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Search: Posts Made By: Leece
Forum: AVM Help and Resources 05-25-2011, 07:13 PM
Replies: 4
Views: 5
Posted By Leece
Thanks, Ive put my question to the experts....

Thanks, Ive put my question to the experts. Hopefully they can help.
Leece x
Forum: AVM Help and Resources 05-23-2011, 02:28 PM
Replies: 4
Views: 5
Posted By Leece
Sclerotheraphy with csf leak?

Slim chance someone may have some answers on this one but what the hell,
I have an extensive venous malformation across the right side of my back it affects a large area of the muscles and grows up...
Forum: Adults Living with Birthmarks 12-11-2010, 07:28 AM
Replies: 21
Views: 2,112
Posted By Leece
further update

Thought I would update, on how things are going. They're not. Unfortunately because I have a possible csf leak, they cannot risk giving me the bleomycilin injections, I also have been trying to...
Forum: Adults Living with Birthmarks 09-09-2010, 06:29 PM
Replies: 21
Views: 2,112
Posted By Leece
Treatment on the nhs so no cost, but Im still...

Treatment on the nhs so no cost, but Im still waiting, still awaiting my 2nd mri to be checked before I can have the bleomycilin injections.
Forum: Adults Living with Birthmarks 10-13-2009, 01:55 PM
Replies: 21
Views: 2,112
Posted By Leece
Just when I thought things could not get...

Just when I thought things could not get worse,,Ive just been made redundant!!!
Forum: Adults Living with Birthmarks 10-12-2009, 10:04 PM
Replies: 21
Views: 2,112
Posted By Leece
Middlesbrough is over 300 miles from me, what...

Middlesbrough is over 300 miles from me, what takes the time is the public transport!! I stayed in a travel lodge for a couple of nights, gets a bit pricey. They reakon if I have the treatment it...
Forum: Adults Living with Birthmarks 10-12-2009, 06:37 AM
Replies: 21
Views: 2,112
Posted By Leece
Hi I got to see Tobian Muir on Friday. Strange...

Hi I got to see Tobian Muir on Friday. Strange couple of days I travelled up by train on my own, A long journey lots of time to think about things. Tobian thinks he may beable to give me the...
Forum: Adults Living with Birthmarks 10-06-2009, 05:03 PM
Replies: 21
Views: 2,112
Posted By Leece
Finally I go to see Tobian Muir this Friday 9th...

Finally I go to see Tobian Muir this Friday 9th Oct, fingers crossed he can help. Bit of a long journey but worth it if he can help.
Forum: Adults Living with Birthmarks 06-06-2009, 09:43 AM
Replies: 21
Views: 2,112
Posted By Leece
Thankyou for your reply, such good news that your...

Thankyou for your reply, such good news that your daughter has received treatment which has actually worked. It is so good to hear from someone else that a particulat treatment and doctor knows...
Forum: Adults Living with Birthmarks 06-04-2009, 09:24 AM
Replies: 21
Views: 2,112
Posted By Leece
Referred to James Cook Hospital

Ive been to my Gp and he said he will refer me, but I phoned James cook Hospital and they still have not heard anything yet, Ill give them another week then get in contact with my Gp again if nothing...
Forum: Adults Living with Birthmarks 05-16-2009, 11:12 AM
Replies: 21
Views: 2,112
Posted By Leece
Thank you sweet pea for this info. put james...

Thank you sweet pea for this info. put james cook into the net and found out that since nov 2008 they have been treating vascular malformations by bleomyoin injections. I will be requesting that my...
Forum: Adults Living with Birthmarks 05-01-2009, 06:31 PM
Replies: 4
Views: 1,236
Posted By Leece
Sorry you have been going through so much, I can...

Sorry you have been going through so much, I can really relate how you feel my problems have been so much worse since my last operation (see my thread, My story) Im in a similar place no one seems...
Forum: Adults Living with Birthmarks 05-01-2009, 09:12 AM
Replies: 21
Views: 2,112
Posted By Leece
Red face My Story

Sorry this is going to be a long one!!
I was born with a venous malformation on my back, I first had an op at the age of 8 to try and find out what the painful lumps in my back were, they discovered...
Forum: AVM Help and Resources 04-30-2009, 05:01 PM
Replies: 5
Views: 1,801
Posted By Leece
Hi I stopped taking the pill years ago as I...

Hi I stopped taking the pill years ago as I noticed that it made my Venous Malformation more swollen and painful. when I mentioned this to the doc he looked at me like I was barking mad!! since then...
Showing results 1 to 14 of 14

 
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