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Search: Posts Made By: jennr11
Forum: Help and Resources for Hemangiomas 07-06-2013, 12:50 AM
Replies: 20
Views: 21
Posted By jennr11
So sorry to hear all this and I don't have a ton...

So sorry to hear all this and I don't have a ton of answers for you. It does sound like your dermatologist is pretty on top of it, which is a great start! Propranolol helped to stop the growth and...
Forum: Help and Resources for Hemangiomas 04-10-2013, 09:39 PM
Replies: 12
Views: 13
Posted By jennr11
Just an update on our case: We've hit a dead end...

Just an update on our case: We've hit a dead end road as far as further help in Nashville and we are flying to NY next week. We have an appointment with Dr. Levitin to talk about laser treatments and...
Forum: Help and Resources for Hemangiomas 03-27-2013, 03:26 PM
Replies: 13
Views: 14
Posted By jennr11
We started propranolol last May when my daughter...

We started propranolol last May when my daughter was 10 weeks old. I could not have been more terrified, the possible side effects you read about are scary! She has a large H on her...
Forum: Help and Resources for Hemangiomas 03-27-2013, 03:01 PM
Replies: 2
Views: 3
Posted By jennr11
Poor baby!!! :( We dealt with ulcerations on my...

Poor baby!!! :( We dealt with ulcerations on my daughters arm last year and it does break your heart. I second Shannon on asking for the Xylocane. Our doctor wouldn't give us anything topical for...
Forum: Help and Resources for Hemangiomas 03-27-2013, 02:56 PM
Replies: 3
Views: 4
Posted By jennr11
We have been on Propranolol since May and will be...

We have been on Propranolol since May and will be finished with it next week. My daughter takes it 3 times a day so it averages out to about every 6 hours. To avoid the spitting up issue we were told...
Forum: Help and Resources for Hemangiomas 02-27-2013, 09:42 PM
Replies: 12
Views: 13
Posted By jennr11
I finally sent a message to Dr. Geronemus and...

I finally sent a message to Dr. Geronemus and sent him some pictures as well. He said he felt she would do well with laser treatments. Yay! So now I feel like I can forget the nightmare plastic...
Forum: Help and Resources for Hemangiomas 02-21-2013, 04:45 AM
Replies: 12
Views: 13
Posted By jennr11
I know exactly what you're trying to say :) I...

I know exactly what you're trying to say :) I feel like the left over fibro-fatty tissue wouldn't even be noticeable once her arm isn't just all "baby fat," if that makes any sense. It's the color...
Forum: Help and Resources for Hemangiomas 02-21-2013, 04:28 AM
Replies: 5
Views: 6
Posted By jennr11
Just saw this thread and when I saw your pictures...

Just saw this thread and when I saw your pictures it took me back! Your babys arm looks just like my little girls did almost a year ago. I would say it is a hemangioma as well. At birth, our daughter...
Forum: Help and Resources for Hemangiomas 02-21-2013, 04:05 AM
Replies: 12
Views: 13
Posted By jennr11
Shannon I do not expect you to remember a random...

Shannon I do not expect you to remember a random FB message from nearly a year ago :)
If this works right I've attached 2 pictures.
The first is my daughters arm at 10 weeks, the day before we...
Forum: Help and Resources for Hemangiomas 02-20-2013, 01:38 PM
Replies: 12
Views: 13
Posted By jennr11
Hi Shannon, you and I actually FB messaged a bit...

Hi Shannon, you and I actually FB messaged a bit almost a year ago. I found the pictures of your daughters hand hem on here when my baby was first born and the similarity between their hems is...
Forum: Help and Resources for Hemangiomas 02-20-2013, 03:32 AM
Replies: 12
Views: 13
Posted By jennr11
Frustrated with Dr

My daughter (now 11months) has a large hemangioma on her forearm/wrist/thumb. We've been seeing a dermatologist and have been on propranolol for 9 months now. At our last dermatology visit he thought...
Forum: Help and Resources for Hemangiomas 07-01-2012, 02:50 AM
Replies: 13
Views: 14
Posted By jennr11
Hi, my daughter was a quick delivery with a...

Hi, my daughter was a quick delivery with a "flat bruise" on her forearm, wrist, and thumb area (almost like she has a wrist guard on) that began to darken in color and raise by the age of 2 weeks...
Forum: Help and Resources for Hemangiomas 05-30-2012, 07:49 PM
Replies: 5
Views: 6
Posted By jennr11
No, she is exclusively breast fed. Why? As an...

No, she is exclusively breast fed. Why?
As an update, I've spoken with the dermatologists NP and they told me to treat her pain with Tylenol. Because she is only 12 weeks old they don't want to give...
Forum: Help and Resources for Hemangiomas 05-28-2012, 02:58 AM
Replies: 5
Views: 6
Posted By jennr11
Hemangioma and propranolol- Help!

My 12 week old daughter was born with a large hemangioma on her left forearm/wrist/hand. It was flat at birth and started puffing up and deepening in color by 2 weeks of age. I was persistent to see...
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