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Search: Posts Made By: smurph
Forum: Help and Resources for Hemangiomas 01-18-2015, 10:58 PM
Replies: 14
Views: 617
Posted By smurph
I'm not sure how the medical system works in the...

I'm not sure how the medical system works in the UK but I would definitely say it looks more like a hemangioma than a portwine stain. Lip hemangiomas often need treatment because of the risks of...
Forum: Help and Resources for Hemangiomas 01-18-2015, 10:50 PM
Replies: 2
Views: 156
Posted By smurph
That's what I was thinking too??? I would...

That's what I was thinking too??? I would definitely send a picture to one of the experts online- since it may be a different type of hemangioma. Keep taking photos to document any changes too. ...
Forum: Help and Resources for Hemangiomas 01-18-2015, 10:47 PM
Replies: 3
Views: 364
Posted By smurph
It's so tough to tell-The good news is that it...

It's so tough to tell-The good news is that it doesn't seem like it has grown to much. Keep taking pictures because it's a good way to document any changes!
Shannon
Forum: Help and Resources for Hemangiomas 01-02-2015, 05:10 AM
Replies: 69
Views: 57,854
Posted By smurph
Hi there! So glad you were able to get some...

Hi there! So glad you were able to get some peace- it can be a nervewracking time. If you would like to post a picture you can send it to:
contact@birthmark.org

Missy will help you!
Shannon
Forum: Help and Resources for Hemangiomas 12-30-2014, 04:22 AM
Replies: 14
Views: 617
Posted By smurph
Hi there! I just wanted to share our experience....

Hi there!

I just wanted to share our experience. It sounds very similar to yours. My daughter is now 9 years old and you can barely tell she even has had a hemangioma. She did have some treatment...
Forum: Help and Resources for Hemangiomas 12-10-2014, 03:39 AM
Replies: 1
Views: 455
Posted By smurph
Hi there! Where are you located? There are...

Hi there! Where are you located? There are definitely options you can look into. If you are uncomfortable, you should try to get a second opinion before making your decision. Propanolol has been...
Forum: Help and Resources for Hemangiomas 11-02-2014, 04:00 AM
Replies: 5
Views: 1,898
Posted By smurph
Hi there! I know how hard it can be to try to...

Hi there! I know how hard it can be to try to sift through the information and recommendations of the doctors and make a decision on what to do. I have been there myself. I would suggest taking...
Forum: Help and Resources for Hemangiomas 11-02-2014, 03:53 AM
Replies: 1
Views: 508
Posted By smurph
I am not sure what is the best way to approach...

I am not sure what is the best way to approach this. Perhaps you could email Basia Joyce (click on Ask the Experts) because she knows a lot about insurance questions, etc. She may be able to help!...
Forum: Help and Resources for Hemangiomas 11-02-2014, 03:45 AM
Replies: 4
Views: 639
Posted By smurph
Hi! What a cutie! It is hard to tell since they...

Hi! What a cutie! It is hard to tell since they are so light. I really can't say. I can just tell you that 3 of my girls have had hemangiomas and they all grew to be pretty dark by one month of age. ...
Forum: Help and Resources for Hemangiomas 11-02-2014, 03:40 AM
Replies: 2
Views: 645
Posted By smurph
Hi there! I agree with Missy. Hemangiomas don't...

Hi there! I agree with Missy. Hemangiomas don't just pop up when a child is 5 so it is likely to be something else.
Forum: Help and Resources for Hemangiomas 09-23-2014, 02:57 AM
Replies: 1
Views: 622
Posted By smurph
Hi there! Welcome! It is so difficult to predict...

Hi there! Welcome! It is so difficult to predict what will happen with each hemangioma...it's hard to know....so I think it mostly depends on your comfort level. If you feel comfortable letting it...
Forum: Help and Resources for Hemangiomas 09-17-2014, 09:59 PM
Replies: 1
Views: 588
Posted By smurph
I'm not sure I understand. So you were put on the...

I'm not sure I understand. So you were put on the medicine after he was born? If you were put on the medicine after he was born, I would say that it would not have any connection to the hemangioma...
Forum: Help and Resources for Hemangiomas 09-17-2014, 09:50 PM
Replies: 7
Views: 835
Posted By smurph
I'm pretty sure he will get back to you. He is...

