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Search: Posts Made By: tashiestamp
Forum: Help and Resources for Hemangiomas 09-16-2011, 03:35 AM
Replies: 1
Views: 2
Posted By tashiestamp
You can try the think headbands that look like...

You can try the think headbands that look like patterns. with flowers over the braids or pony that might cover. Not sure if it is down by her neck or right in the middle of the back of her head. ...
Forum: Help and Resources for Hemangiomas 11-19-2010, 05:03 PM
Replies: 7
Views: 8
Posted By tashiestamp
Hello, My daughter has been on propranolol since...

Hello,

My daughter has been on propranolol since she was 1.5 months old. She is now 9 months. It worked awesome the same way you could see a huge difference within the first two days. Her h has...
Forum: Help and Resources for Hemangiomas 11-17-2010, 12:30 PM
Replies: 12
Views: 13
Posted By tashiestamp
she is adorable...Thank you for the information...

she is adorable...Thank you for the information on Dr. Waner.
Forum: Help and Resources for Hemangiomas 11-15-2010, 03:50 PM
Replies: 8
Views: 9
Posted By tashiestamp
My daughter was admitted for three days to start...

My daughter was admitted for three days to start propranolol. I was told to watch out for seizure activity and make sure my daughter eats. Try to feed your baby when you give the medication so that...
Forum: Help and Resources for Hemangiomas 10-18-2010, 02:56 AM
Replies: 16
Views: 17
Posted By tashiestamp
I found out that my mothers aunt's daughter had...

I found out that my mothers aunt's daughter had an h on the top of her head that the doc surgically removed when she was a baby and then two of my mothers uncles both had them. I do think in this...
Forum: Help and Resources for Hemangiomas 10-18-2010, 01:01 AM
Replies: 19
Views: 20
Posted By tashiestamp
Thank you all for the replies. Yeah people are...

Thank you all for the replies. Yeah people are so rude but now I am just so happy that when people stare I just make Maddi smile by playing with her so that her face lights up the world and they...
Forum: Help and Resources for Hemangiomas 10-15-2010, 02:01 PM
Replies: 11
Views: 12
Posted By tashiestamp
My daughter is on propranolol and I have to make...

My daughter is on propranolol and I have to make sure that she eats every 5 hours because she becomes hypoglycemic is she doesn't which can cause seizures with this medication. The doctors do not...
Forum: Help and Resources for Hemangiomas 10-15-2010, 01:58 PM
Replies: 2
Views: 3
Posted By tashiestamp
I am glad that your baby is doing good on...

I am glad that your baby is doing good on propranolol. My daughter was admitted too for the start of propranolol. My daughter was born with her h but it was completely flat when she was born then...
Forum: Help and Resources for Hemangiomas 10-15-2010, 01:43 PM
Replies: 4
Views: 5
Posted By tashiestamp
My daughter is 8 months old and she was born with...

My daughter is 8 months old and she was born with an h and she has been on meds since she was 1 week old. They started her on steroids then because she was so small at the time that they didn't want...
Forum: Help and Resources for Hemangiomas 07-13-2010, 05:15 PM
Replies: 6
Views: 7
Posted By tashiestamp
I guess it all depends on if the h is ulcerated...

I guess it all depends on if the h is ulcerated or not. They had to put our daughter to sleep because the ulcerations were so bad and she was in so much pain. She healed and 90% of her h is scar...
Forum: Help and Resources for Hemangiomas 05-20-2010, 08:24 PM
Replies: 4
Views: 5
Posted By tashiestamp
My aunt is a doctor and used to work in...

My aunt is a doctor and used to work in Birmingham until she retired. I will ask her. Are you wanting a pediatric or does it matter?
Forum: Help and Resources for Hemangiomas 05-20-2010, 08:21 PM
Replies: 16
Views: 17
Posted By tashiestamp
There is a dr. in Brussels. I will ask my...

There is a dr. in Brussels. I will ask my daughters oncologist for the info. I wanna know too. My daughters hemangioma is growing again. She has been on propranolol for 1.5 months now. It was...
Forum: Help and Resources for Hemangiomas 05-20-2010, 08:15 PM
Replies: 19
Views: 20
Posted By tashiestamp
People starring?

