
Forum: General Resources 07-09-2012, 04:36 PM
Replies: 9
Views: 10
Posted By abatie
I would find someone who specializes in vascular...

I would find someone who specializes in vascular malformations. A primary care physician might not know enough to even go ahead and order the MRI. It might end up in you going to more appointments...
Forum: AVM Help and Resources 07-07-2012, 12:46 PM
Replies: 7
Views: 8
Posted By abatie
Insurance is always a big fight. My family has...

Insurance is always a big fight. My family has had an easier time now but when my daughter was first diagnosed with CMTC we had a tons of issues. Claims would come back saying it wasn't covered...
Forum: Port Wine Stain Help and Resources 07-05-2012, 07:35 PM
Replies: 13
Views: 14
Posted By abatie
There is research done at Mayo Clinic about the...

There is research done at Mayo Clinic about the long-term effects of anesthesia on children under two. It is about the fact that the more exposures under two the increased chance of learning...
Forum: CMTC 07-04-2012, 03:50 AM
Replies: 1
Views: 2
Posted By abatie
Update

I thought to myself today that I had not updated here on Becca's last appointment at Mayo and so this is overdue. I am usually the first person to be skeptical of "the wait and see" approach. That...
Forum: Port Wine Stain Help and Resources 07-02-2012, 11:12 AM
Replies: 13
Views: 14
Posted By abatie
Does this marking change color? Like whe crying...

Does this marking change color? Like whe crying very hard, cold, or at bath time?
Forum: Port Wine Stain Help and Resources 07-02-2012, 11:11 AM
Replies: 13
Views: 14
Posted By abatie
Okay so first off my child doesn't have a PWS but...

Okay so first off my child doesn't have a PWS but rather CMTC but has it all over one leg so I understand the size of what you are looking at and dealing with. I had the same experience as you in...
Forum: CMTC 06-21-2012, 09:19 PM
Replies: 0
Views: 1
Posted By abatie
USA CMTC-OVM Conference

Anyone who is affected by CMTC and looking for more information should try to attend the US CMTC-OVM Conference on July 14. The conference is held near Washington D.C. Our family is excited to...
Showing results 1 to 25 of 234

 
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