I'm pretty sure he will get back to you. He is usually very good about it. Hopefully soon! Keep us posted!
Shannon
Forum: Help and Resources for Hemangiomas 09-17-2014, 01:57 AM
Replies: 7
Views: 835
Posted By smurph
Hi there! I think the best thing to do would be...

Hi there! I think the best thing to do would be to forward these pictures and reports to Dr. Levitin (look on the Ask the Expert page here) and perhaps he will be able to give you some guidance. ...
Forum: Help and Resources for Hemangiomas 09-06-2014, 09:23 PM
Replies: 5
Views: 1,166
Posted By smurph
Hi there! She is so adorable! You can email the...

Hi there! She is so adorable! You can email the other photos to Missy at
contact@birthmark.org
She can upload them for you. For me, it's so hard to tell from the pictures- I think a portwine stain...
Forum: Help and Resources for Hemangiomas 09-06-2014, 09:18 PM
Replies: 1
Views: 669
Posted By smurph
Hi there! It looks like it has involuted some...

Hi there! It looks like it has involuted some already and I bet it will continue to do so for the next few years. It's a slow process and it's hard to wait it out sometimes. I'm not sure what the...
Forum: Help and Resources for Hemangiomas 09-06-2014, 09:05 PM
Replies: 12
Views: 1,902
Posted By smurph
Hi there! For me, it's hard to say because my...

Hi there! For me, it's hard to say because my daughter's laser surgeries were much further down the road- she was 5 and 7 when she had them so it had involuted a lot on its own by then and the laser...
Forum: Help and Resources for Hemangiomas 08-05-2014, 03:42 AM
Replies: 12
Views: 1,902
Posted By smurph
Great news!!!! Let us know how it goes! :) ...

Great news!!!! Let us know how it goes! :) Thanks for the update.
Shannon
Forum: Help and Resources for Hemangiomas 07-26-2014, 02:17 PM
Replies: 19
Views: 2,118
Posted By smurph
Hi there! If you feel comfortable with the docs...

Hi there! If you feel comfortable with the docs recommendations then you can always watch it and see how it goes. I would suggest taking pictures of it regularly to document any...
Forum: Help and Resources for Hemangiomas 07-17-2014, 02:27 AM
Replies: 19
Views: 2,118
Posted By smurph
I'm glad you were able to get an appt. Just tell...

I'm glad you were able to get an appt. Just tell your concerns to the doctor about the propanolol. Good luck! Keep us posted! :) I will be thinking of you on the 24th.
Shannon
Forum: Help and Resources for Hemangiomas 07-14-2014, 08:34 PM
Replies: 4
Views: 1,022
Posted By smurph
I think the best thing to do is to talk to the...

I think the best thing to do is to talk to the doc that prescribed the Timolol and see if he/she can order it from the U.S. Hope that helps!
Shannon
Forum: Help and Resources for Hemangiomas 07-14-2014, 02:03 PM
Replies: 4
Views: 1,022
Posted By smurph
Hi there! I can try to look into this. Who...

Hi there! I can try to look into this. Who prescribed the propanolol? Did the same doctor prescribe the timolol cream?
Shannon
Forum: Help and Resources for Hemangiomas 07-11-2014, 10:21 PM
Replies: 19
Views: 2,118
Posted By smurph
Great news! :)

Great news! :)
Forum: Help and Resources for Hemangiomas 07-11-2014, 12:05 PM
Replies: 19
Views: 2,118
Posted By smurph
Hi there! I talked with the VBF Family Service...

Hi there! I talked with the VBF Family Service Director and she recommended you see:
Sophia J. Hendrick, MD
900 E. Woodland Avenue
Knoxville, TN 37917
(865) 524-7107
Treated children in Knoxville...
Forum: Help and Resources for Hemangiomas 07-11-2014, 02:24 AM
Replies: 19
Views: 2,118
Posted By smurph
Honestly, if it were me, I would not delay in...

Honestly, if it were me, I would not delay in seeing a specialist. I have seen people posting on here about ulcerations in the diaper area and they can be very painful and hard to get a handle on. ...
Showing results 1 to 25 of 419

 
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