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Search: Posts Made By: abirk
Forum: Help and Resources for Hemangiomas 01-10-2011, 05:41 AM
Replies: 17
Views: 18
Posted By abirk
Thanks! I wish I could take credit but Basia did...

Thanks! I wish I could take credit but Basia did it all. She's wonderful and I'm so grateful for VBF's help. We would have never gotten it approved if it wasn't for Basia, Dr. Zide, Dr. Levitin,...
Forum: Help and Resources for Hemangiomas 01-07-2011, 08:38 PM
Replies: 17
Views: 18
Posted By abirk
We're approved for surgery!

We're approved for surgery!
Forum: Help and Resources for Hemangiomas 01-06-2011, 12:08 AM
Replies: 17
Views: 18
Posted By abirk
Katie - We did get a case manager she was as...

Katie - We did get a case manager she was as helpful as she could be. She was not very knowledgeable about hemangiomas.

We went to the panel hearing yesterday and I think it went good. They seemed...
Forum: Help and Resources for Hemangiomas 12-31-2010, 04:30 PM
Replies: 17
Views: 18
Posted By abirk
Thanks Missy and Shannon for the support. The 36...

Thanks Missy and Shannon for the support. The 36 pages of documentation and the panel hearing is both part of our second appeal. We are hoping the documentation will be enough but we decided to go...
Forum: Help and Resources for Hemangiomas 12-30-2010, 06:58 AM
Replies: 17
Views: 18
Posted By abirk
Panel Hearing for Insurance Coverage

Hi Everyone,

I hope everyone had a good holiday. On Tuesday, my husband and I will have fifthteen minutes to discuss at a panel hearing on why our insurance should pay for my daughter's hemangioma...
Forum: Help and Resources for Hemangiomas 11-29-2010, 05:18 AM
Replies: 15
Views: 16
Posted By abirk
I'm not really sure on this but I think there is...

I'm not really sure on this but I think there is a propranolol topical cream. I would ask about that with the neonatal and Dr. Warner. I would think it would not have the same effects on the heart...
Forum: Help and Resources for Hemangiomas 11-16-2010, 06:10 AM
Replies: 4
Views: 5
Posted By abirk
We had an appointment with Dr. Buckmiller today...

We had an appointment with Dr. Buckmiller today and her and staff said they will do whatever it takes to get her surgery approved. They are going to rewrite the letter of medical necessity to...
Forum: Help and Resources for Hemangiomas 10-28-2010, 10:13 PM
Replies: 4
Views: 5
Posted By abirk
Anyone have any luck with Anthem BCBS

We have been denied by Anthem Blue Cross Blue Shield for the third time for my daughter's surgical removal of her hemangioma. We've sent in an appeal letter with the help of Basia and they still say...
Forum: Help and Resources for Hemangiomas 10-13-2010, 04:17 AM
Replies: 10
Views: 11
Posted By abirk
Thanks for the support. I talked to the...

Thanks for the support. I talked to the insurance specialist at the hospital and found out they never sent in pictures! My husband and I worked on an appeal letter (with photos) and Basia, the...
Forum: Help and Resources for Hemangiomas 10-07-2010, 07:42 PM
Replies: 10
Views: 11
Posted By abirk
Her birthmark is on the nose. I'll email Basia...

Her birthmark is on the nose. I'll email Basia and Dr. Buckmiller. I'm pretty worried about the insurance not paying.....
Forum: Help and Resources for Hemangiomas 10-06-2010, 05:31 AM
Replies: 10
Views: 11
Posted By abirk
Insurance Problems

My daughter is schedule to have h removed in Novemeber and our insurance will not pay for it because the h is not causing functional impairment. It went through a peer review and it didn't not...
Forum: Help and Resources for Hemangiomas 09-06-2010, 03:27 PM
Replies: 5
Views: 6
Posted By abirk
Thank you all!

