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Search: Posts Made By: quinnysmom
Forum: Help and Resources for Hemangiomas 08-04-2009, 02:53 PM
Replies: 2
Views: 753
Posted By quinnysmom
Unfortunately it is hard to say, in our son's...

Unfortunately it is hard to say, in our son's case he has lost some, some due to surgery and some due to them rubbing against his eye. They take a long time to grow back so it is kind of a wait and...
Forum: Help and Resources for Hemangiomas 08-04-2009, 02:47 PM
Replies: 19
Views: 1,070
Posted By quinnysmom
http://picasaweb.google.ca/lh/photo/NXflKrLT5L5gi8...

http://picasaweb.google.ca/lh/photo/NXflKrLT5L5gi8ywTWbUnQ?feat=directlink
http://picasaweb.google.ca/lh/photo/ixyXu_VlTe2GclMKI2n2fw?feat=directlink
http://picasaweb.google.ca/lh/photo/gdxes2rIcllNUD...
Forum: Help and Resources for Hemangiomas 08-04-2009, 02:21 PM
Replies: 19
Views: 1,070
Posted By quinnysmom
I so feel your pain. My son Quinn is 3 now and...

I so feel your pain. My son Quinn is 3 now and had a very destructive hemangioma which also ate away his upper lip. To make a very long and frustrating story short he has just had two surgeries in...
Forum: Help and Resources for Hemangiomas 05-06-2008, 04:34 PM
Replies: 3
Views: 1,013
Posted By quinnysmom
Missy Unfortunately it is Quinn who has the...

Missy

Unfortunately it is Quinn who has the Autism (on top of the PHACES and eveerything else) We are doing RDI (Relationship Development Intervention) with him and he has a 2 day intense assessment...
Forum: Help and Resources for Hemangiomas 05-03-2008, 08:23 PM
Replies: 3
Views: 1,013
Posted By quinnysmom
What Would You Do If A Doctor Said This To You?

And I quote

"You cannot see it from far away so I would not worry about it"


Jen and Quinn (2yrs)

www.quinnduncan.com

http://img136.imageshack.us/img136/474/1006519xj6.jpg
Forum: Help and Resources for Hemangiomas 04-17-2008, 09:13 AM
Replies: 3
Views: 1,084
Posted By quinnysmom
Please have your child tested for PHACES Syndrome...

Please have your child tested for PHACES Syndrome ASAP especially if there are any signs of neurological issues. Children with hemangiomas of the head and neck are at risk for PHACES...
Forum: Help and Resources for Hemangiomas 03-30-2008, 07:17 PM
Replies: 4
Views: 1,001
Posted By quinnysmom
Dr Metry at the Texas Children's Hospital is a...

Dr Metry at the Texas Children's Hospital is a pediatric dermatologist and a major researcher in the field of vascular anomalies. She has a vascular anomalies clinic which coinsists of a...
Forum: Help and Resources for Hemangiomas 02-24-2008, 01:31 AM
Replies: 2
Views: 910
Posted By quinnysmom
I know a number of people who have experience...

I know a number of people who have experience with this but are not active posters. Email me at all 4 quinny @hotmail.com and I can put you in touch with moms who have a lot of experience with this...
Forum: Help and Resources for Hemangiomas 02-24-2008, 01:26 AM
Replies: 1
Views: 892
Posted By quinnysmom
Dr Metry is a very well respected doctor is this...

Dr Metry is a very well respected doctor is this field (and one of the "Ask the Experts" on this site). If you are going to her you will be in good hands.

Jen
Forum: Help and Resources for Hemangiomas 02-13-2008, 08:43 PM
Replies: 5
Views: 1,058
Posted By quinnysmom
Hello Please ask for the MRI to be done to rule...

Hello

Please ask for the MRI to be done to rule out a disorder called PHACES Syndrome. All children with large segmental hemangiomas on the head and neck MUST and should be evaluated for PHACES. It...
Forum: Help and Resources for Hemangiomas 02-09-2008, 03:25 AM
Replies: 7
Views: 1,011
Posted By quinnysmom
She is a DOLL! Beautiful little girl. I just...

She is a DOLL! Beautiful little girl.

I just approved your membership for the PHACES group so you are good to go.

I wanted to mention to you that many of the PHACES kids were thought to have port...
Forum: Help and Resources for Hemangiomas 02-09-2008, 12:46 AM
Replies: 7
Views: 1,011
Posted By quinnysmom
Hello My name is Jen and I am mom to Quinn 21...

Hello

My name is Jen and I am mom to Quinn 21 Months who has PHACES. I run the PHACES support group and the PHACES families website
http://groups.msn.com/PhacesAssociationSupportGroup

Please come...
Forum: Help and Resources for Hemangiomas 01-24-2008, 05:01 PM
Replies: 12
Views: 1,845
Posted By quinnysmom
These decisions are incredibly difficult to make...

These decisions are incredibly difficult to make and like Carrie said sometimes you are faced with so many very different opinions and treatment methodologies. I live in Canada and there is very much...
Forum: Help and Resources for Hemangiomas 01-24-2008, 04:50 PM
Replies: 5
Views: 1,337
Posted By quinnysmom
Dr Metry has been on maternity leave so that may...

Dr Metry has been on maternity leave so that may be why there has been a wait. She is a fantastic doctor and very devoted to children with vascular anomalies, she is very kind and caring.

Jen
Forum: Help and Resources for Hemangiomas 01-16-2008, 02:38 AM
Replies: 1
Views: 1,118
Posted By quinnysmom
Question Ingrown Eyelashes+Eyelid Hemangioma Surgery?

Does anyone have experience with ingrown eyelashes (Trichiasis) as a result of an eyelid hemangioma?

Quinn's eyelashes have been rubbing against his eye since he was 3 weeks old and this has...
Forum: Help and Resources for Hemangiomas 01-05-2008, 03:32 PM
Replies: 10
Views: 1,869
Posted By quinnysmom
Lynn My son Quinn had a very severe lip...

Lynn

My son Quinn had a very severe lip ulceration. I am so sorry to hear your little one is going through this as they are very painful. My son's case was severe but hopefully I can give you some...
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