I get so upset like heart broken for my daughter not for me when people just stare and don't say anything. They don't smile at all either. Then when people do see her and they say omg she is...
Forum: Help and Resources for Hemangiomas 05-18-2010, 03:54 PM
Replies: 10
Views: 11
Posted By tashiestamp
My daughter is on the propranolol and she just...

My daughter is on the propranolol and she just turned 3 months. They said the were going to gradually take her off to see if it started to grow again while she is coming off it that way it won't...
Forum: Help and Resources for Hemangiomas 05-18-2010, 03:28 PM
Replies: 16
Views: 17
Posted By tashiestamp
I got a phone call from my mother who had just...

I got a phone call from my mother who had just finished talking with her aunt. My moms aunt's daughter was born with a hemangioma on top of her head. Then two of my moms uncles both had...
Forum: Help and Resources for Hemangiomas 04-18-2010, 07:35 PM
Replies: 19
Views: 20
Posted By tashiestamp
Yes my daughter was admitted on a Monday and was...

Yes my daughter was admitted on a Monday and was discharged on a Wednesday. They started out with a very low dose twice and then raised the dosage and did that does twice and then the next dose was...
Forum: Help and Resources for Hemangiomas 04-18-2010, 07:30 PM
Replies: 16
Views: 17
Posted By tashiestamp
It's really weird birth marks, because I have a...

It's really weird birth marks, because I have a port wine stain and hemangioma's but just the baby dots. My sister and my brother as well as all three of my baby's have the same birthmark (red...
Forum: Help and Resources for Hemangiomas 04-18-2010, 07:23 PM
Replies: 5
Views: 6
Posted By tashiestamp
My daughter is two months old and she had an u/s...

My daughter is two months old and she had an u/s of her brain a ct of her brain and echo of her heart and an ekg. If you have any questions just let me know. I hope that everything goes great.
Forum: Help and Resources for Hemangiomas 04-09-2010, 09:00 PM
Replies: 5
Views: 6
Posted By tashiestamp
I was ask the dr. to slowly take her off to see...

I was ask the dr. to slowly take her off to see if it will start growing again. That is what my daughters dr's are going to do.
Forum: Help and Resources for Hemangiomas 04-09-2010, 08:46 PM
Replies: 3
Views: 4
Posted By tashiestamp
Thank you all for the info and the thoughts. My...

Thank you all for the info and the thoughts. My daughters H has ulcerated and now they are talking about laser treatments to get it to heal. It keeps ulcerating and she has had to take oxycodone...
Forum: Help and Resources for Hemangiomas 04-09-2010, 08:39 PM
Replies: 14
Views: 2,959
Posted By tashiestamp
OMG...Your daughter is so gorgeous. I love how...

OMG...Your daughter is so gorgeous. I love how big her eyes are. She is just beautiful. My daughters in on the same cheek. She is just a doll. If you want you can try the Cincinnati Children's...
Forum: Help and Resources for Hemangiomas 04-09-2010, 08:16 PM
Replies: 13
Views: 14
Posted By tashiestamp
Missy you are awesome helping out posting info...

Missy you are awesome helping out posting info and questions for everyone. You rock
Forum: Help and Resources for Hemangiomas 04-09-2010, 08:13 PM
Replies: 19
Views: 20
Posted By tashiestamp
thanks...I don't mind as long as she is going to...

thanks...I don't mind as long as she is going to be okay.
Forum: Help and Resources for Hemangiomas 04-09-2010, 08:07 PM
Replies: 19
Views: 20
Posted By tashiestamp
The dr. watch out for hypoglycemia and...

The dr. watch out for hypoglycemia and hypotension. My daughter is 7 weeks and she is taking propranolol and since her blood sugar dropped after recieving her dose I just have to wake her every...
Forum: Help and Resources for Hemangiomas 04-09-2010, 08:00 PM
Replies: 5
Views: 6
Posted By tashiestamp
That is so great. I will pray for you and your...

That is so great. I will pray for you and your little one. I hope everything goes great.
Showing results 1 to 25 of 34

 
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