Thank you all!
Forum: Help and Resources for Hemangiomas 09-04-2010, 05:51 AM
Replies: 5
Views: 6
Posted By abirk
Beauty Pageant

My daughter has a nasal tip hemangioma and I wanted to share that she got 2nd place in our local town beauty pageant! I'm so proud of her!!! There were at least 15 other (hemangioma free) girls...
Forum: Help and Resources for Hemangiomas 07-11-2010, 04:23 AM
Replies: 6
Views: 7
Posted By abirk
When my daughter was given laser treatments they...

When my daughter was given laser treatments they would put a numbing cream twenty minutes before hand. It was LMX4 and it seemed to work, she never flinched during the treatment.
Forum: Help and Resources for Hemangiomas 04-19-2010, 04:32 AM
Replies: 6
Views: 7
Posted By abirk
Hi, We live in Missouri, too. We have a ped....

Hi,

We live in Missouri, too. We have a ped. derm. in St. Louis that done laser treatments for my daughter but after two years it is still there (more of a pinkish gray color but same size). I...
Forum: Help and Resources for Hemangiomas 04-12-2010, 04:02 AM
Replies: 20
Views: 21
Posted By abirk
My daughter has a small hemangioma on her nose...

My daughter has a small hemangioma on her nose and we did the laser treatments from the time she was six months old to twelve months old. It made the color go from a bright red to a greyish purple...
Forum: Help and Resources for Hemangiomas 04-03-2010, 06:18 PM
Replies: 2
Views: 3
Posted By abirk
That is a great idea! Ask for your money back,...

That is a great idea! Ask for your money back, that open those doctors' eye. We have a friend who is family doctor and he texted my husband the other day asking who treated the "spot" on my...
Forum: Help and Resources for Hemangiomas 03-14-2010, 07:36 AM
Replies: 3
Views: 4
Posted By abirk
We saw Dr. Bayliss (ped. derm) from St. Louis...

We saw Dr. Bayliss (ped. derm) from St. Louis Children's. My daughter has a superfical hemangioma on her nose. We saw Dr. Bayliss when she was two months old and she gave us a topical steriod to try...
Forum: Help and Resources for Hemangiomas 03-03-2010, 02:15 AM
Replies: 91
Views: 92
Posted By abirk
You can email Children's Hospital in Arkansas and...

You can email Children's Hospital in Arkansas and send them pics and they will email you back what they recommend for free. Their website is birthmarks.org. They responded the next day after I...
Forum: Help and Resources for Hemangiomas 03-01-2010, 04:32 AM
Replies: 91
Views: 92
Posted By abirk
From what I've been told propranolol is better...

From what I've been told propranolol is better used in the "growing stage". My daughter is 2 and we consulted with Dr. Buckmiller in Arkansas and she said my daughter is past the stage it would help....
Forum: Help and Resources for Hemangiomas 02-25-2010, 07:32 AM
Replies: 30
Views: 31
Posted By abirk
I don't know about the swollen part but the red...

I don't know about the swollen part but the red mark looks just like my daughter's h did when startedout. If it was a scratch it would be fading. It took about three weeks for my daughter's to...
Forum: Help and Resources for Hemangiomas 02-23-2010, 10:11 PM
Replies: 30
Views: 31
Posted By abirk
My daughter has a h on top of her nose. It was...

My daughter has a h on top of her nose. It was never swollen but it started has a small red dot, spread, and then raised. We should had it laser it was flat but didn't know what it was at the time....
Forum: Help and Resources for Hemangiomas 02-14-2010, 10:29 PM
Replies: 5
Views: 6
Posted By abirk
She 2 1/2 years old and they think it is past the...

She 2 1/2 years old and they think it is past the time it could help.
Forum: Help and Resources for Hemangiomas 02-13-2010, 07:26 AM
Replies: 5
Views: 6
Posted By abirk
Surgery or not?

My daughter has a small h on her nose. We did the laser treatments from the time she was six months old to a year. She is now two and half and the color looks better but it has remained the same...
Forum: Help and Resources for Hemangiomas 02-13-2010, 07:05 AM
Replies: 2
Views: 3
Posted By abirk
My daughter had six laser treatment for a small h...

My daughter had six laser treatment for a small h on her nose. The nurses applied a numbing cream on it twenty minutes before the treatment. We were able to witness the last treatment and what they...
Showing results 1 to 25 of 49

 
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